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Old 06-19-2007, 04:00 PM   #1
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Question Guaifenesin Protocol

Has anyone ever heard of or tried the Guaifenesin Protocol? I just heard about it last night & am planning to talk to my doc about it & Provigil tomorrow.

Does it really work?

A lady told me she had been on it for years. She said when you find the right does for you that the symptoms will get worse before they get better & that is how you know it is the right dose for you. She said she can keep up with her 4 year old son, who also has FMS, and can do things like run 5 miles a day on the elliptical!

I want to know how well it has helped others who have tried it.

Thanks in advance!
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Old 06-20-2007, 04:51 PM   #2
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Re: Guaifenesin Protocol

Yes please! I am looking for more info on this too!

I have been researching the "guai" protocol for about 2 months. I have started to read a book about it (What Your Doctor May Not Tell You About FIBROMYALGIA: The Revolutionary Treatment That Can Reverse the Disease by R. Paul St. Amand MD. & Claudia Marek). I came accross this whole thing thru a woman who lives in the city I just moved to, she runs the local guai support group that meets once a month. She told me all about it, about the book, etc. Since then I have been making all efforts to speak to anyone I can, read anything I can, educate myself on how this whole process is supposed to work.

Let me say right now that I am by no means a guai expert, I am still in the "info gathering" stage, but this is a brief expl. of what I have been able to determine regarding the protocol and how it works, along w/ what I have heard from people online who have tried it....

Dr. S.A. is in Cali, he, his wife and his daughters all have fibro. He has had fibro for 30 plus years. He developed this protocol, and from what I understand he was one of the first people to make the connection between guai and fibro. (There are tons of places/people selling guai for fibro out there, and many will caution you to watch out for people that are only looking to make a buck)...

His main theory regarding fibro as it relates to the guai treatment is that fibro is caused by a build up of PHOSPHATES in the body. You will have to read the book or check out the dr.'s site to read the exact medical terminology behind all of this. But that is the gist. Basically though, the guai, which is an ingredient found in most OTC cough medications (mucinex is a good example), is said to flush the body of the phosphates.

Now, for this to happen, you DO have to make some life changes. The most crucial is that you MUST rid your life of all SALICYLATES. ("Sals" are found in things like aspirin, lotions, toothpaste, mint, all kinds of stuff- so you can't use these things EVER). It is said that the sals stop the guai from flushing the phosphates from your system. From what I hear though from people who use the protocol, ditching the sals is a change @ first, but is not that bad. They say that you can find other products on the market to replace the usual ones that have the sals.

Things I've heard- I've heard so far from probably about 15 people in both camps pro/con. (I am still in the undecided...) I should note that I have only been speaking to people who have been doing this specific protocol, as the other uses of guai seem VERY shady to me...

BAD- The people that I have spoken w/ that have not "enjoyed" their guai experience vary. Some I could tell did not give it an honest effort. Others though tried it for over a year, and followed it to a tee w/ no good results. Some did have a BIG problem w/ the Sals, depending on where they lived, having to order things online. The overall concensus though of the "no thannk you's" was that it just didn't work.

GOOD- The people who use the protocol SWEAR by it. (Personally I have had some conflict determining with a few of the people that I have spoken to, including in person, if they are REALLY that cured, or if they have just "drank the kool-aid". I mean no offense by this, most of the people I have spoken to have been very happy to share info and leave it @ that, but some others have been slightly over-zealous, almost to the cultish point...) Regardless, it does seem that the protocol has "improved" the lives of people. For the people that I have spoken w/, the first year was hell, this is usual. They say that it takes a year or so to find the right dosage, and for your body to adjust. After the first year, you are supposed to be able to do more than you were before, have more of a normal life. But, the thing to know is this, YOU WILL STILL FLARE. Your body will always produce the phosphates, so the guai will always have to flush the phosphates from your system. It is just that over time the flares will become farther apart... ???? Yet, I must restate, in this first year, you will feel like crap, and EVERYBODY says that you will feel WORSE than you feel right now. It's a Get Worse to get Better type of thing...

