What is wrong? - Fibromyalgia Message Board

sunshine8790 · 05-11-2007, 11:57 PM

Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?

tweiler · 05-12-2007, 05:32 AM

I have fibro myself and a lot of what you are describing was me before I was dxed and started on meds. See if you can get an appt for a rheumy, they can tell you if it is fibro for sure.

sarah92202 · 05-12-2007, 01:03 PM

[QUOTE=sunshine8790;2978608]Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?[/QUOTe
Your symptoms sound like Lyme disease to me, have you looked at the symptoms of Lyme? You shoulder, neck and jaw pain are a classic symptom that everyone with LD seems to share, even though alot of the other symptoms they don't. I was given a fibro diag. by my rheumi over 8 years ago and told that even though my Lupus tests were neg. I would eventually come up pos. for Lupus. I never did, and if I had been treated for Lyme when I had contracted it, I would not have progressed to Late stage and ahve the neur. problems I ahve now. It is a serious disesase that needs to be ruled out by anyone experiencing these symptoms. don't except a FIBRO DIAG. Where are you in the US? You can go on the Lyme Board and look for a Lyme Literate MD (LLMD) in your area, if you don't find one listed you can ask. Also have you had all autoimmune diseases ruled out? Hope this could help, Sarah

sunshine8790 · 05-12-2007, 04:13 PM

Being tested for cushings syndrome this week.

[QUOTE=sarah92202;2979330]

Quote:

Originally Posted by sunshine8790

Every joint and muscle in my body hurts, my memory is gone, i wake up in the morning and I'm spaced out and foggy for half the day, can't concentrate,
The worst of my pain is in my shoulder, neck and hips (especially hips). I have weight gain, jaw pain and sensitivity to light and noise. When I have a flare, all the symptoms worsen for a couple days. I'm so weak, some days I can't even get out of bed. I usually lay around in my pajamas, because I can't stand to be dressed. Does anyone else feel like this? Does this sound like fibro or lupus?[/QUOTe
Your symptoms sound like Lyme disease to me, have you looked at the symptoms of Lyme? You shoulder, neck and jaw pain are a classic symptom that everyone with LD seems to share, even though alot of the other symptoms they don't. I was given a fibro diag. by my rheumi over 8 years ago and told that even though my Lupus tests were neg. I would eventually come up pos. for Lupus. I never did, and if I had been treated for Lyme when I had contracted it, I would not have progressed to Late stage and ahve the neur. problems I ahve now. It is a serious disesase that needs to be ruled out by anyone experiencing these symptoms. don't except a FIBRO DIAG. Where are you in the US? You can go on the Lyme Board and look for a Lyme Literate MD (LLMD) in your area, if you don't find one listed you can ask. Also have you had all autoimmune diseases ruled out? Hope this could help, Sarah

sarah92202 · 05-12-2007, 05:05 PM

[QUOTE=sunshine8790;2979580]Being tested for cushings syndrome this week.

Lyme also causes adrenal and thyroid problems, amny of us diag. with LD also have them. I have both adrenal insufficiency and Hypothyroidism and so do several of the gals I converse with on the Lyme and Addison's board.
Get tested for everything including Lyme, especially if you are in the Northeastern states. Lyme has been found in all the states, but the Northeast is the most endemic area for Lyme. Igenex Labs is highly recommended as the lab of choice, I and most Lymies I know wouldn't use any other lab for western Blot testing, because other labs are so inconsistant, and the initial elisa tests that doc's run for Lyme are only 30% accurate. that is why so many of us that had LD were not diag. early. Good Luck with all your testing and remember, the more you know the better, and don't let doc's tellyou that nothing is wrong, that you have Fibro, or that you need psychological help. These are the excuses they use when they can't figure out what is wrong with you. This is your body, and you are paying them to find a diag. If they can't help you find another one who will! Sarah