It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Fibromyalgia Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 09-20-2007, 06:35 PM   #1
Junior Member
(female)
 
Join Date: Sep 2007
Location: Florida, USA
Posts: 36
Sweetie31 HB User
Exclamation TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

HI there,

I am new to this board but feel I may be in need of help. My TMJ doc who controls my chronic pain related to TMJ, Migraines & Myofacial pain has closed - however, from what I KNOW...he DID get in trouble with DEA!? Maybe?? Must have!
I have been with him since 2001 & after trials of many things, I wound up on percocet for control of this since. I'm not on a crazy amount of medication 10/325 - 2 tabs 4Xdaily...and this over the course of 6 years manages a normal comfortable pain free life for me!! FINALLY! FYI- trials of Antidepressants caused increase pain & migraines from increased grinding! I also have developed a questionable diagnosis mentioned by my pain doc of fibromyalgia (I agree) which coincides with the other issues most of the time. I have fatigue daily, muscle pain in mostly my upper body, shoulders, neck, head, face, but can sometimes get "stiff" & achiness all over in the mornings especially.
I visit him last week, he writes my last RX's and gives me instructions to taper off...then he tells me to go to my PCP to ask to take over my medication control..until a new doc is found. He also refers me to a place (I called that place & they aren't taking "his" patients or (?) TMJ patients) I go to my PCP today and she can't take over the medication management?? Now I am to taper my meds (and under this stress, I am a mess)...she suggests I look into this doc & that doc, none of help because #1, no one is going to get me in right away....#2, no one will feel comfortable writing my meds, #3 There AREN't any TMJ docs around here!! I can't find one! My PCP did suggest a Rheumatologist for the fibromyalgia - however, is weary whether that doc would write the meds either to get me through the pain til I find another TMJ doc and STOP me from going into withdrawrals! ....I got an appt with a rheumatologist for Oct 17th...(ie my meds run out the week before) again no guarantee the regimen will stay the same while I find someone who KNOWS what living with Chronic Pain is like!! How is Fibro Diagnosed with a Doc...what do they do to determine this?? WOuld they keep me on the same regimine or will I end up in a downward spiral trying new things again? (I'm a single mom who needs to function & take care of my mom with cancer)

ANy suggestions? Does anyone know about Fibro and what the treatment is--I thought it was about the same as my chronic pain from the rest of my issues??? Please Advise. Oh, I am IN Massachusetts, South of Boston, if you know od anyone who could help.

Desperate (almost in tears "again")....Sweetie

 
Sponsors Lightbulb
   
Old 09-21-2007, 04:06 PM   #2
Newbie
(female)
 
Join Date: Sep 2007
Location: CABOT ARKANSAS
Posts: 1
connie72023 HB User
Re: TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

For me TMJ and Fibro are related. Rhuem. Arthritis is the umbrella all these illnesses. I take flexeril and ultram. When really sick Hydrocodone and in bed 2-3 weeks. Yes I wear the mouth appliances and hate it. Finding a doctor that is up on all the news on tmj and fibro is a quest. good luck. Never quite asking questions!!

 
Old 10-23-2007, 06:47 PM   #3
Newbie
(male)
 
Join Date: Oct 2007
Location: Atlanta, Ga. USA
Posts: 9
Harlequin9 HB User
Re: TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

Hello-I am a 28 yr old former college hockey player who was having SEVERE daily migraine headaches. I tried everything, and I am exstatic to hopefully help you by telling you what my problem ended up being. First of all, I was suffering from trigeminal neuralgia, or what is commonly referred to as the suicide disease. But after 4 years of severe daily pain, my neurologist finally figured out that I had a mis-aligned Atlas (in my neck) even though I had never experienced any neck pain of any kind, only head, jaw, and facial pain. He referred me to an Atlas Orthogonal Doctor. They have been realigning my atlas, and praise God that my headaches have been diminishing day by day. It has turned my entire life upside down, or right-side-up that is, I guess. I was one more sufferer on here who thought I was going to die any day. Please look into this as it could save your life too. I understand how you feel. Just know that there are others out there too. Good luck.C

 
Old 10-23-2007, 06:50 PM   #4
Newbie
(male)
 
Join Date: Oct 2007
Location: Atlanta, Ga. USA
Posts: 9
Harlequin9 HB User
Re: TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