These are my fears... Fibro is such a dynamic syndrome & it affects everyone SO differently that there is by no means a set rule for how this whole thing works... In my case, I not only have the "normal-crappy" fibro symptoms, but I also have some of the more "really abnormal-really crappy" symptoms like dizziness (not vertigo). Dizziness that has not allowed me to work, drive or live alone since I was dx'd 3 yrs ago. In all of my contact w/ the guai people, in reading the book, and in going to the dr.'s site, NO ONE can say that this will go away. In fact, nothing is written in stone. Plus, in my case I am usually at a 6-7 on the pain scale until I flare, then I am a 10+. And I flare every 8-14 days, w/ flares lasting 7-10 long. My flares leave me completely bed ridden. I cannot know how my pain/symptoms compare to that of others who are on guai...? I am willing to go thru some pain to get better, but what if it doesn't work, what then have I put my mental/physical/emotional state thru at the end of a year? The woman who runs the guai group here, and SWEARS by it, has been on guai for 6 yrs. She still has days where she cannot work, has to stay in bed. This does not seem like a "reversal of the disease"...

So, I hope this helps. Like I said, I am not an expert. This is just what I have been able to get in the past 2 months. If anyone has ANY other info or stories, I would love to hear them also!

 
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Old 06-21-2007, 01:37 PM   #3
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Re: Guaifenesin Protocol

I've also spent a fair bit of time looking into St. Amand's Guai protocol. Haven't done it myself.

Some folks swear by it. Others don't find it makes a difference. Yet others stay with it for years, and years, suffering these terrible symptoms & flares, believing these are healing episodes or whatever. I have to wonder about the experiences & interpretation of those experiences by the latter group.

Fibro is a set of symptoms that, I believe, in future we will understand as having a variety of potential causes. That is why, whatever treatment you look at, whether it be antidepressant meds, or aquatic exercise, or thyroid hormones, or guai, you're going to find people it works for, people the treatment doesn't help, and folks who maybe even get worse.

IMO, if you try it & it works for you, then it's right for you. But maybe not for every other fibro sufferer.

Best wishes.

 
Old 06-21-2007, 03:09 PM   #4
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Re: Guaifenesin Protocol

Hi, yes - I've been taking guaifensin for maybe a year now and have found some improvement. Guaifenesin is an expectorant so when you first start taking it there will be a period of coughing up junk - then you'll know it's working. I first heard of this therapy through "The Fibromyalgia Advocate" written by Dr. Devin Starlanyl. It helps!

 
Old 06-21-2007, 04:31 PM   #5
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Re: Guaifenesin Protocol

I also have done extensive reading on guai and have a brochure of products to use during your use of guai which are salicylate free. I even ordered the guai but haven't tried it yet. I am on so many other meds that I don't want it to interfere with these. I actually do not have the dizziness or overall aching well sometmes I do in my neck and back areas - it depends. The fibro affects me from my head to my feet and is often unpredictable. I mostly have pain in various places at various times and cannot do any repetitive motion - typing, talking, walking etc. The pain affects me everywhere depending on what I do. I have taken over 40 meds for pain with no relief. I am basically disabled due to the fibro as well as RSD and Meralgia paresthetica. I am in constant pain somewhere and am tempted to try this as now I also have TMJ with headaches, earaches, etc. Not sure guai would help this problem.
Best wishes to those who try this. I understand you should be under the supervision of a dr. to try this. Is this correct? Also, in Devin's book she recommends the specific guai products to use - I guess she has checked these out for effectiveness? At least that is what I ordered.
This new TMJ thing with headaches is really upsetting so I may give it a try.
Rascal

 
Old 06-21-2007, 07:45 PM   #6
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Re: Guaifenesin Protocol

Hi, my doctor recommended Guaifenesin to help with the pain. I take it faithfully 3 times daily and would not go without. There are no cures but it has been a help! Good luck all.

