testing for fibro - inconclusive results - Fibromyalgia Message Board

gunner00 · 02-08-2007, 01:54 PM

Guess my original post wasn't effective. I am new at this and not sure how much info to put out there.

From what I have read, others with fibro have had normal blood test results prior to their diagnosis. I have heard everything from Lupus, Fibromyaglia, Scleroderma, as well as connective tissue disease.
Confused since doctor feels my physical exams don't match blood test results (so it must be fibro).

Have tried meds - Etodalac (pain), Flexeril (muscle relaxant), Trazodene, Elavil, Soma, Paxil. Most have made symptoms worse. Pain meds don't have much effect.

I have tried vitamin supp, drinking more water, changing my diet, and exercise (which is a double edge sword)
My muscles have become so tight (no matter how much stretching) I am currently seeing massage therapist.

Was hoping by posting my test results (ENA panel) that someone else may have had a similar situation.
Originally, Histone, RNP, and Smith antibodys were positive. Doctor suspected drug induced lupus from doxicycline (acne drug). Have been off drug for over a year. Recent blood work changed showing Centromere antibody was positive.

I have heard/read that depression and stress can induce fibro. I have had plenty of stress in my life and have suffered from PMDD but I am just not sure if I can except that it is fibro just because my physical exams don't match my test results.

Any advise would be appreciated.

builder · 02-11-2007, 05:00 PM

What the doctors call the pressure point test is a joke. I went to two different Rhuemies in Chicago. Both are nationally known for their books and are constantly listed in magazines as two of the best doctors in Illinois. Both gave me the pressure pont test. Basically just pressed on certain spots. One said I had Fibro and the other said I didn't. How I hope someday they will come up with a blood test for this nasty disease

sunny47 · 02-11-2007, 05:33 PM

The rheumy that I went do did not even check for pressure points. I told him I had them. He did checked my joints and said they were OK and based on my history said I had Fibro. My PCP had already said that.

gunner00 · 02-11-2007, 06:59 PM

Thanks for your responses.
Yes, I think the pressure point test is point less. I have always had aches and pains. l have injuries from past sports and other activites. So I have pain at most of the pressure points no matter what. To me that test means nothing.
The blood test are the ones that worry me the most but the doctor doesn't seem to be effected.

gunner00 · 02-12-2007, 05:56 PM

Question for RSTARRE.
I am also from the Chicagoland area. I am looking for a new Rhem doctor. Was looking at Loyola.
Would it be to much to ask where these doctors you reference where from?
Do you recommend any particular place?