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Old 02-21-2007, 07:51 AM   #1
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Yourtroubl HB User
Seriously, how can you tell you have Fibro

I have been in such pain and severe fatigue for 1 1/2 years.

It all started with pains in my hand then went to the other hand, then to the back, knees, elbows, shoulders, neck, etc. I have headaches. I have fatigue so bad that sometimes its hard to walk down the hall to the bathroom. I was on steriods and gained 50 pounds, of course, this does not help. I have multiple neurological symptoms.

I was put in hospital for 5 days with stroke like symptoms. I just turned 41.

The only thing that came back positive was my lyme disease test. So, ok, I think its not MS and not fibro. I can get on antibiotics and get rid of the Lyme and go back to living.

but no, the Infectious disease thinks its Fibro. My new tests for Lyme have not come back yet.

Have any of you been through this?

 
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Old 02-21-2007, 10:52 AM   #2
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elmhar HB Userelmhar HB User
Re: Seriously, how can you tell you have Fibro

Hi YT,

Fibro is dxd by "ruling out" other possible diseases/pain sources first, then searching for "tender points." As yet there is no clinically accepted blood test for fibro, although there are a number of tantalizing possibilities on the horizon, still in the research stage.

I hear you saying that you have Lyme disease & are being treated by an Infectious Diseases doc. Do you know whether or not he is a Lyme specialist? Antibiotics for Lyme are most effective if begun within 72 hrs. of the tick bite. Many lyme sufferers have found that this disease confers a longer-term struggle than their docs understand.

If your ID doc is now saying, "it's fibro," I would suggest you seek out a second opinion from a doc who specializes in, & successfully treats, the neurological manifestations of Lyme disease. You may have to do some networking to find that special doc.

If you are not familiar with the treatment process for Lyme, there are books available at many public libraries that discuss various treatment philosophies. One book I've read & would recommend is Healing Lyme: natural prevention and treatment of Lyme borreliosis and its coinfections, by Stephen Buhner.

While it's possible for one person to have both Lyme & fibro, it's very important to treat the Lyme thoroughly. If the fibro dx takes precedence, you may discover the unfortunate truths that so many fibro sufferers have discovered: first, that any new symptoms (or old ones, for that matter) are attributed to fibro. It's much harder to get serious diagnostics with a fibro dx. Second, that many docs still believe fibro is primarily a "somatizing" or psychological disorder. Third, that the treatments conventional medicine has to offer fibro sufferers only treat the symptoms, & do not address causative factors.

Research evidence on fibro suggests that sufferers are not a homogeneous group. There are subsets/types of fibro sufferers. At least one segment of fibro sufferers has evidence of viral infection, and responds extremely well to treatment with antiviral meds. This is not current clinical practice, but several studies have shown very positive results. It's very likely that in future it will be recognized that, for many fibro sufferers, a variety of treatable, infectious agents are at the root of all the pain & dysfunction. And, IMO, it's likely that Lyme will be recognized as one of many "bad guys."

You are very welcome on our forum! As I recall, we have at least one other member with Lyme issues. I hope she, and others, wi'll stop in to offer their experience & advice.

Best wishes.

 
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