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Old 06-10-2007, 04:29 AM   #1
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zoe111 HB User
please help been told i had complex chronic fatigue

dear all,

posted all around these boards for two years and am seriously crashing from being ill feel suicidal.



ok i was diagnosed with lupus, chrons etc etc all seem to be wrong. however i saw a cfs specialist and he told me i had complex chronic fatigue syndrome was seriously ill and would need medication etc getting better.i was meant to be followed up last october but administaration messed it up my dad is trying to get onto him cause im seriously ill right now.

heres my story in my brief and my tests


2 years ago i went from being very healthy to getting some kind of uti?? to not bing able to get to the shopsin threee weeks severe headaches and collapsing. was taken to hospital next day and they thought i had lupus. i lay in bed for three weeks with blurred vision unable to move my joints and severe headache. the appointment came no i dinn't have lupus i continued to get the following joint pains rashes drug allergie sseizures utis . i saw a lupus doctor who told me yes i have ana negative lupus. put on steriods got worse.
evry med made me ill. got problems with temp regulation flaoters hair loss ulcers

got inflmmtion of m spine b12 and iron anemia and a cist in my brain still nothing to tie it together. postural hypotension and severe dizzyness. a recent test shows i have hypo adrnalism but meds are making me iller. i had a trial on acicloveir after xmas and flt a little better. in the last week i got conjuctivitis in my eyes svere anxiety discharge im sure im having the herpes virus too. no hospital will touch me with a brge pole. my boyfriend got symptons of hsv too. can anyone help me i feel i cant go on.
i have cognitive problems seizures body lock ups black outs mood swings. breathing asthma related problems. burning pains, bladder and bowel problems, anorexia although i eat and hate being so thin

Zoe does this sound like me/ fibro evryone keeps telling me but no one helping treat.


i really feel suicidal


Zoe

 
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Old 06-10-2007, 05:25 AM   #2
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zoe111 HB User
Re: please help been told i had complex chronic fatigue

i did not read am not allowed to post about suicide thing i will call someone for help. sorry i made that post can someone help me with the other stuff though sorry

 
Old 06-10-2007, 06:55 AM   #3
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were2alike HB User
Re: please help been told i had complex chronic fatigue

Hey i went thru something similar but after my back blistered from 1steroid the doctor kept me away from them an i had major uti from amitriptyline I stayed away from that too! Theres no cure for fms Just Treat the symptoms i learn that all medications is not for everyone an over medication make it hard to pin point your dx.

 
Old 06-10-2007, 07:54 AM   #4
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were2alike HB User
Re: please help been told i had complex chronic fatigue

Hello 2 every1 b4 i was dx. dr. thought of lupus but test result were neg an all other test were neg went to phsycologist an rhuematologist been dx wit fibromyalgia tried steroids major skin blister the dr. an i stay clear from that tried amitriptyline major uti stay clear from that . my dr. believe to not over medicate an i agree because u take 1med for 1 illness then that have side effect so now u taken something for those symptoms an after awhile u dx with a list of illnesses an dr. cant pin point the main dx. becuz of all the medications. there no cure for fibromyalgia but antideppresants an antiseizer meds eat right get plenty of sleep an stretch can ease some of the pain . i hope this help

 
Old 06-10-2007, 08:50 AM   #5
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zoe111 HB User
Re: please help been told i had complex chronic fatigue

no amitiptaline did not work for me. im such a mess i need taking in by this doctor i tthink my dad is trying to organise it a.s.a.p i am suffering very bad anxiety and phychological symptons as well as behaioural

 
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