 
Old 06-21-2007, 08:13 PM   #7
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Re: Guaifenesin Protocol

First, Bekkee thank you for such an impressively comprehensive and honest post. I agree with you. I have not tried Guai. However, like anyone suffering from this dreaded condition, it peaks my interest....any hope of a cure does. While I am open-minded, and hopeful about the Guai, I would be less than honest if I didn't say I am also a bit of a skeptic. I have bought Dr. S.A.'s book, have read extensively online....and still remain unsure. My common sense says things that seem too good to be true usually are, but another part of me crying for relief nudges.....maybe??? The part I intellectually struggle with is in the part where it says it makes you far worse, some for as long as a year. I just can't quite yet imagine doing anything to myself for a year that will make me worse than what I am. I am barely functioning and part of life as it is. I can no longer work....no social life....completely isolated from life.....I feel like hell most days.....a good day is when I am able to get up and shower and eat..... I can not sit/stand longer than about 20 min at a time. While I can't imagine making myself worse.....I also can't imagine well how much worse can it be. My husband has stood by and supported me, but I sincerely wonder that if I did something to myself intentionally for a year if he could withstand it. He already has to do everything....grocery shopping, bills, laundry, housecleaning, cooking.

Finding good medical care with this condition is a challenge.....we have to navigate through professionals who either think its all in our heads and we are hypochondriacs.....to others who have smartly figured out we are fertile ground for money-making opportunities. For goodness sake, I am NOT saying that is the case with Guai......I am just saying it will be nice when medical science figures all this out....AND, when medical insurance supports alternative care options.

 
Old 06-21-2007, 08:28 PM   #8
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Re: Guaifenesin Protocol

Quote:
Originally Posted by jam338 View Post
First, Bekkee thank you for such an impressively comprehensive and honest post. I agree with you. I have not tried Guai. However, like anyone suffering from this dreaded condition, it peaks my interest....any hope of a cure does. While I am open-minded, and hopeful about the Guai, I would be less than honest if I didn't say I am also a bit of a skeptic. I have bought Dr. S.A.'s book, have read extensively online....and still remain unsure. My common sense says things that seem too good to be true usually are, but another part of me crying for relief nudges.....maybe??? The part I intellectually struggle with is in the part where it says it makes you far worse, some for as long as a year. I just can't quite yet imagine doing anything to myself for a year that will make me worse than what I am. I am barely functioning and part of life as it is. I can no longer work....no social life....completely isolated from life.....I feel like hell most days.....a good day is when I am able to get up and shower and eat..... I can not sit/stand longer than about 20 min at a time. While I can't imagine making myself worse.....I also can't imagine well how much worse can it be. My husband has stood by and supported me, but I sincerely wonder that if I did something to myself intentionally for a year if he could withstand it. He already has to do everything....grocery shopping, bills, laundry, housecleaning, cooking.

Finding good medical care with this condition is a challenge.....we have to navigate through professionals who either think its all in our heads and we are hypochondriacs.....to others who have smartly figured out we are fertile ground for money-making opportunities. For goodness sake, I am NOT saying that is the case with Guai......I am just saying it will be nice when medical science figures all this out....AND, when medical insurance supports alternative care options.
It sounds like we could be TWINS! I COMPLETELY agree w/ you regarding the guai. This is my fear too. I am willing to go thru some pain to get better, I am a strong person and I luckily have a high pain tolerance (hell, that is the only reason I have made it this long) but how much is too much? And the fact that no one can say HOW much worse I will get, or for exactly HOW long I will be "worse" scares me. Plus, then if the whole thing is a sham, what state will I be in after putting myself thru all of that??? I guess it is not the pain and torment during the process that is scaring me (while that is a fear) as much as it is the real chance that the whole thing could be in vain, and I could be left in a far worse state mentally/physically/emotionally than I am now...

