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Old 07-28-2007, 08:50 AM   #1
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Unhappy Do you have constant pain? I DO!!!

UPDATED: 10/6/07

I had a head injury about 2 years ago and have had various problems since then. I hit my head on a cement potter (like the one's that are on the sidewalks that accomodate small tree).

Symptoms since the injury:

Joint Stiffness and Muscle Weakness
Small, red spider veins now starting to appear on chest, arms and legs
Headaches
Severe Fatigue
Dizziness and offbalance feeling most of the time. (like seeing stars)
Extreme sensitivity to light
Increased floaters (everyday and will not go away)
Depression
Anxiety
Ridged fingernails
Numbness and tingling in all extremeties
Frequent urination (like I have to go now)
Hair Loss from both scalp, eye lids and eyebrows with the slightest pull
Dark urine with foul odor
Raised red bumps on chest, shoulders and outer upper arms
Goosebumps all over when urinating or sitting down to releave myself.

Tests that I have had done thus far:

Blood Testing to include RA and TSH levels for Thyroid problem
MRI w/ contrast of brain
MRI of C-Spine and Lumbar(see page 3 of this post for a descriptive breakdown of the MRI results)
Hormone Blood Test(negative)
Urologist(ultrasound of abdomen area and urine culture which came back negative)
Psychiatrist-Put me on 20mg of Paxil. Said it was all in my head. Yea OK!!


Can these symptoms actually be caused by a severe head injury? Or maybe can this all be caused from an Infectious Disease?

Should I schedule an appointment with a Neurologist or Infectious Disease specialist?

Thanks for all the support thus far,
Carl

Last edited by dahlstrom34; 10-06-2007 at 01:38 PM.

 
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Old 07-29-2007, 09:00 PM   #2
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Re: Do you have constant pain? I DO!!!

You mention the blood testing including Thyroid level. Was this a full screening, T3,T4,Pituitary levels,antibody, etc..., or the simple basic "first look" test?( I'd be more specific, but I can't think of what they call it) You might want to look into that because a lot of what you mention for symptoms, though also included in Fibro, look a lot like hypothyroidism too. Please also look into being tested for lyme disease, Lupus, & MS to just name a few. You will find a lot of references to these on this board, and a great deal of really helpful and supportive information. Look for what they generally term a "Women's Health" type of clinic as many of them specialize in both hypothyroid, hyperthyroid, and Fibromyalgia related illnesses. The internet is a wealth of info in locating these kinds of facilities too.
Keep reading here, research everything you can find about your symptoms, and don't stop getting tested. If you arent' satisfied with a Doc... get a new one, and keep after it until you get one who helps you.

Good luck!

 
Old 08-20-2007, 01:25 PM   #3
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Re: Do you have constant pain? I DO!!!

Bring Up My Post!!

 
Old 08-20-2007, 02:12 PM   #4
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Re: Do you have constant pain? I DO!!!

Hey Dahlstrom34, going thru the mill Sweet ain't ya just, Ishla right though you do need to keep on with the testing and docs, we all had to do this to get the answers that we need to start getting the help that we need, It ain't easy, I know but it's the only way. Ok, see the shrink, no shame Dahl, a lot of us see counsellers on a regular basis. If it gets you to where you need to be and the help that you need, go for it! Some of your symptoms can be related to post traumatic stress, my daughter developed the most horrendous dandruff after she was in an accident and that was just one problem she suffered from. The depression that you are suffering from is not surprising, what with the stress and physical probs you're having, I can sooo relate to that state of mind, take each day as it arrives, try to do something positive everyday and remember you are not alone, no doubt others will be along to add their views and support for you in this extremely difficult time. Keep posting, take care Snoozyowl

 
Old 08-20-2007, 08:55 PM   #5
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Re: Do you have constant pain? I DO!!!

Thanks snoozyowl for the encouragement.

I did just go see a shrink about 2 weeks ago and he prescribed me some paxil. Haven't had a chance to get it filled but no quite sure if it will help anyways. Also, I was reading on here somewhere that a few people started taking cymbalta for PTSD and it has helped tremedously. I might have to mention it to my GP and see what he thinks.

I am just still to young to be living inside doing nothing when I was exteremely active with sports year round till this incident. It has been a total loss of about 3 year of my life thus far. I just wish someone can actually tell me what is my problem

I'll keep the board posted and thanks again for your concerns and comments.

~Carl

 
Old 09-01-2007, 09:56 PM   #6
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Re: Do you have constant pain? I DO!!!

