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Old 07-17-2007, 08:37 AM   #1
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spp321 HB User
Have had fibro for 10 years, now having cancer scare

I suffered with fibro for 8 years before I was diagnosed 2 years ago, with most of my symptoms being musculo-skeletal. Over this past winter, starting having unusual fatigue and saw rheumotologist and he changed my meds. Then started having shortness of breath with horrible fatigue in my legs just doing stairs. I had been able to remain pretty active up until then, doing spinning, kickboxing, and bootcamp. This was a very sudden and dramatic change. My rheumotologist said that could be the fibro, but there is a danger in just making that assumption. That you must listen to your body's signals and rule out other possibilities. I had a complete cardiac workup that looked ok, but the cardiologist was concerned about the shortness of breath. Especially considering the fact that I have been an avid athlete for 20 years. Anyway, during all this I started to have lymph nodes popping up all over my body. My neck, clavicle, armpits, and groin. Then I discovered a lump in my groin about the size of a robin's egg. So, I am scheduled for a lung function workup and waiting to get date for a chest ct scan. No doctor will reassure me that it isn't a lymphoma or lung cancer, and so I wait. I keep telling myself that "it's just the fibro, it's just the fibro," but that lump keeps calling to me to feel it and when I do I get scared again. I just wish this ride would stop so I could get off. I try to do all the right things, I don't drink or smoke, I exercise, I eat clean (no trans fats, no processed foods, no red meat, limit the simple sugars), I drink lots of water, and I try to stay upbeat. And yet I feel that all I do is deal with health issues. And now this, and it's scary. For all the past issues, before my diagnosis, and all the time of wondering what was wrong, I was never scared. Not like this. Anyway, sorry for the venting. It's just that when you live with healthy people who have no understanding of your problems, you sometimes feel alone. So, thanks for listening.

 
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Old 07-17-2007, 04:32 PM   #2
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sunny47 HB User
Re: Have had fibro for 10 years, now having cancer scare

Oh WOW, so sorry for the time you are going through. At least now you have found a doctor who is going to investigate your symptoms to see if anything other then your fibro is going on.

I know how hard waiting can be - but the sooner you find out if there is something or not, the sooner you can get treatment or hopefully "just" continue on with your life with fibro.

Best of luck to you and keep us posted. There are a lot of great people here. I am sure Blue will have her usual great words of wisdom. She has the knack for saying things best. I definitely do not.

 
Old 07-17-2007, 07:07 PM   #3
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Re: Have had fibro for 10 years, now having cancer scare

spp321 -

I know it's scary for you but if it makes you feel any better, I had some of those same symptoms that came on suddenly after being diagnosed with Fibro/UCTD for a couple of years. I had a chest ct scan, full cardio work up and pulmonary function tests and nothing showed up. I had some swelling of the lymph nodes under my arm but they went away. I didn't have lymph node swelling any where else. I hope all goes well for you.

 
Old 07-17-2007, 07:10 PM   #4
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Re: Have had fibro for 10 years, now having cancer scare

One more thing, with the shortness of breath, have you had your iron or B12 checked? Any chance you could be anemic? I am and my shortness of breath and fatigue have improved somewhat after supplementing with iron. I have only been taking it for about 8 weeks so hopefully, I will continue to improve after I get my levels up some more.

 
Old 07-18-2007, 08:15 AM   #5
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spp321 HB User
Re: Have had fibro for 10 years, now having cancer scare

Thanks to all for the words of support. My husband and I were finally able to discuss the "c" word last night. We were both able to express to each other our fears. We agreed that while we need to focus on the positive until we are given (God forbid) something to be afraid of, it is also important to be able to communicate our feelings. If I am scared, I need to be able to tell him without him covering his ears and singing "lalalalala." So, that was very comforting. I actually have been checked for anemia. My CBC was also normal. I asked the pulmonary specialist is the CBC being normal could reassure me that I don't have a cancer and he said no. Ouch. He said that there are lymphomas that will not present in your bone marrow, and if it is not in your marrow it will not show up on the blood count. I had the pulmonary function tests yesterday, and the respitory therapist who did them, while he couldn't say much, did say that my overall lung function looks good but my rate of diffusion is mildly decreased. He said that could indicate an obstruction of some kind. But, he is not a doctor and I will have to discuss it with my doctor. I am hoping to hear today about a date for the ct scan. The doc's office is waiting for pre-authorization from my insurance provider. I'm sure you all know the drill with that. So, anyway, more waiting. One thing that the respitory therapist did say yesterday was that with strong, healthy lun function, even if the diagnosis ends up being bad, I will have a better chance to fight whatever is thrown my way. Considering the house I grew up in had smokers, and I smoked from age 23 to age 32 (quit 17 years ago), I have really good lung function and that's from being aerobically fit. So, that's positive.

 
Old 07-23-2007, 09:38 AM   #6
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Piano-Girl HB User
Re: Have had fibro for 10 years, now having cancer scare

Aww,
That is just scarry, I am so sorry you are going through this. Waiting on test results is the most agonizing thing for me. I hope you have good news by now, I saw the post was dated 7/18.

 
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