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Old 01-22-2003, 06:22 PM   #1
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xena02 HB User
Unhappy just diagnosed

i was diagnosed with fibro-myalgia three weeks ago. I also currently have pericarditis - a virus in the lining of the heart. Docs (at Hopkins) say the heart illness will heal in 6 weeks with bedrest. yadda yadda yadda! They gave me elavil at bedtime for the fibro.

I know fibro causes a lot of pain in trigger points but does it also make you so tired that you cannot function? Does it also cause some vision problems if you read too long or watch tv too long? Do we run low grade fevers that make us feel flu-like a lot? How do we reserve our energy if there is none ther to reserve? HELP.

sigh. . . .
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Old 01-22-2003, 08:41 PM   #2
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la_brat HB User
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Our youngest daughter's biggest complaints are the fatigue, her eyes (burning, sometimes can not focus, and sometimes can see but can't understand) and the reoccurring fevers. Her sister has FMS also, but these symptoms are not her major ones. We are still working through the trail of try this and that. So far nothing. When on this trail, remember that FMS waxs and wanes on its own. What you may think is saving you now is nothing more than your condition's own cycle and a month, or two, or three from now it is back with a vengence even though you are still doing what you thought was your saving. Remember with FMS it seems everyone is different. Different people have found releif in different ways. It is important to do the basics - good nutrition and excercise (sometimes these are very hard, but do your best). Good luck in your search.

 
Old 01-22-2003, 09:58 PM   #3
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kfh2002 HB User
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Hi
For the records, my wife and I have been trying Colostrum for a month now, and we are going to keep it up in order to give it a good trial. My wife has had FMS for at least 10-15 yrs, and has tried most everything. She says that she does think the Colostrum is helping, but it is gradual. After having FMS for so long, we don't expect an instant recovery; but one thing is for sure, and that is that Colostrum won't hurt you, but is bound to have some positive affect after time. She is trying the Powdered Colostrum, as it deals more with the healing of the muscles. She takes it in the afternoon, and the capsule in the morning.
But one other thing of equal importance is to watch your intake of carbohydrates versus proteins. My wife experiences the most help when she cuts out breads, buns, pastas, stuff like that, and eats more proteins, like meats, eggs, green vegetables etc. Sweets are a no-no! Again, I would recommend the book called Protein Power by Drs Eades, a husband and wife team. It was recommended to us by a Doctor who is not only a medical Dr, but also one who believes in alternatives. He said to begin with Nutrition. This book deals with it very interestingly. When she followed it religiously, she lost her pain in 2 1/2 weeks, and regained her energy. Problem was, she felt so good she overdid it, and really hasn't regained it. But whenever she IS good about what she puts in her mouth, she definitely feels better. I think the Colostrum will help this along. We are giving it a try anyway.
All the best,
kfh

 
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