update - Fibromyalgia Message Board

asil · 06-29-2001, 11:15 AM

hello to all out there, i want to thank you for all the letters and encouragement you have gave me through all this hellish nightmare we all have,i am feeling some better now, i still am not leaving my house very much yet because people just drive me nuts, and some can just be so stupid and say stuff like well i have stress to but i dont let things bother me and i am just fine. I have been getting lightheaded again so i got my trazadone filled and take it at night along with my flexeril , so a person who hasnt taken many pills in her life except for an occasional vitamin and birthcontrol pills( which i quit those 10 years ago cause hubby got fixed) i am now up to a nsaid and my effexor in the morning another etodolac in the afternoon and my flexeril and trazadone at night i guess i am doing ok, but i called the dr. this wek cause i am having a lot of brusing pop up and a feeling of nausea but he didnt seem to concerned my family says its just cause my mouth is swallowing pills and my body is trying to not become mr. jekly and mrs. hyde and the couch potatoe that i have become, oh yes they are so sympathetic foir me, so guess i will just keep my journal up and inform the doc. of the stuff i feel. I hope all of you are doing ok and keep people like me going with all your kind words and advice, take care for now.

Mamanell · 06-29-2001, 12:38 PM

Asil, I'm glad you're feeling better but so sorry to hear that you're not getting the support you need from your family. It's so hard for people to understand when we don't really look sick.

I found some info on one of the websites I visited that you could give to your family and friends to help them understand what you're going through. But, of course, now I don't know where it was. That don't help much, does it? I'll try to find it and get back to you.

You hang in there, girl and be good to you. If you need to be a couch potato, then be one. But remember to try to get as much exercise as you are capable of doing. I know how horrible the IBS can be.

Feel free to email me if you want.

{{{{Hugs}}}}

Nell

Caring · 06-29-2001, 07:39 PM

So many people are unsympathetic about this condition, including doctors.

I read a loooooong time ago that doctors do not take women as seriously as they do men, because they assume women are overly sensitive about their pains, etc.

This makes me angry! Did you know, that even though more men get heart disease than women, that a higher percentage of women die from heart disease than men? Want to know why? Cause when women go to the doctor with the same complaints as a man with heart disease, the doctors often dismiss the women as being overly sensitive or overly concerned. This is a fact!

The next time someone tells you "they are under a lot of stress and THEY didn't get Fibromyalgia" tell them,
"That's what I thought before I got struck down with this pain. Wow, you really should be careful, you're sounding just like me before I got it."

Oughta put them in their place for a while. Wink wink.

Hope you are feeling better.
Sincerely,
Caring

lj-111 · 07-02-2001, 08:18 PM

Yeah, what caring said!!

And, I too am glad to hear you sounding a little better. I am sorry to hear about your lack of support. That bites a big one!!

But, you got a lot of support here!! As for other people, you just have to picture how they would be if they were in your shoes and feeling the agony. Soon you will say, oh God no, I wouldn't wish that understanding on anyone.

Maybe you'll realize eventually, that you have to be one of "us" to ever understand... Once you realize that they are not so supportive because they just don't get it, instead of they just don't care, it will cease to bother you as much.. Well, for me any way.

There aint nobody but "US" that understands in the human race.. That is my belief.

My husband understands that I hurt, I am tired, I am miserably tormented day and night sometimes, and that I need empathy, I need respect for my nightmare and where it tends to take me, but he will never UNDERSDTAND.. And frankly people, I love him way too much to ever wish he did!!

Lj