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Old 02-08-2001, 03:35 PM   #1
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peteybear HB User
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Hello,I am new to the board here, and found everything very enlightening, and helpful somewhat to having fibro-,severe accelerated joint desiese,epicondilitis(chrondic pain, I believe)arthitis of an eighty year old man....people think that I don't look sick, and that I still do the chores that need to be done in-house and outside as well. They say that I am do young to have such problems, and it has taken a while for the Doctors to finally realize it was fibro-...there is nothing more discouraging than to have my wife say, 'again', pain, your always hurting, so I just say as little as possible and continue to work to the best that I can, and wish the ones who doubt can just step in my shoes for one day, to really feel what it is like, not to have your meds, and you have to wake up and go to work and your body is still tired, and stiff, you don't feel like moving. I take amtrip. at night for sleep, but its not working all that well, also relfen, and morphine, the morphine is the smallest dosage the doctor wants me to have, but it really has no affect on my worse days, and I end up just laying like a vegetable, until I feel better. Well I could go on and on, about this and that, about everything and my list is very long, on how my life has changed.

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Old 02-08-2001, 04:12 PM   #2
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Dale HB User
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Hello Peteybear, That is awful. I am seeing a new doctor. My hope is for more relief too. I have been going slowly down hill for well over 10 years. I just keep on getting new problems. Degenerative disk problems and now my heart. I find it so hard to move anymore. Hope you get more relief.

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Old 02-09-2001, 08:51 AM   #3
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gracieathome HB User
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Welcome Peteybear!
Lots of support here, Copper is smart!, Cioc is supportive, and everyone else is nice too!
People dont post as much as I like but im patient and its worth the wait.

See ya round.
Gracie

 
Old 02-11-2001, 06:04 AM   #4
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Lory HB User
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Quote:
Originally posted by peteybear:
Hello,I am new to the board here, and found everything very enlightening, and helpful somewhat to having fibro-,severe accelerated joint desiese,epicondilitis(chrondic pain, I believe)arthitis of an eighty year old man....people think that I don't look sick, and that I still do the chores that need to be done in-house and outside as well. They say that I am do young to have such problems, and it has taken a while for the Doctors to finally realize it was fibro-...there is nothing more discouraging than to have my wife say, 'again', pain, your always hurting, so I just say as little as possible and continue to work to the best that I can, and wish the ones who doubt can just step in my shoes for one day, to really feel what it is like, not to have your meds, and you have to wake up and go to work and your body is still tired, and stiff, you don't feel like moving. I take amtrip. at night for sleep, but its not working all that well, also relfen, and morphine, the morphine is the smallest dosage the doctor wants me to have, but it really has no affect on my worse days, and I end up just laying like a vegetable, until I feel better. Well I could go on and on, about this and that, about everything and my list is very long, on how my life has changed.

Hi, I'm new to this board, also. I also have degenerative disc disease, degeneratie joint disease, and Parkinson's. I can function most days, but since exercise is recommended for all these, and deep-water aerobics is what i can tolerate, I go to the local pool here in Eugene, ORegon, 3 times a week. It's a wonderful thing for stretching, while you're in wonderfully warm water. I also do stationery bike 5 days a week for about 10 minutes each. Anything to keep from getting stiff. I take Flexeril and Remeron at night, and it really helps keep the pain at bay. I also get a full-body massage when I can afford it -- by a person who has become used to treating FMG folks. There is help out there, just keep moving till yo find what works for you. Lory

 
Old 02-11-2001, 03:05 PM   #5
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Allen HB User
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Hey P-Bear: good to have you aboard. Sorry some of your friends and family don't understand: be sure you explain as clearly as possible what Fibro is like(I say it's like having the flu all the time). They mean well, but the whole American public is just beginning to wake up to our ailment. I can get by with Ultram for moderate pain and Vicodin for severe pain is a life saver. The most demoralizing thing for me is the fatigue and drowsiness(some of it from the Neurontin and Klonipin I have to take for facial spasms). Remember what it was like to be really awake? Get better, Al

 
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