Feeling better - Fibromyalgia Message Board

06-29-2001, 05:46 PM

Hi all! Well, I'm going to tenatively say that the Chiari was causing a lot of my symptoms. I'm definitely starting to see an improvement as the post-op pain starts to wear down. My balance and coordination are better,I have less trouble reading out loud and finding words when I speak,my eyes don't hurt when I move them and miracle of all miracles.......

I'M GETTING RESTORATIVE SLEEP!!!

Even with waking up during the night because my head hurts!!! Yippee!

I'm trying not to get my hopes too high, it's only been two weeks but my mom has been here most of the time and she said that I look like myself again(is that a good thing? guess so). My friends have been telling me that I sound better over the phone. I feel better, not very good right now,but better.
Unfortunately, one of my top symptoms, the aching leg pain has definitely come back.

Arnold Chiari Malformation is definitely something for anyone with FM to have ruled out (a simple head MRI will do the trick). I really wouldn't wish this on my worst enemy though, it's not something you really want to go through. Very unpleasant. I'm now an official "zipperhead" and that was NOT on my list of "things I'm willing to do to feel better".

[This message has been edited by cioc1212 (edited 06-29-2001).]

Caring · 06-29-2001, 06:54 PM

Cioc,
Wow!!! This is so great for you!!! Sorry to hear your leg is still hurting, but great to hear you're finally getting some relief from your other symptoms.
I wish you a speedy recovery from your operation. Take Care and I will pray for you.
Sincerely,
Caring

korken · 07-01-2001, 09:17 AM

Glad to hear you're doing better!

I to am feeling better and Gary is the getting ready for his surgery next month. I can't wait till we're where you are now! Love, Kim and Gary

07-01-2001, 10:02 AM

Thank you Caring!

Kim, it's a tough road and my marriage has been struggling under the stress. I still am having moments of "why did I do this to myself?" but hopefully in the long run, it will be worthwhile. I'm still fighting not to get my hopes too high and not to see improvements when there aren't any, I'm being very cautious. Without a doubt, there have been improvements but I still can't say how much;when they said 4-6 weeks for the initial recovery, they weren't kidding. My head is still so tender that it hurts to lay on a pillow and is extremely sore to the touch. My neck is still pretty stiff, I can't even think about being able to drive. I have had the pain decrease to where I can cut down the pain meds though and I've gone off most of the other meds, it's nice not to be on all those drugs!

Copper · 07-02-2001, 02:01 PM

Hi cioc, GREAT NEWS! I'm sooooo glad to hear things are improving! Man, i almost didn't even catch your post here, glad I did, I've been thinking about you alot (especially when I've been sneaking of for a puff or 2. Can't believe I'm doing this after so long of not caring about smokes! grrrrrr!

)

Don't do too much

around, and don't let the

get you down! Remember to

lots. Are you still smoking? remember Vit C to counteract (some) of those effects.

In Fact a full range of anti-oxidant and Omega's (specifically Omega-6, evening primrose, borage and black currant oils.
Any time oils are increased in the diet be sure to increase intake of vitamins A, B3, B6, C, E and minerals zinc, selenium, and manganese for proper absorption.) supplements will help speed the healing and reduce inflammation. Also, garlic is used as a natural antibiotic.

Hey, maybe now that your "FM" is gone

, perhaps the dr.s will take a SERIOUS look at what is causing your leg pain! nice thought, anyway.

just some thoughts. hope everything continues to improve! gentle hugs,

------------------
Copper
Let Miracles Replace all Grievances