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Old 07-14-2007, 09:22 PM   #1
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TeNNiSd0C09 HB User
Unhappy New...I think I may have Fibro...not sure

Hello, I guess I could start at the begining with my story.

It all started when I was 12. I played basketball for my school and had severe knee pain. I didn't play another year and I switched to volleyball because it required less running and wasn't as hard on my knees.

After starting volleyball we had to do a lot of conditioning and I started having more pain and I was only 13. I had pain in my heel and my ortho didn't know what it was. Turned out I had a stress fracture. He said it would take care of itself. It healed but continued to hurt. I tried a walking boot for a few months, cortison shots, gel inserts in my shoes, over-the-counter pain meds, and then had a hard cast for a month, and finally a nerve test.

Nothing helped at all. I was sent to a specialist who agreed I needed surgery for plantar fascitis.

A year after the pain started I had the surgery. It worked, but 2 weeks later the pain in my knees spread upward to my hands, wrists, elbows, shoulders, neck back, and everything else that hadn't hurt before.

Since then, I have been to many doctors and just keep getting passed around. They keep telling me they can't find anything.

They all say they are curious as to what it is because it isn't 'normal' for someone my age to have multiple joint pain. So, I guess they believe it is something, or seem that way.

Anyways, I told a neighbor, who has Fibro, about the doctors and what I was going through and she said, "Wow, that sounds like you may have Fibromyalgia."

She said she had it and it sounded like I did. I researched it and it was dead on.

I have most of the symptoms, but I don't know what to do now. I really feel like it is right. But, none of my doctors have ever mentioned it and I don't how to tell them. I have tried to get my mom to say something, but it never works.

I have widespread pain, depression, I have a bunch of doctors who say nothing is wrong, I have sleep problems, all normal blood tests, x-rays, MRI, everything.

So, I guess this is it. I really think this could be what I have, but I don't know how to proceed with it.

Anyone have any advice? I would really appreciate any help.

 
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Old 07-14-2007, 09:33 PM   #2
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Jenn4508 HB UserJenn4508 HB User
Re: New...I think I may have Fibro...not sure

Welcome

Sounds to me like you do. What about your hips. The pain in your back is it in the lower back.

I will tell you this, they will run all kinds of test to rule everything else out before they can tell you it is Fibro.

Research Fibro on the internet and it will show you the 18 trigger points of Fibro. If you have at least 11 of these, that is when they diagnose it.

It is not a fun disease and there is no cure. I have a pain management doc I see every month.

Let me know how your research goes.

I care so very much.

 
Old 07-14-2007, 09:57 PM   #3
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TeNNiSd0C09 HB User
Re: New...I think I may have Fibro...not sure

Warning: Long

Thanks for the reply!

Oh yea, my hips! Those hurt to. Usually the right side. The past couple of weeks I have noticed more pain than usual. Sometimes my joints seem to pop or move out of place. So, the past couple of weeks my right hip will sort of pop and there will be a sharp pain. After that I usually put my hand on my hip and walk and it feels like it is popping out or something and it hurts. After a while it will go away.

My lower back hurts a lot. Months ago it started getting to where I can stand up and dor whatever like normal but if I lay down or relax my back it hurst so back from like over-use or something. It hurts a lot when I sit in certain types of chairs. Especially at school the desks hurt my back a lot. I have bad posture and seem to lean to one side or the other, not straight up.

I have researched Fibro a lot. And I know most everything about it. I looked at the tender points and tested it and I have a lot of them. I think more than 11 if I remember correctly. I read somewhere last night that for children 5 points were required to be diagnosed, but I don't if that is true. I only knew about the 11-18. But, I was reading about Juvenile Fibro.

I am only 16 so, I don't know how that would be classified.

I am just so tired of going to so many doctors. I get really depressed when I think about it and I get in moods where I want to go so I can find out what is wrong, but that mood soon changes when I realize why I quit going to the doctor in the first place. That same thing happens everytime. They say, well we can't find anything, maybe you should try a "insert specialist here" and see what they say.

I have numerous blood tests, x-rays, MRI, bone scans, I recently had a Echocardiogram. Everything is always NORMAL. But, I don't feel NORMAL on the inside. I feel like something is wrong and I don't know what to do next to push a diagnosis.

I have read about numerous meds that can control symptoms like sleep, depression, and all that. It would be a HUGE step for me if I could get diagnosed and get the help I need. I think emotionally it would be a lot to take in at once.

But, I am not the same as I used to be. I don't really care for much anymore. I don't like going places or being out in public. I have anxiety. And a touch of social phobia. Which makes it so hard for me to go to school. I get sick when I go to school alot be I worry so much and I am always scared something is going to happen. So, it makes it hard for me to want to go out and do stuff.

I just don't like doing anything anymore or being with friends. My 16th birthday is coming up and normally 16 yr. olds want a big party with all there friends and all that, but I just want to stay home. I don't care about a party. Or any of that. I am only having 2 friends over and that is it. I am so worried about that because I don't know what will happen or how I will feel. I like just being alone because I don't have to worry about the people around me.

If you ask me, that doesn't sound normal for a teenager. It is nothing like my friends who are always going out and everything. I have adopted the nickname of Anti-social because I am.

So, school is very stressful for me and very hard to do. I have begged my parents to let me be homeschooled, but they don't understand how I feel or what I am going through. They don't know me emotionally. I have changed a lot and since I stay to myself no one knows me anymore. At least not for I really am.

I just hope if I can be diagnosed and start some type of treatment and get help that can change and I can not have to worry about everything so much and start being a teenager. I am just sick and tired of being sick and tired. I can't deal with it all the time and I need a break from it.

Sorry to vent. I have had a lot on my mind recently and it is getting harder because I am getting worse or feeling worse and school is about to start and I have already started worrying about what will go wrong. I am just a wreck!

Well, thanks so much, and sorry if I took up so much time and space.

 
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