Newbie - Fibromyalgia Message Board

Katherine35 · 01-08-2002, 12:20 AM

Hi, I'm new to this Fibromalgia board but am trying to find out what the heck is going on with me. Have had chronic pain for years from failed back surgeries, however the past 4-6 months have had more pain in more places than I thought possible. When I questioned my neurologist about possibly having FM, he said that 'Fibromalgia' was a catch-all term. What I had were "a severe auto-immune disease and neuropathy." I know FM is not a fun disease but if I just had a name maybe I'd be less frustrated. Have read your 'top ten lists' and it fits my symptoms except for the IBS, and resp. infections.
Mister, THANK YOU for listing a sensitivity to touch so bad even clothing hurts. My friends and hubby think I'm crazy when I tell them about this. Now I know that someone else has this problem. Bless you!
Question: If I have FM, does this mean my daughter will be so afflicted? She was diagnosed with ADD when in college and MVP was confirmed a few months ago. Should she mention my condition to her PCP since my neurologist hasn't said what I have? Great. . .now I've another 'mom-guilt." Any answer would be appreciated. May your tomorrow be pain free. Thank for listening. Katherine

korken · 01-08-2002, 01:13 PM

Kathrine,

If one parent has FMS the child has a 25% possiblity in developing FMS. If both parents do as it is in our case it is 50%.

If you haven't read New to board.... and the post ....IN A NUT SHELL. Please do there are links that will help you. Research is the key.

I don't think I would have my children tell there docs about me if the DX isn't confurmed. Then they need a doc that belives in it. Our 18 year old had developed FMS. We have 5 boys.

Good luck in your research and don't feel guilty, it isn't going to kill them and may not affect them at all.

Think possitive and get a doc that is board certified or a specialist in FMS to see you. They will be able to say yes or no at this time.

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Take care ~Kim & Gary~

Katherine35 · 01-09-2002, 10:26 PM

Kim; Thank you for your reply. Am going to my neurologist this week. Hopefully will know more about whatever this is and will ask about a referal to a someone who specializes in FM. Then my PCP dr. has to request the referal from the gods of managed care. Isn't managed care great? Also, I'm relieved that the chance of my daughter getting FM is 25%. God knows she's inherited more than just my eye color. Thanks again. May all of you have a pain free day tomorrow. Katherine

hope21 · 01-10-2002, 07:34 PM

Katherine,

I started showing symptoms in Dec. 2000 and was misdiagnosed by a neurologist with neuropathy. I sought a second opinion. The second neurologist ordered an EMG which completely ruled out the original diagnosis. After further testing, I was diagnosed with FM in February. You may want to check into an EMG.

Take care!
Hope