My interesting day (if anyone is interested) - Fibromyalgia Message Board

Sweet Pea · 01-23-2003, 03:47 PM

The nerve conduction test is finally complete. It really wasn't that horrible. Yahoo! I got some really good news. What I have may be fixable. I've got carpel tunnel. This is the first I've been told this. The EMG proved it in a big way. I also have Thoracic Outlet Syndrome which is where everything runs out of your neck and meets your shoulder and progresses downward. I need to go to a vascular dr to make sure the veins aren't being scrunched as well. I had a quickie MRI on my shoulder also this afternoon. They had a cancellation which was rushed but I didn't have to think about it for a week. I made that poor technician hold my hand the whole time! I may need surgery on my shoulder. Don't know about my wrist. I also don't know if the rest of my aches and pains will go away if I have the surgery so don't kick me off the board yet! (unless you want to) So next week I start 3x a week PT to try to unlock my shoulder. That's my big news. I'm really glad I tried this new Dr. The moral of my story is maybe I gave in too soon. My neurologist was treating the right location but the wrong things. I tried to be stoic and strong by not being a pest to my family. I hope all of this comes to a good ending!

tolern · 01-23-2003, 06:20 PM

Of course we're interested!!!

What great news sweetpea!! I'm glad the test went ok for you too. I know you have been worried about it.

I hope all of it comes to a good ending too.

((hugs))
cat

Raven · 01-23-2003, 07:45 PM

Hi SweetPea,
I am sure glad everything went OK. I am not being a party pooper on how happy you feel that they have figured out what is going on with you, but please don't let them do surgery until every other method is tried for both of those conditions. I have C T and problems with the nerves in my shoulder and I was rushed into surgery for the CT because the Doctor told me there was no other way. I now have numbness in both my hands that will never go away and I get a spring feeling with pain like I did before surgery again in my wrists. So I still have CT after the surgeries. So I had three surgeries for nothing, well actually two surgeries for nothing. My De Curvein surgery in my left wrist did help. I hope you can find other methods to help but it is common for CT in FM patients too. Well shoot us FMers seem to have everything mixed in to it all. It took the Doctors 7 yrs before they did my De Curvein surgery. I did try all other possible methods to help it but nothing worked, but sometimes it doesn't. On to other things, I am so happy that the Doctor is trying to get an answer for your symptoms, that is the hardest part for FMers, I call it the waiting game yet I am in a good spot with my Doctor....finally, I just wish I could get my life straighted out. You may find some help with a PT for your shoulder. Keep us informed. Good Luck to you and please know I am right there with you. Oh and even if you don't have FM you can stay on this board!!!! Hugs, Raven

Sweet Pea · 01-25-2003, 05:51 AM

I've been wearing my wrist splint since Thursday. My shoulder feels pretty good. There is a huge nerve that runs through your wrist that can affect your arm all the way to the shoulder. I'm not totally pain free but it's better than I've been in months. The aches and pains not caused by my shoulder are still there as well. Don't get me wrong, it could be a fluke or I may be between flares. For those of you with similar pain as mine, you may want to immobolize your wrist for a day or two and see what happens. An ace bandadge should work. Will keep you updated.

Sweet Pea · 01-29-2003, 08:36 AM

PT started yesterday. Was somewhat painful. MRI showed adhesive capsulitis which is MRI talk for frozen shoulder. Yet another thing I thought I just had to live with. Hopefully PT 3x a week will break it loose. Again I have a test result to prove I have something other than MPS and fibro. As we all know, fibro has that stigma that people are faking or mental. I have had many doubts over the years in that area about myself. Even now with some of the pain released, I doubt myself that I really felt it, isn't that stupid? Pain is very fickle.