New Member - Fibromyalgia Message Board

jessi80 · 08-21-2007, 05:00 PM

Hi.

I am 26 yrs old. I have been dealing with fibro since before I was 22, but that's when I was diagnosed. As I am sure everyone on here understands, my life has changed drastically since then. I had a successful career in the US Coast Guard and now, I feel like I have nothing. I am blessed to have a wonderful man and family in my life, but still sometimes feel alone in this struggle (aside from my father who has fibro also).

I am always so tired and in pain. I have been on Fentanyl for over 3 years but want to get off of it so badly. I just started the weaning off process but hope I am not making a mistake. Aside from the pain relief, I hate the way it makes me feel.

I am now on Celebrex, Lyrica, and Oxycodone. I am still looking for other alternatives. The Lyrica helps me sleep better at night (I have no problem falling asleep around dinner time...always get soooo tired in eve along with the constant fatigue throughout the whole day) and I have been told it helps with Fibro pain.

The Celebrex I just started to help with the joint pain. That is a new, really painful symptom that has just started in the last 6 months. I have had it off and on but now it's always here. I am in pain and stiff at the joints.

I hate to see other people suffering like I am but helps to know I am not crazy. I was told it was all in my head and I was to young, so I recieved no help for over 2 1/2 very long years.

Sorry for such a long post but I feel like if I don't vent right now, I will fall apart. Thanks to whomever reads this!!

Take care

snoozyowl · 08-21-2007, 05:33 PM

Hey Jessi, Welcome to the boards, Sorry you are felling sooo bad right now, you still grieving for the you back then, before fibro? yeh me too. I'm a nurse and I can't do that no more, I used to ride a motorbike, can't do that no more, hobbies I enjoyed, can't do them no more, BUT, there are new things I CAN do, I'm looking at riding a trike, I now have the most wonderful dog to keep me company and help me exercise, I've found a whole new world on the internet, never had time before, I've also found a whole world full of new and amazing people, my fellow fibromites, who have helped me and are still helping me come to terms with this dreadful condition, I'm not alone anymore and my fibro sisters understand, they've been thru it, not all of us have the same symptoms as you, but someone somewhere will have

Fibro loves stress and any physical weakness, it will play and cause you all sorts of probs, don't dispair Jessi, vent all you like, we know what's like, no doubt others will be along to help you if they can and give you support. Try to keep well, take care gentle fibro hugs Snoozyowl

jessi80 · 08-21-2007, 06:31 PM

Thank you so very much for the warm welcome. Yes, I still am grieving for the old me. I sometimes feel guilty for not doing more and when I try I remember why I don't!! My boyfriend doesn't like when I do that to myself and he is right. I am ambitious and this change has been hard for me but I hope to be able to help others at least. Thank you for making a difference and if I can ever return the favor, let me know!

Bouncy · 08-22-2007, 03:07 AM

Hi Jessie,
I'm new too and can empathise with everything you've said.
I think we have to learn to create a new us as a way to cope.
It's so easy to pine for what we had though, isn't it?

jessi80 · 08-22-2007, 09:18 AM

Hi Bouncy,

You are absolutley right. Sure isn't easy but trying to stay strong. Thanks for the welcome and welcome to you too!