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Old 08-21-2007, 02:52 PM   #1
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beth13 HB User
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Hello, Thank god there is a place to come to . I have fm since 2000 been n meds did like them . Stop cause i went on fertilitiy treatment . That didnt work so we stop tryen , but its been two years since and during that time i had pain and all that fm brings but i tryed to deal with over the counter pain meds to deal . But now it has been so bad i cant get out of bed the weekness and the dizzieness and pain cant stand this. I takes me a hour or so to get moving and hot shower big help, I am looking into vitiams or nautral thing to help does anyone know ? What to take to help ! Iam a hairdresser my hands have so much pain and memory is getting bad, eyes are very blurried and being so weak i can go on and on .I feel like iam in a bad dream and iam losing myself .My husband says he supports me but than he makes comments . Like be postive i am . And he would call me during the day and iam so weak iam resting he say wake up you day is going by your losing time in your life . he just doesnt get it . Please just venting , if any one knows vitiams that will help please let me know. Thanks Beth 13

Last edited by beth13; 08-21-2007 at 02:55 PM. Reason: extra word

 
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Old 08-21-2007, 03:16 PM   #2
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snoozyowl HB User
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Hey Beth13, Warm Welcome to the boards, vent as much as you need to Sweet, we understand, we've been there. I don't know much about natural meds for fibro, hopefully some of the other girls will be able to help you more. We all try to be positive, even when the pain and fatigue is overwhelming, hubby is trying to help, but it is very difficult for other people to understand what fibro puts us thru. That's why we try to support each other and share our experiences with treatments, meds and tips on dealing with the dd (short for dreaded disease - fibro) on a daily basis on here. Sorry couldn't be more help Beth13, but remember you're not alone anymore, take care gentle fibro hugs Snoozyowl

 
Old 08-21-2007, 03:41 PM   #3
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beth13 HB User
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Quote:
Originally Posted by snoozyowl View Post
Hey Beth13, Warm Welcome to the boards, vent as much as you need to Sweet, we understand, we've been there. I don't know much about natural meds for fibro, hopefully some of the other girls will be able to help you more. We all try to be positive, even when the pain and fatigue is overwhelming, hubby is trying to help, but it is very difficult for other people to understand what fibro puts us thru. That's why we try to support each other and share our experiences with treatments, meds and tips on dealing with the dd (short for dreaded disease - fibro) on a daily basis on here. Sorry couldn't be more help Beth13, but remember you're not alone anymore, take care gentle fibro hugs Snoozyowl
Hello, Thanks so much for your response. It gave me a smile . and knowing there is other people out there with this take care Beth13

 
Old 08-22-2007, 09:41 AM   #4
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FANNtasy3 HB User
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Welcome Beth. Its been a while since Ive posted on the board. I can relate to a number of your concerns so I felt compelled to reply.
I try to stay away from the pain meds as much as possible. I only ask for them when I really cant stand the pain. The over the counter meds dont help me at all. I dont even bother taking them. I figure, "If it doesnt help, why bombard my liver with more meds if there is no benefit."
Ive recognized that most of my joint pain is mostly caused by the chronic stiffness I have throughout my body. I have been taking the muscle relaxer Soma to relieve the stiffness and it does help with a great deal of the joint pain.
Sometimes it takes me the whole day just to get in the shower, just pulling my shirt off is enough to exhaust me.
My rheumy rxed a vitamin B complex Cerefolin to me, with NAC. Was told it is a vitamin rxed to patience with altzheimers. Hes hoping it will help with my short term memory problem. Im so fogged-up most of the time my son calls me, "Dory" from Finding Nemo. LOL! Honestly, I do sometimes sound like that.
As far as your hubby understanding... He wants to help and understand. He may just be throwing those things out to you as if he were throwing you a life preserver. Hes trying to encourage you not to give up. Unfortunately, they dont understand untill they have walked a mile in out foot steps. We would never wish this on them, but we wish they actually knew how it feels.
I was dxed in 2003 but according to docs in Philly, Ive had this all my life. I too have a hubby who says things like, "Just start excercising" and sometimes gets resentfull of my illness. Your hubby is probably frustrated because there is nothing he can DO to help you. So, he tries to encourage you with things he can SAY. There in lies the rub. Men dont know what to say when their object of affection is ailing. They were not programmed to be caregivers like women. Biologically, hes not equiped to deal with suffering. He may never get it. Hopefully someday he will, but I know the angst you feel when those comments are said, even when said with the best intensions. We KNOW what we should be doing, we CANT at the particular moment these suggestions are made hence, we just feel they dont understand. Learning to live with Fibro and a husband certainly has its mental moments.
A nutricianist told me to get outside every day, hurricane or snow storm. Do something physical outdoors at least 20 minutes a day, just picking up sticks or walking or gardening. I try everyday, even if Im just walking around my yard. I do admit there are times I never leave my porch, but I also have never let this keep me in bed either. I guess living most of my life feeling like Im coming down with the flu has me so confused as to wheather Im sick or not, I just run on automatic pilot.
Find peace and get rid of your stresses. There always is time, thats all we have. Remember to take your time, everything will work out in the end. If you cant deal with something today, it will always be there tomorrow. And if it doesnt get done tomorrow, its probably not something you need to stress over anyway or needed to feel responsible for in the first place. No matter what happenes, you will always manage... you do have all the time in the world.
Feel well,
Felicia

 
Old 08-22-2007, 10:35 AM   #5
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headpain05 HB User
Re: New member

Hi there. I am a new member as well and feel your pain. I have found it a blessing to come on this site as well. As far as energy...my rheum doctor did blood work and found I was lacking in carnitine (I don't eat any red meat, which is the best place to get this). She put me on carnitor 3x per day and my energy was through the roof compared to before taking this. It is unpleasant tasting (like fish) and makes your urine smell like fish, but it was worth it. If you haven't had any bloodwork I would suggest asking to have this checked out.

Hope this helps and keep your head up!

 
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