Has anyone seen the commercial about fibromyalgia. It is put on by a drug company and has some women and men talking about their pain and how bad it is and then says something about having fibromyalgia. I didn't pay much attention to it at first but when they mentioned FM I looked over at the T.V. and just caught the end of it.
Just saw it once, just wondering if anyone else has. I may be in a fibro fog sometimes, but I know I didn't dream it!!!
I believe the commercial is from Pfizer. The FDA just approved Lyrica for treating fibro and Pfizer is advertizing it. Someone - I'm pretty sure on this board mentioned it before. In fact they gave very good details on the lyrica study.
Hey!,
I saw it about an hour ago. I couldn't believe it. I was sure it was ad for Advil for people with mild arthritis. But it did seem that these people had some serious pain. Then they said they had Fibro and gave some Fibro websites for info on it, and quite a bit larger and louder said the ad was from Pfizer. Regardless what it's for, if it gets some decent airplay it will go a long way to help people understand that we are out here, our numbers are growing, we really are in pain, and a very large pharmacuetical company is listening!!
Thanks everyone for your replys. I was sure I saw a commercial on FM but haven't seen it again. I 'm not even sure what channel I saw it on! I agree that with a major pharmacuetical company trying to sell their medicine maybe we will finally get the attention needed for our disease.
yes saw the commercial, what stuck with me was how they showed just how very "bad and intense" fibro pain is. those actors/or real people with fibro, not sure, really hit it home with the way they expressed the pain. i felt so bad for them, and it touched my heart, so i didnt even pay attention to what med they were discussing or what. i thought finally, FINALLY, a truthful portrayal of fibro pain.
i saw it too. a few days ago. don't do much telly but have been watching for it. usually mute commercials.
recognition does help. i find more and more people know the word when they ask what is "wrong" with me. i see compassion. caring. curiosity. it is a good thing for us all.
hope is ours to carry always. giving up simply is not worth it. i tried it once. boring!!!
peace,
bluelakelady
So glad the word is getting out there! Now when we say we have FM, that little hum and 'oh uh-huh' people give us will be more of a recognition and not a 'I don't know what your talking about' response.
Thanks for posting the site to view the commercial. I saw it about a week ago (as I was crying from the Fibro pain), I lifted my head and saw these people crying and talking about Fibro. I was so glad to see how often the commercial is on the air. Pfizer is promoting 'Lyrica' for Fibro which is an excellent med. to lessen the pain (esp. at night). I was hoping it was my reprieve until I had a Parkinsons' -like reaction from it. I began shaking all over. I have epilepsy, so my doc said to discontinue. I don't know if the shaking would have eventually stopped, but my doc said to not chance it. Bummer. Right now, I am so stiff with pain (even though I take Morphine, Lortab and Soma), I feel like I've been run over by a truck. The extra-depressing thing about it is that I just entered remission from Interstitial Cystitis and it seems all the pain from that has found new places in my muscles to make it twice as bad. I am severely depressed because my husband thinks I don't have Fibro and am in 'pain' because I take pain medication. Yes, I know it is stupid, but he is very unsupportive. It makes it even more painful. He's expecting our family to go on a camping vacation soon and I know there will be times when even walking will be a chore. We went to a Braves' game a few weeks ago and the Fibro hit really hard on the way there. I could barely walk into the stadium. This disease is a real b*^&(%! I hope you are having a better day. This is my first time on this Support site ( REMOVED ) so excuse my rambling.
Have a good evening,
Dani
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My son told me about the commercial and even though he know that I've had it for a very long time, it's like it opened his eyes and now when he kisses and hugs me it is much gentler. He said, how come you never told me that I was hurting you with the "bear hugs". But even Fibro patients need hugs too, just in a more gentle manner.
Thank you for listing the website for the commercial, I only caught the end of the commercial the other night and I was so glad that people out there will begin to know just how much pain fibro patients are in.
I can't even begin to explain how glad I am about seeing this commerical about FM, there are times when I am in so much pain that all I do is cry and when I saw the lady in the commerical crying, I felt my gosh I'm not alone. My biggest fear is that I will become so debilatated that I won't be able to keep up with my husband, children/grandchildren. My Dad passed away from ALS (Lou Gerig's disease) and yet I know that I'm much better off than he was, but all I want is my doctor to find the right meds so I can get through the extremely painful days/nights.
If you are a fibro patient too, I pray that we all find even a little relief in order to enjoy our lives.
Danibelle, and janetortiz welcome to the boards. There are a lot of wonderful people on this board. We are all so glad that finally the word is getting out, I don't care if it is funded by a pharmaceutical company that wants to sell drugs or not. I would just like people to know that it is a real disease, not just a catchall for what the docs can't figure out.