 
Old 06-21-2007, 09:20 PM   #9
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Re: Guaifenesin Protocol

Bekkee, I completely understand, trust me. I may at some point in the future decide to try the Guai, but for right now, my situation is just not right for it. For me, I know that mentally/emotionally/physically I could not take any worsening....at least not right at this time.....more importantly, I don't think my husband could take it. The strain of all of this would have broken many marriages I am sure. Several weeks ago we sat down and discussed the Guai. He is not totally opposed, but has asked that I first try everything else. We have spent at least a couple of thousand dollars on alternative treatments. Understandably, he would like for me to complete those treatment programs (acupuncture and chiropractic bio~cranial) before starting something else. My GP doc is also referring me to UCSF Hospital Rheumy Div to see an FM specialist there for a consultation. So, I already have so many things up in the air with treatment. All that, plus trying to find a new bed that will hopefully help improve my ability to sleep. I don't think I could stand to navigate one more new or additional thing. I am already on the ragged edge emotionally/mentally....it doesn't take much these days to send me to the bed crying.

As all of us know, it is VERY difficult trying to manage the challenges of an endless chronic illness. It robs you of all your resources ....everything....energy, resources, health, love, joy, happiness.....you have to fight to stay strong and fight the fight with what little you have to do with it. And, few understand it. Unlike critical illness which has a beginning and an end to it....everyone understands that.

I think if one is going to try the Guai protocol, do your research thoroughly, make sure you find a doctor who is well trained in Dr. SA's protocol and follows it. Another gal, Kirstee, on this Board on another post stated she has gone through the Guai treatment with great success, and stated she has a reference book with doctors trained in the Guai protocol....so, such a reference does exist. Perhaps Dr. SA may even list that online somewhere. Again, for anyone considering it....do the research. I would be very leary about others who may be shysters just trying to lure you into what could be a very expensive treatment program, make you worse for a year, and then you are worse off financially, physically, emotionally, mentally.

I truly hope that others with thoughts/experience on the Guai will post on this thread. We are all wanting to learn more and find options that REALLY work.....realizing of course that all of our bodies/chemistries/symptoms are unique to us, and what works for one may not for another........but, we have to start somewhere.

Last edited by jam338; 06-22-2007 at 07:09 AM.

 
Old 06-22-2007, 03:32 PM   #10
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Re: Guaifenesin Protocol

I am a patient of Dr. St. Amand, and have been on the guafenesin protocol for 4 years. I am basically asymptomatic, just some lingering fatigue. I have found the protocol to be a godsend and I am thankful for Dr. St. Amand. It is a bit intimidating when you hear "you will get worse before you get better" when you are already so sick you can't move. I personally found the pain & fatigue was the same pain I was experiencing anyway, so why not go for it. It was well worth the trouble.

You have to follow the protocol precisely and get your correct dose or the whole thing will be useless. This is a big source of disappointment for many FMS sufferers who have tried the protocol but didn't have any improvement.

Take care,
Kirstee

 
Old 06-23-2007, 08:35 PM   #11
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Re: Guaifenesin Protocol

Kirstee could you please post information on the physician treatment costs associated the Guai protocol? I know that the Guai itself is likely very cheap as it has been around forever and a day, appearing in OTC products. But, how frequently did you have to go to the doctor for monitoring?....what was the time window of the close monitoring period?....did insurance cover the costs of the treatment?...and anything else you can share with us, thanks!

 
Old 06-24-2007, 02:23 PM   #12
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Re: Guaifenesin Protocol

Hi Jam:

My initial appointment with Dr. St. Amand was $400.00, covered by my insurance. Thereafter, I believe the cost was around $150.00 per visit. I take two 600 mg tablets of guai per day, along with two 400 mg fast-acting guai per day. The cost is approximately $350.00 per year. I obtain my guai from the pharmacy located in Dr. St. Amand's medical building, and you have to be a patient to take advantage of the good guai prices. Grace Products & Pro-Health also carry guai, but I'm not sure how their prices compare. You will spend a lot more money buying the OTC guafenesin so research is the key to finding the right price.

