It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Fibromyalgia Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 09-02-2007, 08:58 PM   #1
Junior Member
(female)
 
Join Date: Sep 2007
Posts: 20
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
jsjek HB User
My story

Since I was about 9, I can remember having spots on my body that hurt to touch. I had an old aunt who would pinch my cheeks, and it hurt like crazy. An uncle would gouge my ribs, and I would collapse in pain. My shins always hurt, but since I played baseball everyone though it was from running in cleats. I always continued to be very very active, and still play and coach soccer to this day.

About 10 years ago, I had balooned up to 240 pounds, and after an x-ray due to pneumonia, it was discovered I had a massive thyroid tumor. I was rushed to surgery, and awoke 2 days later in ICU with my entire sternum sawed in half and wired back shut.

After that, I just never recovered. I went back to work in the mill, working 12 hour shifts on concrete and steel, constantly on my feet. I continued to chase around my kids, and play soccer. But at the end of every day, I just collapsed. I began to be in constant pain. One night at work, one of my legs swole up so bad I couldn't get my jeans back on after pulling them down to pee. I called my husband on my cell phone, and he and the paramedics rescued me from the bathroom. They ran test after test, suspecting a blood clot, and found absolutely nothing wrong. Thus began 18 months of test after test after test, finally arriving at a diagnosis of fibro.

My doctor forced me to quit my job, he wouldn't allow me to continue working. He told me to file for disability. I tried, but I couldn't remember all the crap they wanted to know, like all the doctors I had seen, meds I had taken, dx's I had been given. I got so frustrated and broke down bawling and took the paperwork outside and burned it. I tried to talk my doctor into releasin me to go back to work, but he refused. He wouldn't help me with my paperwork though. I rebelled, and went to work cleaning houses.

I am in pain all the time, but I don't pay attention to it. I've learned to block it because I never could afford the 10 or so prescriptions I was given every month. The only meds I take now are ultram (I get 90 a month) and synthroid. I still am exhausted, in pain, and having brain fog. I still don't liek to be touched because it hurts. But, I find that when my thyroid is well controlled (which has been difficult to do when I had to choose between my husbands high blood pressure meds or my thyroid meds) I felt much better. Now, WalMArt has a new $4 program, and my ultram, synthroid, and my hubby's 2 bp meds are all in it, so I never have to worry anymore.

What I'm wondering (as is my pcp, I've stopped seeing all the other docs liek the rheumy and the pain doc who was giving me intramuscular injections that my insurance said were surgery and billed me about 100 a visit) is what role the thyroid plays in fibro? I know several women with hashimoto's who also have fibro. Do any of you have thyroid problems?

 
Sponsors Lightbulb
   
Old 09-02-2007, 10:19 PM   #2
Newbie
(female)
 
Join Date: Aug 2007
Posts: 8
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
moonbeam24 HB User
Re: My story

Hi. I wanted to respond to your message because your story sounds similar to mine. I think I have had FMS problems my whole life. When I was younger and my mom would brush my hair, my head would burn and hurt and I didn't know why. While all the other kids my age were roller skating and ice skating I found out really quickly that I couldn't because the pain in my feet was so intense. Anyway, I don't have nearly the thyroid issues you do, but I am taking synthroid at a very low dose because I was at the low end of normal. I think when my thyroid is under control I have much less fatigue, but it does not help with my other symptoms.

 
Old 09-03-2007, 10:58 AM   #3
Senior Veteran
(female)
 
kirstee's Avatar
 
Join Date: Oct 2005
Posts: 1,142
Hugs: 100
Hugged 17 Times in 13 Posts
Thanks: 11
Thanked 58 Times in 48 Posts
My Mood: Fine
kirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB Userkirstee HB User
Re: My story

Welcome to the board. I really feel for you and I send loving and loving thoughts your way.

Thyroid problems are a common problem for FMS patients. You might have better success with Armour Thyroid in place of the Synthroid you are currently taking. Armour replaces more of the T hormones in your system. Don't know if $4 prescription policy would apply to Armour, however. Studies done on Synthroid have shown this drug can cause a loss of as much as 13 percent of bone mass!

If you are able to afford it, taking 2,000-3,000 mg of kelp daily, as well as L. Tyrosine 500 mg daily might help you gain more energy. Also a basic Vitaman B complex would be helpful.

Blessings,
Kirstee

 
Old 09-03-2007, 12:37 PM   #4
Junior Member
(female)
 
Join Date: Sep 2007
Posts: 20
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
jsjek HB User
Re: My story

Wow, Kirstee, I didn't know about the bone mass thing. I already take a couple of Viactive's a day because I have a family history of osteoporosis. Thanks for the info, I'll definitely talk to my doc about it. I've also heard good things about Armour before, just never have tried it. I might have to, because the levo I tend to bounce around all over the place numbers wise. I get hyper pretty easily on my 100 mcg dose. My doctor (a general practicioner, I got tired of going to all kinds of specialists) and I both think thyroid disease could play some kind of role in fibro. I don't know what I'm going to do when he retires, he's been my doctor since I was 13, and I'm 35 now. He's pushing 70. 3 of the other doctors in his practice went to high school with me lol, and I dated 2 of them, so I really don't want them to be my doctor!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
My lisfranc injury story (right foot ligamentis dislocation 7mm) dawindsurfer Foot Problems 32 04-15-2011 07:16 AM
I am quite concerned about a collegues misscarriage story HELP!?!? Nichola15 Miscarriage & Still Birth 7 07-12-2008 03:06 PM
Adult Tonsillectomy - My Story..(one of a kind..) SoupGuy84 Ear, Nose & Throat 21 06-07-2008 02:34 PM
My story Cottus Schizophrenia 0 12-03-2007 11:30 PM
Quicksand: My addiction story diezel57 Addiction & Recovery 59 11-11-2007 04:57 PM
Newbie, my story, my questions, my support Hope4U2 Pain Management 4 08-18-2006 10:33 PM
My Fathers story JessicaS Addiction & Recovery 14 03-19-2005 07:17 AM
Throat closed up after diet pills.. please read my story Snowbunnie Obesity 42 04-26-2004 02:33 AM
Good Telling Story - This One Takes the Cake Dismissed Herpes 5 12-17-2003 09:14 PM
Midge - your story touched my heart... TropicalFox Spinal Cord Disorders 3 07-13-2003 07:19 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off









Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin


Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Fibromyalgia

    bluelakelady (234), tooolgrl (92), biogirl71 (90), Glojer (86), themartinfarm (78), janewhite1 (59), kirstee (58), monalisa24 (55), WoodsWalker (54), caribear (41)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (465), mscat40 (419), tetonteri66 (419), jennybyc (402), sammy64 (390), jgrangran (362)

    All times are GMT -7. The time now is 12:40 PM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.