Bring Up My Post

 
Old 10-06-2007, 01:33 PM   #7
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Re: Do you have constant pain? I DO!!!

Bring Up My Post

 
Old 10-29-2007, 07:36 PM   #8
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Re: Do you have constant pain? I DO!!!

Hi! I have been living with chronic pain every day of my life since my symptoms began years ago. I was very athletic also. It has been a struggle to live with physical limitations after exercising and doing sports for all my life before. So, yes, I feel like you do. I try many strategies to help me cope and accept my new lifestyle.

Sharing is caring.

 
Old 11-07-2007, 07:42 PM   #9
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Re: Do you have constant pain? I DO!!!

Just visited with a well-known Neurologist that specializes in head injuries here in Pittsburgh. She resides at the Univ. Pittsburgh Medical Center(UPMC). She ordered a slew of blood tests and if nothing shows, might come to the conclusion that I might be pyschosomatic. She basically says that whatever is causing my problems, it is affecting EVERY system in my body.

But I will wait for the blood results and I have a follow-up on Dec 6th.

Thanks all for you sharing and caring...

~Carl

 
Old 11-13-2007, 06:47 PM   #10
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Re: Do you have constant pain? I DO!!!

yep constant pain throughout my body. you are not alone.

 
Old 01-12-2008, 08:41 PM   #11
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Re: Do you have constant pain? I DO!!!

Well, I last visited with the neuro about a month ago and she ran an EMG.

All of the nerve studies came back negative. I figured that copnsidering every test that I had so far came back negative to this point. The olny blood test that has keeps coming back abnormal is indirect bilirubin, which is being said is no big deal.

After each visit from these specialists, I keep getting "you need to schedule an appointment with a psychologist". This is after seeing a neuro, rheumy, urologist and my PCP.

What else am I left to do? I'm just not buying that a psych is the true answer. I have wayyyy to many physical symptoms going on here. I am at my witts end with this whole fiasco.

I FEEL LIKE CRAP EVERY MINUTE OF THE DAY, and whatever I do, nothing seems to help.

I keep waiting for that one morning, that I wake up and everything is gone.

Anyone else?

 
Old 01-20-2008, 09:36 AM   #12
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Re: Do you have constant pain? I DO!!!

Oh My God I relate to this soooooooooooooo much,Finding a good fibro doc good luck ,let alone A doctor who believes fibro is a pain condition,not a mental condition!!!I dream of all of this going away waking up and this is only a dream,BUT the reality of this happening is NOT good ,LOL.I really try on a daily basis to think OK this could be worse I have pain everyday some days wors than others ,I have had really good days,which are VERY rare and very much a tease.I have had such a range of emotions and some I never thought I could have,LOL.I bump into the wall ,the side of a couch ,my cat walks across my chest ,I am reminded of the pain,there's always the constant achy kinda burning feeling and bottom of feet pain.I guess,I have been able to build up a pain tolerance over the years,this to me is NORMAL whatever that is.

Last edited by cats2; 01-20-2008 at 09:40 AM.

 
Old 01-20-2008, 10:11 AM   #13
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Re: Do you have constant pain? I DO!!!

Thanks for your comments, cats2.

Do you have any of the other symptoms that I describe? I have an appt. with a Psychiatrist on the 21st. We'll see if this is, what every specialist I have seen thus far, the answer to my problems. I highly doubt it, but what's a few hundreds dollars more gonna hurt to find out what is wrong with me! Haha!!

Thanks again for sharing your story! Hope that the New Year is better than last!

 
Old 01-27-2008, 02:49 PM   #14
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Re: Do you have constant pain? I DO!!!

Well I saw my 1st psych on the 21st. He determined from all of the symptoms since the onset, he says that it is a mix between depression and anxiety. So he prescribed Lexapro 5mg for the 1st 2 weeks, then bumped up to 10mg.

With all of my physical symptoms I have, I am hoping that this med will help me along.

 
Old 01-27-2008, 08:57 PM   #15
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Re: Do you have constant pain? I DO!!!

Carl,

Just hang in there. It can't hurt to have a good shrink on your side while going through all this, and if nothing else the Lexapro will help with the depression you must have going on. Don't give up on your search for a doc who understands about fibro or any other disease that may be causing all this.

You know your body better than anyone else, so don't allow anybody to tell you what you feel physically is all in your head. Just find the right doc and then settle in and do what they recommend.

It's a hard, frustrating journey through the medical egos on top of feeling bad every day. Just hang in there and know we are all here for you.

Barb in Houston

 
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