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Old 08-26-2007, 06:45 PM   #1
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hillbillyhere HB User
Cool Feels like I am falling apart!!!!Just need some support

Hello I am finally getting refered to a rhumatologist..... After going through almost a year of drs not knowing what is going on with me. Should I ask the rhumatologist to test me for Fibro? I have all the symtoms and then some.....I have TMJ, IBS, depression, anxiety and my body feels like I have been ran over and over and over. I don't have any engery no matter how much sleep I get. I am also going to my GP for high cholesterol and I have a lump on the left side of my neck might have to get a biopsy. Just need some support and someone who understands my frustration.

 
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Old 08-26-2007, 07:14 PM   #2
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Re: Feels like I am falling apart!!!!Just need some support

Well, there is nothing wrong with letting the rheumy know your suspicions. Maybe let him/her come to a possible conclusion first and then bring it up.

I know the frustrations you speak of. I started having symptoms in 7th grade and did not get dx'ed until the summer after my 10th grade year. For someone so young, I think that was a short amount of time, but it felt like eternity for me. So many tests, medicines, explanations that never seem to quite fit, dr.'s, pains, frustrations, aggravations . . . I briefly wondered, off and on, if I was just crazy or making this all up. Even now, I have my ever so brief instances.

Just hang in there. Go to your rheumy, see what he/she thinks and go from there. It may not even be FMS. (which may or may not be a good thing.) Just keep hanging on. Some people wait many many years for the correct dx, and from what I've heard, being dx'ed within a year after starting the search is not commonplace. But don't let that discourage you. Stay strong, keep talking to us all around here, and do not give up! In the end, you will be stronger for it.
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Mitral Valve Prolapse
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Old 08-26-2007, 07:20 PM   #3
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jenilee70 HB User
Re: Feels like I am falling apart!!!!Just need some support

Quote:
Originally Posted by hillbillyhere View Post
Hello I am finally getting refered to a rhumatologist..... After going through almost a year of drs not knowing what is going on with me. Should I ask the rhumatologist to test me for Fibro?
I don't think you can be "tested" for fibro, per se, other than of course checking if you have the fibromyalgia tender points. The criteria for fibro says that you have to have 11 out of 18 tender points, as well as widespread pain in all four quadrants of your body, but there is no blood test or x-ray to confirm fibromyalgia.

What the rheumatologist should do (at least mine did) is to test your blood to rule out things like rheumatoid arthritis, lupus, anemia, hypothyroidism and other conditions which can have some of the same symptoms as fibromyalgia. Also, you might be x-rayed to look for joint disease, osteoarthritis or bone disease, depending on your symptoms.

Don't forget that you could have more than one condition, since fibromyalgia can be concurrent with RA, lupus and other diseases. Even if you cannot be diagnosed at this time, doesn't mean that you are imagining things or that there is nothing wrong with you.

These conditions can be hard to diagnose, but hopefully, the rheumatologist can find out what is wrong with you and give you the proper medication/treatment to improve your condition.

I wish you the best of luck! I too am seeing a rheumatologist, tomorrow actually, and although it is not my first time, it IS my first time with this rheumatologist. I recently moved and I hope this guy can offer me some insight, since I still don't have a proper diagnosis for my condition although I am currently taking medication for it.

Last edited by jenilee70; 08-26-2007 at 07:21 PM.

 
Old 09-06-2007, 07:32 PM   #4
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Wink Re: Feels like I am falling apart!!!!Just need some support

Hey everyone.....Went to my rhumy and was diagnois with Fibro and Ost artheritis and also I have this weird lump on the side of my neck for about two or three weeks and she wants me to get that checked out.......it is a never ending story here with drs

 
Old 09-07-2007, 08:04 AM   #5
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Re: Feels like I am falling apart!!!!Just need some support

welcome hilly,
take a deep breath. you are not alone in this. doctors are an aspect of your adaptation to this new you. in time you will find your balance with this as we all do. fear will leave and peace will come.
welcome little sister to our ever growing fibro family.
peace,
bluelakelady

 
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