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Old 12-10-2000, 06:36 AM   #1
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korken HB User
Lightbulb Writting to Oprah, subject FMS, will you join us in sending letters on the same day?

Cyn, came up with Oprah, We would like you to write your Histories. Then we all can send them maybe Jan.6th, What do you say? We need to post her address. If anyone has it at hand please, post. Thank you, Kim, Cyn, and Scoobs

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Old 12-10-2000, 10:03 AM   #2
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The address for Oprah is: Harpo Productions, P. O. Box 909715, Chicago, IL 60607. I know this 'cause I visit her site frequently (there are several good articles re: FM accessible through her site on the "thrive" health portion). I know FM sufferers from sea to shining sea would like to "improve their spirit"!

 
Old 12-10-2000, 07:46 PM   #3
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Several talk shows have had FM victims on. I can't recall which ones, but I have seen several. I think Montel was one of them. As for research, the Arthritis Foundation is doing some. I have found so many sites with info and several places that are doing research and clinical trials. If I can find some of them again, I'll let you all know where they are. Linda D

 
Old 12-10-2000, 10:01 PM   #4
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I think if we all write to Oprah we need to express our expectations. Are we just trying to get the exposure for the not so well known condition? Or do we want her to have an expert on the show to offer some treatment options? The show writers will probably contact the Arthritis Foundation for informaton. I wonder geographically if there is any clusters of FMS/CFS......? Just throwing some ideas out there.

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Old 12-11-2000, 06:02 AM   #5
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Does anyone remember when FMS awarness is? Is it in May, May 12th? We should request that it be done at that timeing. I would love to have some of our own doctor's. The good ones named in our letters. I'm going to put my new in. We should say that we are writers from the same healthboard, gee pubicity for the board, maybe. I would like to have experts and sufferers. I watch some of the shows but, didn't remember the FMS on Montel, but I don't watch tv as much with a 2 yr. old. Well, not my shows that is. Clusters. Good thought, We could ask our doc's. and see if they have any thoughts. I know some of us don't have a "really knowlegable" doctor. Maybe some of our doc. would write too. Well, the only way to do something is to jump right in. We've done that. Cyn, Good stuff. If anyone wants an outline just remember, you are the author and what you have gone through, your concerns, your words are important. I know that there are so many different thoughts out there, let's try. the worst that would happen is a no. So what do we have to loose? Not a thing, but maybe we will be heard. That would be a great gain. In the letter we should write that we are a group together maybe just use the name, Health Boards FMSers united. Or something like that at the top. Welcome to all help on this matter. The way we keep in the forfront is to make ourselves known. The congress people I wrote and never heard back so I then sent an e-mail, which is never read, my ex-sister in law works for a congressman and says send in the mail; if you want to have a person read it. Good writing, Kim

 
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