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Old 01-29-2007, 08:18 PM   #1
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Question Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

My primary Dr. believes that I have Fibro based on negative test results and widespread pain that I have. I can't see a Rheumy until March 12, so until then, I continue to worry.

I've been having the feeling of my heart doing "flip flops". The first time it happened, I ended up in the ER, where they told me it was most likely a reaction to Prednisone (which I took one pill of to have a CT Scan because I'm allergic to iodine dye). They went away.

Since then I have been getting them a few times a day. I've had EKG's, Stress Echocardiograms, and Chest X Rays, all fine. I just continue to worry that they are missing something with my heart.

So my question is, are these palpitations, flip flops, skipped beats normal with Fibro?

I have recently taken a look at the Tender Points Chart, and I definitely have a lot of them, so I'm not dismissing my Dr.'s diagnosis, I'm just wondering if this is normal.

The cardiologist I went to thought I was crazy because I'm only 24 and I was worried that I had a heart problem.

I occasionally have a feeling of something being in my throat. I don't know if that's GERD, Fibro, or both?

If there's anyone who can help give me some clarity, I'd greatly appreciate it.

 
Old 01-30-2007, 08:08 AM   #2
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

breath robin.
for some of us this does happen. i noticed an increase in my heart rate and sometimes that feeling of it racing or moving inside me. had all the tests too. i do have hardening of the arteries that go to my legs. that does not have anything to do with the sensation tho. for me it is an expression of fibromyalgia.
i found that if i stop, do my breathing meditation and really focus i can not only stop it, i can slow down my heart rate to normal. it is simple.
3 breaths in your nose and out your mouth.
3 breaths in your mouth and out your nose.
3 breaths in and out nose.
3 breaths in and out mouth.
do this slowly focusing on filling your lungs completely and emptying them fully. wait for each next breath. your body will say, now.
an old sufi murshida taught me this before she died. simple, yet so useful for any situation. stress, pain, fear, it works to relax and focus the body/mind.
peace,
bluelakelady

 
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Old 01-30-2007, 01:38 PM   #3
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Thanks for replying, Bluelakelady! I really appreciate it.

I don't really notice a rapid heartbeat, it just feels like a thump, and then a flip flop feeling in my chest.

The past few days I've been having a vibrating sensation (that's the best way I can describe it) in my left foot. It only lasts a few seconds, but it's there a lot.

I really wonder if it's Fibro and not something else going on. I've never heard of Fibro causing vibrating sensations.

 
Old 01-30-2007, 01:51 PM   #4
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Robin,

Heart palps are very common in early perimenopause. They are also common in a number of thyroid disorders.

Both hormonal variation & thyroid problems are more common in fibro than in the general population.

But of course, there can be other causes. I notice that you've had a lot of workups done. What does your doc say?

The entire HPA axis/endocrine system is interrelated in a highly complex way. Since you noticed a lot of these cardiac acrobatics when you took the pred (a synthetic cortisone), it's possible that something thyroid or adrenal or other hormonal is contributing.

Best wishes.

Last edited by elmhar; 01-30-2007 at 01:53 PM.

 
Old 01-30-2007, 02:06 PM   #5
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Hi Elmhar, thanks so much for replying!

My primary doctor believes it's probably Fibromyalgia, but she wants me to see a Rheumatologist, who I have an appointment with in March.

My Cardiologist said that my EKG was fine, my Echo Stess Test was fine and my Chest X Ray showed nothing abnormal. I had a lot of blood work done and the only thing they found was that I am slightly B-12 deficient. I started getting B-12 shots in December. I don't know if they did a Thyroid test or not. Is that a seperate blood workup or would that show in any bloodwork?

My primary doctor sent me for an MRI of my brain, which showed some white matter, suggesting possible early white matter disease (MS), but the Neurologist dismissed that. However, the vibrating sensations that I've been having in my left foot are supposedly common in MS, so I don't know.

These are the symptoms I have had since November 2006 (They aren't all there at once and they come and go, but I have at least 1 of these every day)

Chest Pain
Sternum Pain
Rib Pain and pain going into my back
Arm Pain (shooting pain down both arms)
Pain between Wrist and Elbows
Knee Pain
Pain in Shoulder Blades
Back Pain
Tingling in Hands and Feet
Burning sensation on left side of face, head, and upper back. (happened once for a week)
Tenderness under arms on both sides
Pulsing sensation in ribs
Stomach Pain
Headaches (usually on the left side of my forehead)
Pain in Hips
Pain in Butt (sometimes just one side)
Dizziness
Heart Palpitations (flip flop feeling in chest)
Vibrating sensation in left foot

Thanks to everyone who has taken the time to read my posts and help me. It is appreciated more than you know.

 
Old 01-31-2007, 09:40 AM   #6
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Hi Robin,

Addressing a B12 defic is very impt. Did you know that the European ref ranges for B12 are almost double the standard for US labs? Meaning that, if we were using the Euro standards, many more people would likely receive benefit of a simple thing like B12 for neuropathic pain & sensory issues.

A thyroid screen is commonly done. You might ask your doc's nurse what your most recent TSH level came in at. It's helpful to know the reference range & your actual number. But many people are told they have "normal" thyroid function based on TSH when in fact most of the labs in the USA are using 'old' ref ranges, not up to the current standards set by the American Academy of Clinical Endocrinologists in, I think it was 2003. The new range has a cutoff around 3.0, with some specialists advising it should be set to 2.5.

