| please help been told i had complex chronic fatigue
dear all,
posted all around these boards for two years and am seriously crashing from being ill feel suicidal.
ok i was diagnosed with lupus, chrons etc etc all seem to be wrong. however i saw a cfs specialist and he told me i had complex chronic fatigue syndrome was seriously ill and would need medication etc getting better.i was meant to be followed up last october but administaration messed it up my dad is trying to get onto him cause im seriously ill right now.
heres my story in my brief and my tests
2 years ago i went from being very healthy to getting some kind of uti?? to not bing able to get to the shopsin threee weeks severe headaches and collapsing. was taken to hospital next day and they thought i had lupus. i lay in bed for three weeks with blurred vision unable to move my joints and severe headache. the appointment came no i dinn't have lupus i continued to get the following joint pains rashes drug allergie sseizures utis . i saw a lupus doctor who told me yes i have ana negative lupus. put on steriods got worse.
evry med made me ill. got problems with temp regulation flaoters hair loss ulcers
got inflmmtion of m spine b12 and iron anemia and a cist in my brain still nothing to tie it together. postural hypotension and severe dizzyness. a recent test shows i have hypo adrnalism but meds are making me iller. i had a trial on acicloveir after xmas and flt a little better. in the last week i got conjuctivitis in my eyes svere anxiety discharge im sure im having the herpes virus too. no hospital will touch me with a brge pole. my boyfriend got symptons of hsv too. can anyone help me i feel i cant go on.
i have cognitive problems seizures body lock ups black outs mood swings. breathing asthma related problems. burning pains, bladder and bowel problems, anorexia although i eat and hate being so thin
Zoe does this sound like me/ fibro evryone keeps telling me but no one helping treat.
i really feel suicidal
Zoe
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