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Old 03-02-2001, 08:14 AM   #1
JB* JB* is offline
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Post In conclusion

I'm starting a new post cause the other one is getting too long.
My original purpose in posting here was to impart the information that there is a lot of NEW INFORMATION on thyroid these days and some of it links FM to thyroid problems. Some of this NEW INFORMATION deals with the unreliablity of the TSH test and numbers that go along with it. I started asking you all about your TSH numbers just to see where you stood on this. Only one person even knew his/her TSH number. This implies to me that maybe you haven't heard of this NEW INFORMATION. A couple of you said you had been treated for thyroid years ago and felt sicker. Yes you will feel worse before you feel better. And years ago (and still today if you don't find a Dr. that knows this NEW INFORMATION)they mostly undertreated and so you would feel worse. They have NEW INFORMATION on this also.
If you really really really want to know if it is your thyroid or not, have a TRH test.
It is THE difinitive test for thyroid.
Any newbees interested in this thyroid information, please ask at the thyroid board.
There's a couple of "cured" FMers there.
Just hoping this helps at least one of you.

Old 03-02-2001, 11:47 AM   #2
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There is a TRH test?

Different from a TSH test?

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Old 03-02-2001, 12:54 PM   #3
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korken HB User

Cico, I think she is talking about the Thyrotrophin releasing hormone test. Look under Google and ask TRH test. I had the cortisol stimulation test. Kim

Old 03-02-2001, 02:25 PM   #4
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Thanks Kim! I have a question for you. Does/Did the outcome of your sleep study in any way affect your treatment? I'm a walkin' zombie again, obviously some severe sleep deprivation but I don't even want to get into doing studies if it doesn't alter the course of treatment.

Old 03-02-2001, 03:24 PM   #5
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korken HB User

Cico, The new doc. put me on 1mg of kolonopin and 100 x'2 of neurontin. I sleep well now. The sleep study, I'd only do it if they said they thought I had a sleep problem that was a potental risk to life, like sleep apnea. The other reason any form of narcolepsy. They also found a heart problem while doing mine. They moniture all your rates. I am glade I did it. Take care, Kim

Old 03-02-2001, 07:05 PM   #6
Posts: n/a

Thanks Kim! I need to have so much done and I don't know if it's really necessary for me right now but we'll see. I have a bunch of appts scheduled for late March.

And I'm sorry I was mean to you.

Old 03-02-2001, 07:51 PM   #7
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Valerie HB User

(((((Rach & Kim))))))

Old 03-03-2001, 11:53 AM   #8
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korken HB User

Cico, Accepted. Kim

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