TSH is a pituitary hormone. The TSH test is full of assumptions & potential pitfalls. But the biggest pitfall, for fibro sufferers, is that pituitary function is frequently "a little off" in our disorder. That makes the TSH not a great test for us. Much better tests are the levels of free thyroid hormones, and thyroid antibodies. Specifically called, free T3, free T4, and TPO antibodies.

If you have to pick one, go for the free T3 level. That reveals the amt of available, active-form thyroid hormone in your body.

Older tests like totals, uptakes, PBI, & T4 by reflex are not helpful.

I would acquire info on thyroid test results, from my PCP, and if possible, get any other tests I desired before the Rheum appt. If your PCP balks at ordering further tests (and this is a common occurrence), you can self-order the tests through a Health Check USA lab.

It's a rare (but valuable) specialist who operates without blinders on. There are a few Rheumies in the country who do recognize the sig. contributions that the HPA axis/endocrine system to fibro, and to the other conditions that Rheumies treat. Often, if hormonal glitches are treated, other stuff becomes minimized, or easier to treat.

Fibro is sometimes treated with pain meds, neuro-type meds, anti-depressants, even immune-suppressant or biomodifier rheumie type meds, in the more complex disease-overlap cases. But all of the pharma products on the market bear side-effect risks. Not that they should never be used. But it does make sense to look for sources of dysfunction, & treat those, before slapping chemicals on symptoms. IMO!

If you do get more thyroid testing done, ask for a photocopy of the lab results, with ref ranges. These are yours by law if you live in the USA. A "normal " at the bottom of the ref range is not uncommon in fibro, and such an individual may benefit from a bit of tweaking. The analogy is, the "normal" size range for women's shoes is size 5 through 10. But, for my size 9 feet, a size 5 shoe is going to cause pain. Ditto for individual thyroid hormone requirements. I hope that makes sense.

Best wishes to you. I hope that you get some benefit from the B12.

 
Old 01-31-2007, 10:08 PM   #7
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Often they treat fibro pain with amitriptyline or noretriptyline both have caused palpitations when I took them for lumbar disc pain/nerve pain. Of coarse Fibro brings alot of different symptoms with different people, but dont let them forget to rule out more dangerous causes.

 
Old 02-01-2007, 12:28 AM   #8
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Quote:
Originally Posted by *Robin* View Post
Hi Elmhar, thanks so much for replying!

My primary doctor believes it's probably Fibromyalgia, but she wants me to see a Rheumatologist, who I have an appointment with in March.

My Cardiologist said that my EKG was fine, my Echo Stess Test was fine and my Chest X Ray showed nothing abnormal. I had a lot of blood work done and the only thing they found was that I am slightly B-12 deficient. I started getting B-12 shots in December. I don't know if they did a Thyroid test or not. Is that a seperate blood workup or would that show in any bloodwork?

My primary doctor sent me for an MRI of my brain, which showed some white matter, suggesting possible early white matter disease (MS), but the Neurologist dismissed that. However, the vibrating sensations that I've been having in my left foot are supposedly common in MS, so I don't know.

These are the symptoms I have had since November 2006 (They aren't all there at once and they come and go, but I have at least 1 of these every day)

Chest Pain
Sternum Pain
Rib Pain and pain going into my back
Arm Pain (shooting pain down both arms)
Pain between Wrist and Elbows
Knee Pain
Pain in Shoulder Blades
Back Pain
Tingling in Hands and Feet
Burning sensation on left side of face, head, and upper back. (happened once for a week)
Tenderness under arms on both sides
Pulsing sensation in ribs
Stomach Pain
Headaches (usually on the left side of my forehead)
Pain in Hips
Pain in Butt (sometimes just one side)
Dizziness
Heart Palpitations (flip flop feeling in chest)
Vibrating sensation in left foot

Thanks to everyone who has taken the time to read my posts and help me. It is appreciated more than you know.
Many years ago, I had heart palpitations and I thought my heart was going to jump out of my body. The Dr at the time, prescribed meds. After that, I did research, and found that it was possible I was deficient in Magnesium. So I started taking Cal/Mag Citrate with Vitamin D 3 times a day with meals. Also, I am believer in supplements, as I don't feel humans can possibly get all their nutrients from food alone. The FDA only recommends the minimum in my opinion, and Drs will not usually commit to use of supplements......saying if you eat properly, etc.

The link below is about magnesium and its interactions with conditions.......one being Fibromyalgia.

dancing

[url]http://www.ctds.info/magnesium.html[/url]

Last edited by dancing; 02-01-2007 at 12:30 AM.

 
Old 02-08-2007, 08:17 PM   #9
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Hi, Robin ~

I have that feeling as well and had all the tests and they were normal. You mentioned GERD. Well, after all was said and done, mine was caused from esophageal spasms. I too have GERD. I will even get dizzy sometimes when I have a spasm. You might check into that. Hope you are feeling better soon.

 
Old 02-11-2007, 10:42 AM   #10
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windymoon HB User
Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

Robin, I have it to and like you have been to many doctor.
With me it's mostly if I'm resting or sitting.
I feel it anxiety and take ativan, because I'm sensitive to medication, I break the ativan into 4 pieces. taking .25, but it really helps!

 
Old 02-14-2007, 12:57 PM   #11
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Re: Are Palpitations (Heart doing Flip Flops) Normal with Fibro?

I have never had heart palps until I fell sick with fibro severe years ago ~ now I have them and often several times a day. I also need to take premed (antibiotics) prior to dental work/cleanings and any surgery.

Have you had a dopler echo done yet?

 
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