When I first started as a patient with Dr. St. Amand, I saw him at two week intervals while determining my specific dose. I then saw him monthly for several months, so he could check my body mapping for progress, then every 4 months to monitor continued progress. Now that I have moved away, I will be seeing him on a yearly basis to upkeep my pharmacy privileges. All my appointments with him are covered by insurance, other than a $20.00 co-pay. Guafenesin used to be "by script only' and was covered by my insurance. The product is now considered OTC, so I have to pay full cost of the meds, but the cost has not been a problem.

I hope I've answered all your questions.

Blessings,
Kirstee

 
Old 06-24-2007, 04:11 PM   #13
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Re: Guaifenesin Protocol

Kirstee thanks so much for the thorough post on costs....is your insurance with an HMO plan or private? I have a Blue Shield HMO...wondering if they would possibly authorize it? Thanks!

 
Old 06-25-2007, 04:15 PM   #14
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Re: Guaifenesin Protocol

I have Blue Cross PPO. I'm not sure what would happen if you tried to cross HMO to PPO. I sort of suspect they wouldn't authorize it, stating you should see a rheumy in their doctor list. It's worth a try, however!

Blessings,
Kirstee

 
Old 06-26-2007, 04:22 PM   #15
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Re: Guaifenesin Protocol

.......sooooooooo sorry for the longgggggggg post everyone, but I have been researching this GUAI thing today and so eager to share what I have learned about it.

........I have recently edited this post....The version of St. Amand book that I have is 1999, so it is not current. I have since learned there is a 2006 updated version. Dr. St. Amand repeatedly states that information and clarifications about the Protocol are ever-evolving and being updated based on his experience with treatment of now over 5,000 patients. Also, many of my questions were answered through the FIBROMYALGIA TREATMENT CENTER, affiliated with Dr. St. Amand. Actually, the information through the Center is far more specific than the 1999 version of the book. I have had the book for more than a year and just got overwhelmed with it. My fibrofog just wouldn't let me digest the information as it was presented. Dr. St. Amand has a degree in bio-chemistry and the chemistry details just overwhelmed me at that time. It should be noted that Dr. St. Amand states that only patients who have been physician diagnosed with FM should use the treatment protocol. He responsibly cautions that individuals should not self-diagnose, or self-treat, and encourages supervision of a physician.

Kirstee, thanks so much for your willingness to help us to understand your experience w/Guai treatment. I have reviewed your posts and yesterday re-discussed Guai with my husband. We have more questions.

I did found a doctor in Sonora, CA--- Eric Runte, M.D. who apparently does the Protocol, but says he does not do the mapping. Not sure if by not doing the mapping that rules him out as a viable protocol practioner, but he remains listed as such online. I am wondering if you might check your personal resource book to see if he is in it???

We are also hoping you can help us better understand a few things about GUAI treatment...... understanding of course that each patient's response experience is unique to their own chemistry, and these would be responses relating to your own personal experience with it.

KRISTEE QUESTIONS:

1. When did you first begin Guai Treatment?

2. Could you please rate on a scale of 1-10 what your pain-disability level was before beginning GUAI?

2. How long did it take (#weeks or #months) before you begin to feel you were entering the phase of feeling worse?

3. Please rate on 1-10 (+) scale what level it reached its worst ..... and for how long (weeks/months) it remained at that worst level?

4. Please rate on 1-10 scale your ability to perform daily functions during the worst phases of the GUAI?

5. At what level (1-10) would you rate your pain level now?

6. At what level (1-10) would you rate your functioning ability today?

7. What, if any, medications, especially pain meds, do you need to remain on?


8. GUAI RX:
Kirstee, I am wondering if there is a pre-treatment window period that must be a salicylate free-zone for a specified period of time before starting the treatment?? Also, you also mentioned something about a fast-acting GUAI....can you discuss in more detail about that and how you experience it differently from the regularly GUAI?

Kirstee you stated that you continue to travel from Colorado to L.A. annually to see Dr. A to maintain your GUAI purchasing privileges. Is there a reason that you don't just buy it through a local pharmacy?? I called 3 local pharmacies today and learned that Guaifenesen is available OTC in 200, 400, and 600 mg. levels and that it is marketed under the brand Mucinex in the cold/cough OTC area. All 3 pharmacists stated Mucinex markets a plain Guaifenesen without other ingredients as well as additonal versions that include other ingredients.