Hello-I am a 28 yr old former college hockey player who was having SEVERE daily migraine headachesfor 4 years straighyt. Everyday, all day. Ultra, ultra severe pain! I tried everything, and I am exstatic to hopefully help you by telling you what my problem ended up being. First of all, I was suffering from trigeminal neuralgia, or what is commonly referred to as the suicide disease. But after 4 years of severe daily pain, my neurologist finally figured out that I had a mis-aligned Atlas (in my neck) even though I had never experienced any neck pain of any kind, only head, jaw, and facial pain. He referred me to an Atlas Orthogonal Doctor. They have been realigning my atlas, and praise God that my headaches have been diminishing day by day. It has turned my entire life upside down, or right-side-up that is, I guess. I was one more sufferer on here who thought I was going to die any day. Please look into this as it could save your life too. I understand how you feel. Just know that there are others out there too. Good luck.C

 
Old 10-24-2007, 01:22 AM   #5
Veteran
(female)
 
Join Date: Jun 2005
Posts: 301
legallyblondied HB User
Re: TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

Hi I am Karen and i think that guy that found that his Atlas
was out of whack and got that straightened out got to the
source of this pain and is fantastic. However to Connie, inmy
opinion, arthritis is not an "umbrella" for these illness. The fibro and whatever rheumi is not arthiritis but autoimmunie
diseases. TMJ is not even close to this. The only was TMJ can
have a causal link to arthritis, is if it is not systemic and only
in the jaw area as a result of many years of grinding and clenching the jaw. It takes many years before osteoarthiritis
sets in. There could be a tumor or osteonecrosis or avacular
necrosis or inflammatory arthritis which could be a causal
link to TMJ but most often it is caused by an uneven bite.
I know this sounds ridiculous simple to people, but dentists
and tmj specialists are usually working in the dark trying to
diagnosis the cause and since they can not determine this
they resort to meds...this just makes it worse on your body
and gets you hooked on pain pills and you build an increasing tolerance to the meds requiring more and more.
When your bite if not correct and you often do not have any
symptoms except jaw pain and referred pain as migranes
neck shoulder and facial pain , it is because the jaw mucscles are working so hard at stailizing the jaw and trying to correct the bite that they become overworked and
fatigued and then pain sets in..the more overworked they
are the more muslce spams you will have the more referred
pain to other parrt of the body. When you hurt in one area
of the body, it will throw the whole body out trying to compensate for the pain and correct itself. Find a dentist
that has a back ground in neruromuscular dentistry and
look it up....it fixes the bite and aligns the jaw in a relaxed
position so there will be no grinding of teeth and clenching
and sooner or later the pain will diappear. A ultra low frequency tens unit can be used to relax and massage the
muscles and also to help diagnosis if the bite is off..Do
some reading online on docs that work with craniomandibular and neuromuscular dentistry and you will
understand what i am talking about...it sure beats meds
and thinking that this is due to arthritis.....Karen

 
Old 10-24-2007, 06:24 AM   #6
Member
(female)
 
Join Date: Apr 2004
Location: Granbury, TX
Posts: 81
bikerbabe HB User
Re: TMJ/Myofacial Pain Doc GONE..possible Fibro too!I need help

I went to a dentist for my TMJ. He gave me pain meds and muscle relaxants and worked on my bite. The mouth piece made my head/jaw/everything hurt worse for awhile, but gradually settled down again. Go to a dentist... one who specializes in this. Mary

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Question about Chronic Myofacial Pain/Fibro ARANGER Fibromyalgia 19 03-12-2011 09:29 PM
anxiety/depression,etc a result of the pain,etc from fibro or Mikeyson3 Fibromyalgia 7 04-24-2010 04:00 PM
Question about the pain with FM unicorn42 Fibromyalgia 30 08-13-2008 12:02 PM
how do i lose huge weight gain w/o working out from pain? rosebuddy Fibromyalgia 15 07-15-2008 01:47 PM
My Fibro Pain Has Gone builder Fibromyalgia 3 03-27-2007 05:47 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ambien
Cymbalta
Effexor
Elavil
Flexeril
  Neurontin
Percocet
Tylenol
Ultram
Vicodin




TOP THANKED CONTRIBUTORS



bluelakelady (373), WoodsWalker (132), thefarm (111), Glojer (103), tooolgrl (94), biogirl71 (88), janewhite1 (85), kirstee (60), monalisa24 (55), tmrots (41)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (910), Titchou (859), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 02:40 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!