Chronic Myofascial Pain with FM and CFS - Fibromyalgia Message Board

LarryPas · 06-12-2003, 10:01 PM

Hi all,

Knowing this board is the closest thing to a CMP discussion, i was wondering how many people have myofascial pain here. Simple difference being that myofascial is the one with trigger points. I am "lucky" enough to have both diseases, which just means my pain is consistantly horrid, it just likes to jump from place to place or add new places for a day or two. I'm exercising, but work is getting tough as my hands start to get worse. Add to that i'm 26 and i don't believe in narcotic use for chronic diseases and you can see the issue

Anyway, just looking for advice.

Larry

kristeen36 · 06-12-2003, 10:12 PM

hi larry,

ya got more of the mps than the fibro, but i get the juicier fibro problems like fibrofog, numbness and tingling, and the inability to do anything with my lobster claws some days!

and don't even think about touching my back! how annoying is it that everyone just HAS to touch you, or even try to tickle you? one day you will hear about a savage murder because of FMS/MPS complex!

advice...read all the entries here and all the books you can get your (sore) hands on, and try them all...you've got nothing but time i'm afraid to say. what works for me is definitely not going to work for everyone...just the nature of this horrid beast (if only it were that easy).

i applaud your decision against narcotics. try all the alternatives first, the others will still be there if you need them.

god bless

twisten · 06-12-2003, 10:31 PM

Hi. I've just been diagnosed with chronic myofascial pain syndrome as well. Unfortunately I can't take anti-inflammatories (causes my crohns to flare) pt aggravates it, there are no massage therapists near me that are familiar with this and docs say it went to long untreated so injections won't work. He told me I have 2 choices, don't take any narcotics and have no life or take them and at least have some quality of life. Are you aware of any other types of treatments I'm not aware of? Any advice would be appreciated.

LarryPas · 06-13-2003, 07:19 AM

Actually i'm lucky enough to get the fibrofog (just ask my friends/parents) and dizziness. People can't believe that someone who spent time at harvard can't remember something he was told 10 minutes ago, or even sometimes makes a wrong turn going home (got a gps for that lol). And I just graduated college 5 years ago!! Oh, at the hospital they would put my hands and feet in icewater for 30 minutes and they would feel better for a few hours after that if anyone is looking for some help.

kristeen36 · 06-13-2003, 06:34 PM

i just read about water therapy...the old fashioned way, walking in a cold stream or lake. it used to be a remedy for migraines and it actually works! the prob with this is it can also set off a fibro attack in my lower legs...they'll ache for days after! i have to decided which i can tolerate more, the migraine or the leg ache.

as for the fog....incredible isn't it? that is the symptom that scares my husband the most because i too am a scholar...and he kinda relies on me to be the walking phonebook/directory/source of useless but informative knowledge, and when i can't pull up my own address it's a bit freaky!

as for massage, i won't ever try that again! i had a "spa" treatment just last weekend, and it has taken me 6 days to get back to my normal level of miserable again! i thought maybe it would help to "drain" some of the mps triggers, or at least increase my circulation, but it has resulted in torticollis (excruitating neck spasm) and a 6 day migraine, so let me know if you ever find a masseuse that doesn't create more problems and actually provides relief. has anyone tried chiro, and how has it helped? i tried it once for a period of 6 months and it really only aggravated me, but i didn't know i had FMS/MPS then either.