It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Fibromyalgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-11-2007, 10:57 PM   #1
Senior Member
(female)
 
Join Date: Dec 2000
Posts: 154
sunshine8790 HB User
What is wrong?

Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?

Last edited by sunshine8790; 05-11-2007 at 11:22 PM.

 
Old 05-12-2007, 04:32 AM   #2
Senior Member
(female)
 
Join Date: Aug 2006
Location: Roanoke, VA, USA
Posts: 156
tweiler HB User
Re: What is wrong?

I have fibro myself and a lot of what you are describing was me before I was dxed and started on meds. See if you can get an appt for a rheumy, they can tell you if it is fibro for sure.

 
Sponsors Lightbulb
   
Old 05-12-2007, 12:03 PM   #3
Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 493
sarah92202 HB User
Re: What is wrong?

[QUOTE=sunshine8790;2978608]Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?[/QUOTe
Your symptoms sound like Lyme disease to me, have you looked at the symptoms of Lyme? You shoulder, neck and jaw pain are a classic symptom that everyone with LD seems to share, even though alot of the other symptoms they don't. I was given a fibro diag. by my rheumi over 8 years ago and told that even though my Lupus tests were neg. I would eventually come up pos. for Lupus. I never did, and if I had been treated for Lyme when I had contracted it, I would not have progressed to Late stage and ahve the neur. problems I ahve now. It is a serious disesase that needs to be ruled out by anyone experiencing these symptoms. don't except a FIBRO DIAG. Where are you in the US? You can go on the Lyme Board and look for a Lyme Literate MD (LLMD) in your area, if you don't find one listed you can ask. Also have you had all autoimmune diseases ruled out? Hope this could help, Sarah

 
Old 05-12-2007, 03:13 PM   #4
Senior Member
(female)
 
Join Date: Dec 2000
Posts: 154
sunshine8790 HB User
Re: What is wrong?

Being tested for cushings syndrome this week.



[QUOTE=sarah92202;2979330]
Quote:
Originally Posted by sunshine8790 View Post
Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?[/QUOTe
Your symptoms sound like Lyme disease to me, have you looked at the symptoms of Lyme? You shoulder, neck and jaw pain are a classic symptom that everyone with LD seems to share, even though alot of the other symptoms they don't. I was given a fibro diag. by my rheumi over 8 years ago and told that even though my Lupus tests were neg. I would eventually come up pos. for Lupus. I never did, and if I had been treated for Lyme when I had contracted it, I would not have progressed to Late stage and ahve the neur. problems I ahve now. It is a serious disesase that needs to be ruled out by anyone experiencing these symptoms. don't except a FIBRO DIAG. Where are you in the US? You can go on the Lyme Board and look for a Lyme Literate MD (LLMD) in your area, if you don't find one listed you can ask. Also have you had all autoimmune diseases ruled out? Hope this could help, Sarah

 
Old 05-12-2007, 04:05 PM   #5
Veteran
(female)
 
Join Date: Mar 2007
Location: USA
Posts: 493
sarah92202 HB User
Re: What is wrong?

[QUOTE=sunshine8790;2979580]Being tested for cushings syndrome this week.

Lyme also causes adrenal and thyroid problems, amny of us diag. with LD also have them. I have both adrenal insufficiency and Hypothyroidism and so do several of the gals I converse with on the Lyme and Addison's board.
Get tested for everything including Lyme, especially if you are in the Northeastern states. Lyme has been found in all the states, but the Northeast is the most endemic area for Lyme. Igenex Labs is highly recommended as the lab of choice, I and most Lymies I know wouldn't use any other lab for western Blot testing, because other labs are so inconsistant, and the initial elisa tests that doc's run for Lyme are only 30% accurate. that is why so many of us that had LD were not diag. early. Good Luck with all your testing and remember, the more you know the better, and don't let doc's tellyou that nothing is wrong, that you have Fibro, or that you need psychological help. These are the excuses they use when they can't figure out what is wrong with you. This is your body, and you are paying them to find a diag. If they can't help you find another one who will! Sarah

 
Old 05-12-2007, 06:55 PM   #6
Senior Veteran
(female)
 
Glojer's Avatar
 
Join Date: Mar 2005
Location: St. Louis, Mo. USA
Posts: 3,692
Glojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB UserGlojer HB User
Re: What is wrong?

Sarah , I have a question. If you contracted lymes disease many years ago, is it treatable or curable if it is discovered years later? I have never been diagnosed or even tested for lymes and I am sure about the fibro. Something you said in your post made me wonder about the length of time and treatment. Just Curious
Glojer

 
Old 05-12-2007, 09:30 PM   #7
Senior Member
(female)
 
Join Date: May 2007
Location: Little Rock, Arkansas, USA
Posts: 126
froggyfog HB User
Re: What is wrong?

Sounds like my FM, but the only way to know for sure is to rule everything auto-immune out.

Find a good Rheum to test you for Lupus, thyroid problems, etc.

I have hashimotos's thyroiditis and fibromyalgia and other lovely stuff and I can relate to all your symptoms except the jaw pain.

Froggyfog

 
Old 05-12-2007, 10:10 PM   #8
Senior Member
(female)
 
Join Date: Dec 2000
Posts: 154
sunshine8790 HB User
Re: What is wrong?

Just want to say thank you to everyone that has replied, hope to find out something soon, will post if i find out anything.

 
Old 05-14-2007, 09:58 AM   #9
Newbie
(male)
 
Join Date: Feb 2007
Location: Milford,Ct.
Posts: 5
SummerDrivinsun HB User
Re: What is wrong?

Hi Sunshine. Awesome name
I have Have had Chronic fatigue for 3 1/2 years and I have the same symptoms you do. Some days are better than others. The joint pain,muscle pain and the brain fog. It takes me a while to get up the stairs sometimes.
It's also hard to get the words out when talking sometimes.
It just seems like this horrible ailment just popped up on so many people since 2004. A Dr.thought I had Lyme disease so treated me for lyme with a year of anti-biotics,which made me feel worse for that year. Now they say I have Chronic Fatigue with a nasty side order of Fibromyalgia.
Eating more proteins like chicken and fish seem to help. Lay off the sugary products like donuts and candy etc.
I tried a Vitamin B stress formula with extra C for energy and it seems to help a bit. Also a good multiVitamin and Vitamin B-12 sublingual.
I hope we all feel better soon. Peace and God Bless. Summer


Quote:
Originally Posted by sunshine8790 View Post
Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Im over it now...but what would you do girls? Piranna65 Relationship Health 20 04-22-2010 08:40 AM
Scared,what does this mean??? WhenItRains Thyroid Disorders 4 04-21-2010 11:55 AM
What You Don't Know Can Hurt stillinshock Neuropathy 0 04-21-2010 03:39 AM
What Should I Do??? goody2shuz Bipolar Disorder 137 08-01-2007 09:38 AM
Help! What is wrong with me? exist21 General Health 55 09-19-2005 05:45 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin




TOP THANKED CONTRIBUTORS



bluelakelady (369), WoodsWalker (132), thefarm (111), Glojer (103), tooolgrl (94), biogirl71 (88), janewhite1 (85), kirstee (60), monalisa24 (55), tmrots (41)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (904), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 09:45 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!