I have not seen the Fibro commercial yet. Wondering if the commercial mentions Lyrica and if anyone is having good results with lyrica for pain relief?
I realize not all meds work the same for all, but i need pain relief.
BeHappy2.......i don't recall the comercial mentioning anything about Lyrica. But i recently read that Lyrica has been approved for FM. I personally have not tried it, so i don't know how it works. I do of a couple of people that have taken it for other reasons and had side affects they didn't like.....one person had to stop taking it. but as we all know.....different medications affect everyone differently.
tried it. had a reaction to it after 3 days. quit it. i can do the pain instead. personally i am done trying the "newest magic pill". i do hear good stuff about it from others. personal choice, as always.
never thought i would say it, but there are some good commercials out there. even tho paid for by a huge drug company pushing it's answer, it gets that word out there. fibromyalgia. i remember when no one could even pronounce it. giggle. how times change. goody, goody.
peace and hugs, welcome new faces,
bluelakelady
I tried Lyrica and it helped, but had to stop due to side effects. Switched to Topomax for the nerve pain and I'm up to 400 MG -per day now. Can't say it's taking care of it all, but it's much better than going without.
YAY for the commercial! I nearly fell out of my chair when it aired the other day. I only wish my husband had been watching with me. He was at the one doctor's appointment and heard that it's a catch-all for when they don't know what's wrong with you so has been thinking it's all b.s. for the past years in spite of numerous other specialists saying it's chronic fatigue and fibromyalgia...I drew the daily double. It's unfortunate that he's become a catalyst for many of my flares by causing unnecessary stress in my life.
I recently learned an important word that has saved me from several severe flares. You know, the kind that would send me to bed for weeks and keep me in pain at least as long. That word is, "NO." So now, when I feel my world closing in on me and the burning in my shoulders and elbows intensifying indicating the flare coming, my answer to him is, "NO," to sitting for 8 hours in the hospital at his mothers bedside, to standing in the kitchen cooking a five course meal for his children who eat and leave without cleaning up, to decorating for every holiday when the children don't plan to visit, to scrubbing the floors and vaccuming when his back is stronger and his body is more able.
I'll visit his mother for an hour or two, more on my good days, maybe not at all on my really bad ones. We can take his children to a restaurant and everyone can get what they want. And if he doesn't feel like cleaning, too bad. I'll call a maid service. If I'm not feeling well and we're supposed to go somewhere that evening, too bad. We may not make it. Sorry, to the other lady facing this, but I don't do camping...period. It is not a fibro friendly activity. I don't ride horses, motorcycles, skateboards, rollerblades, ski, run, or anything else that jars my fragile nerves and body. I don't do anything anymore beyond my capacity because when I do, I am the one who suffers, but not only do I suffer, the other people in my life suffer from my being totally down on my back. So while they may miss all of the things that I used to do for them, they admit they miss me more than the things I used to do and would rather be with me than have me sick in bed while they enjoy the meal I prepared.
In a nutshell, pacing is the key to existance now. I had a doctor recently tell me that even though I have chronic fatigue and fibromyalgia, chronic pain, degenerative disk and facet joint disease throughout my spine, and arthritis elsewhere in my body, that my life isn't over. He didn't have to tell me that, but it was nice to hear someone else say it besides me. You see, I don't know what God has planned for my life, but it's got to be awesome because this is my Job period and if you don't know what God did for Job, grab a Bible and read up. He really went through some horrible stuff, but then God blessed him in the end with more than he'd had to begin with.
Okay, I'll jump off my soap box now. I pray this is some help and comfort to those who read it.
Unfortunately no such commercial has appeared in England, we seem to be a bit behind with fibro treatments etc, although I have just read in the monthly fibro mag that Lyrica is the first drug to be approved by the US for the treatment for fibro, although apparently it is more successful within a combo of meds for the overlapping conditions. Other treatments like water therapy, massage and yoga are also mentioned, has anyone had success with these? Trails in Italy regarding the effects of mudbath treatment on fs also in mag, apparently a significant improvement was observed after 16 weeks in primary fs. Has anyone heard of the iv nutient therapy trail that was carried out by complementary and alternative medicine at alexian brothers hosp, once aweek for 8 weeks 7 people were given ivnt and their pain decreased as did their fatigue their daily activities increased energy levels increasing within 24-48 hours. I sound like a commercial sorry just want to know if anyone else has input on these topics or is it all just a load of b/sPlease keep me up to date with fibro news and I'll let you know if anything else appears over here. hugs Snoozyowl