ADDITIONAL GUAI INFORMATION FROM MY ONLINE RESEARCH :For those reading this thread who may be unfamiliar with the Guaifensen Protocol, developed by R. Paul St.Amand, M.D. Dr. St. Amand is an Endocrinologist located in Marina Del Ray, CA who has dedicated over 40 years to treating FM patients, including himself and family members. He has a private medical practice and is/was an Associate Professor at UCLA. He is impressively pedigreed; his curriculum vitae is available online. He has published books, co-written books on FM with his nurse Claudia Craig Marek. And, both have several FM articles available online through different FM sites. He has been administering the Guiafenesin Protocol for 13 years. It has been a work in progress since 1994 where Dr. St. Amand has re-calibrated it based on the treatment results of his patients, numbering in excess of 5,000 over the years---some of whom come to him from around the world. There many patient testimonials and high ratings for his protocol on a multitude of online resources. And, there are those who state they have done the Guaifenesin thing and it didn't work for them. However, for the GUAI treatment to be successful one must extensively educate yourself about salicylates, be disciplined, and be willing to give up salicylate ingredient products that you love and may be brand loyal to. Some folks simply can't do that, and they try to just take the Guai to just see how it all shakes out anyway...it will predictably fail. The salicylate products will cause any attempted Guai treatment to fail; salicylates by their composition chemically block the kidney's ability to use the Guai in the manner required for FM reversal. For example, in one of his book's Dr. A mentioned one patient who was doing everything right with the protocol treatment with the exception of one thing.......Clinique makeup.....and that caused her treatment fail. After eliminating the Clinique she got better. And, it is not just Clinique gals....it is many makeup products....even some of the natural mineral makeup lines have salicylates in them. Salicylates are a very popular and common cosmetic ingredient, so I am not sure how much of an Easter-Egg hunt it is to find products without them. In addition to reading labels for any derivative of the word salicylates one must also learn about plants and which ones have salicylates in the plant source because some ingredient labels will list the plant name rather than the actual word salicylate....for example, aloe, rose hips.....can't be in any product you use.....no lavendar.....no mint---not even in gum, breath mints, toothpaste, mouthwash.

As I understand it, the St. Amand theory is that we have a gene that causes an underproduction of ATP [adenosine triphosphate] resulting in an inability of each cell to make sufficient cell energy and causes a slight excess of phosphate inside the mitochondria, our power stations cells. That causes a buildup of excess calcium in our muscles....calcium stimulates (or as in our case with FM over-stimulates) muscle contraction; magnesium stimulates muscle relaxation. For muscles to work in harmony and without pain there needs to be an adequate balance between calcium and magnesium. An imbalance causes the dreaded myriad of horrid symptoms we experience..... pain, fatigue, fibrofog, irritable bowel and bladder. In 1989 two Swedish doctors A. Bengtsson and K.G. Henriksson, reported, "The Muscle in Fibromyalgia: A Review of Swedish Studies"--Journal of Rheumatology 16, supplement 19 (1989); 144-49. found a 22% reduction in the level of ATP in muscle biopsies taken from fibromyalgia patients. Dr. Amand has a degree biochemistry so stuff like this facinating to him. According to him, it is well known in physiolgoy and biochemistry that excess phosphate in the inner part of the mitochondria slows the power station and blocks the formation of ATP. The entire biochemistry relationship is explained in Dr. A's book, WHAT YOUR DOCTOR MAY NOT TELL YOU ABOUT FIBROMYALGIA.

This energy-cell deficiency theory makes a lot of sense to me. Especially since it is consistent with acupuncture relieving some FM symptoms. The Mayo Clinic has conducted a clinical study and published their results that acupuncture significantly helps relieve FM symptoms-----Acupuncture works because it functionally impacts cellular energy levels. Coincidence???

