Just Diagnosed Yesterday - Fibromyalgia Message Board

DMS · 07-12-2001, 09:54 AM

Hello to fellow Fibromyalgians!!
I was told yesterday by a Rheumotologist that I have a classic story-book case of Fibro. I'm so sad...even though I had a feeling that is what I was going to be told, it still hurt. I found your message board while doing some research and saved it since I thought I would need you guys soon. HELP! The Dr. told me there is pretty much nothing for me to take that will help...He gave me Trazodone and I took my 1st one last night. I slept for 10 hrs. but still woke up 3 times during my sleep. I had already been on vicodin for the pain, but he says he wants me to wean off of it because narcotics aren't good for fibro???? It actually helps me be able to get around first thing in the morning, as that is the very worst time for me. I'm going to sleep on the floor tonight to see if possibly we need a firmer mattress. It seems like all this started after we bought a new bed?? Anyway, the Dr. also said the anti-inflammatories won't help either. I told him that I could quit the pain killers if I didn't have the pain, but he said I have to change my attitude; that I will always have this pain. He was a nice guy, don't get me wrong, but there has to be something to take for the pain. I'm going to religiously walk & swim, change my diet, but it is hard to "live with" the pain. I have a low tolerance for pain anyway, it figures I would get a disease that there is nothing for relief. Any advice will be welcomed. I have got a ton of paperwork regarding this, so I know the basics. I hope you are all having some relief from your pain and thank you for listening. DMS

Roberta1 · 07-12-2001, 10:07 AM

I have had FM for over 30 yrs. The past couple of years I have been taking 1500mg of relafin. I find it really helps the pain and stiffness.

Roberta1 · 07-12-2001, 10:11 AM

I have FM. My daughter is being tested for lupus as well as other auto immune diseases. I keep wondering if it will be FM. She has the joint/muscle pain and stiffness. She finds though that cold really sets off her symptoms. Even going into an air conditioned room bothers her. I haven't had that symptom, I was wondering if anyone here has.
Thanks.

hope21 · 07-12-2001, 12:57 PM

Roberta,

I'm new to FM, I've been diagnosed for almost 6 months now. I live in New England and this past winter was a major nightmare. The cold crippled me so badly I could barely walk or function. Since the summer has come, I've had some relief. I notice when the temperature drops below 65° or if I go into an air conditioned room my symptoms flare up major. The rain and humidty has also affected me this summer. There are also times when it can be 80° and if a cold breeze hits me, it sends aches through my entire body, including leaving me with goose bumps everywhere. I am very curious as to what this coming winter weather will bring me for symptoms.

Does anyone else experience this?

kraypm · 07-12-2001, 01:49 PM

Hi all!

I was diagnosed in the cooler months this year. I'm in Texas, and this heat is really zapping what energy I have! It's awful. Yesterday I ran some errands and had to lay on the couch for 3 hours to charge my battery! I think weather is definately a trigger, because I was doing a lot better energy-wise.

Karen