According to Dr. St. Amand, Guaifenesin is an agent that works in the kidneys to correct that imbalance in our biochemistry. He proposes that Guaifenesin starts a reversal process of Fibromyalgia by causing the kidneys to pull out the excess phosphates from cells and reversing the cycle and reduce the built up excess calcium and allow the muscles to relax. All of it is a facinating concept....but I must admit that I have been a flare long enough now that if someone told me that pouring gasoline on a flame might help...I think I'd be researching and contemplating it!!!

The GUAI Protocol treatment causes symptoms to come and go, and can substantially worsen for a period during the reversal process. Over time, unique to each individual, symptoms will worsen, lessen, and clear in a cyclical fashion. Eventually the FM supposedly reverses.

Another CRITICAL factor is elimination of salicylates. Salicylates block guaifenesin from acting in the kidneys; thereby making it useless and ineffective. Salicylates are found in almost everything we women use----makeup, lipstick, moisturizers, cleansers, toothpaste, shampoo, hairspray, deodorant, sunscreens, etc.------no Ben Gay, no aspirin or aspirin related products---nothing with menthol.....the list is longggggggggg----and, it literally means having to read labels on EVERYTHING at home and throwing out anything with salicylates, and only purchasing salicylate-free products in advance of commencing GUAI treatment. Suffice it to say there are salicylates and derivatives of it by other names in a volume of products. There are online venders who specialize in salicylate-free products, and some resources are presented in Dr. A's book(s).

GUAI PROTOCOL
).....--please correct me Kirstee if I am inadvertently not stating any of this correctly, thank you.

According to Dr. St. Amand the GUAI treatment time estimates are that for every 1 year of FM it takes 2 months of GUAI reversal treatment.

The goal is to achieve the correct dosing level, and it is easy to know when you have reached that because, sadly, your symptoms worsen....usually substantially Once you find the dose level that achieves the worsening of your symptoms there’s no need to change doses. All you have to do is continue to take guaifenesin at that level. I am assuming that taking it higher than needed levels is likely to overload your body's ability to process it, but that is just a layperson's guess. The treatment process involves your symptoms cycling--– that is, they will get better, worse, better, worse....and eventually after bouncing like a ball ....... they will get less dramatic, less intense....the better periods will become more pronounced and for longer periods of time.....AND, eventually you should have all your symptoms under control.....YEAH!!!!!!

BEGINNING GUAIFENESIN (GUAI) DOSE LEVEL:
600 mg. daily for 1 week
Dr. Amand states that this level will reverse FM in about 20% of people. (Guai can be purchased OTC in 200 mg tablets---higher dose levels require RX---just make sure that it is pure guaifenesin with NO salicylates....best to avoid any of the cough/cold medicine guaifenesin as it all has additives.)

AFTER ONE WEEK:
Evaluate symptoms; if they are worsening, do not change your dose. However, if symptoms are not yet worsening then double the dose to 1200 mg daily and continue at this higher doubled dose for 3 more weeks. Dr. St. Amand states that roughly 50% of patients will start reversal at this level. If you feel distinctly worse within a few days, the FM reversal process has begun and there is no need to change the dose.

AFTER ONE MONTH:
Evaluate symptoms; if they are worsening, do not change your dose. However, if you are one of the 30% of people who experience no change in symptoms after one month on daily 1200 mg guaifenesin, ust raise your dose to 1800 mg daily. According to Dr. Amand it’s normal to fear that this is just not going to work, but know that it is highly likely that your symptoms will soon begin to worsen, and only 10 percent of patients will need more than 1800 mg daily guaifenesin----they will need to raise their dose to 2400 mg a day.

According to Dr. A there are usually no side effects with guaifenesin; but, in rare cases, usually at the higher level doses, there have been some reports of nausea. Having said that though, remember it is going to worsen your FM symptoms.

I hope I haven't overwhelmed you with all my questions!!! Thanks so much for helping us all to better understand your experience with GUAI!

Last edited by jam338; 06-27-2007 at 02:48 PM.

 
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