New Dr/Says No Such Thing As Fibro - Fibromyalgia Message Board

Glenda/Bill · 10-27-2003, 10:14 PM

I went to a new Dr. I heard was very good and thorough.
He spent 1 hour and 20 min with me and then said it was obesity not fibromyalgia. I said you don't believe in Fibro? He said there is no medical proof of it, its just a dx they give you when they can't find anything else. So, I am fat and that makes me hurt like crazy all over? He ran all sorts of tests and I am going back this week to get the results. He also said it was diabetes. I am insulin resistant but its never been real high. I am really upset about this because I know I have fibromyalgia. He said you will just end up getting addicted on pain meds. I said no I'd rather take neurontin or zonegran for pain.
He was good and nice but I didn't like his remarks about the fibromyalgia. Its the only thing that makes sense. Not obesity!!! I have no insurance and no money and I have this week spent over $700 for his visit and tests. I only had to pay for 1/2 now and then rest later. Thats not even counting the follow up visit and medication. I have heard about a new clinic coming to town that is free so if he doesn;t help me I may have to go there. Why do some Dr's think they know everything?????

dayton · 10-28-2003, 08:08 AM

When I asked my pcp doc about it, he said "oh yeah, I see that a lot in obese white women."

I'm only 5 foot 2 and weigh about 170. I don't consider myself obese!! Ok, a little chubby, now be nice and don't hurt my feelings!!!

I found myself another doc.

painsucks · 10-28-2003, 10:32 AM

OK then, how come I weighed about 130 pounds and was very fit when I was diagnosed???!!! Find yourself another doctor! After about 8 years of suffering with fibro, my husband wanted me to change doctors. So I went to a highly recommended neurologist and the first thing she told me was that she didn't believe in fibro. So I thanked her for her time (wanted to say thanks for nothing) and went back to my doctor that has been helping me for 10 years now. I am overweight now, all the meds cause weight gain and the pain and immobility make it very difficult to exercise. I think you need to find yourself another doctor. This disease is real. I know a lot of doctors think it is a "dumping ground" because they don't know anything about it. Good luck to you.

Jenetti · 10-28-2003, 06:38 PM

Doctors think they know everything. I'm 5'3 and weigh 122 lbs, and I have fibro. The pain doctor I saw two weeks ago was a pain in the rear end. He automatically wanted me to go off the pain meds because HE DIDNT TREAT FIBRO that way. I asked him how do you treat it? He said guafenesin and stretching exercises. I was there for MY BACK (spine), not the fibro. I have a good doctor for that who gives me pain meds. I take 4 lortabs plus 4 somas a day and have been on the same dosage for way over a year now. THis pain in the rear management doctor didnt know that, and he says "you will get addicted to the pain meds within a few weeks and want to increase them". He did send me for an MRI test, I go find out the results tomorrow. I'm also going to set him straight on a few things. Find yourself another doctor hon, the first thing THEY have to do is believe that fibro is a disease before theyre willing to treat it.
Jen

rhody · 10-28-2003, 07:32 PM

Doctors only understand what they've read, have been told, they believe, or have been taught. They don't know everything.

In 1978, a doctor told me that I was too fat, too old, take 10 aspirins a day, and to not run more than a hundred yards. I know what it's like to be called "fat" by a doctor. Today I run nearly 20 miles a week. My fibromyalgia symptoms are basically gone and after losing about 25 pounds, my weight is more than within acceptable range.

Later in life, I changed my diet to healthy one, took herbs, and replaced my mercury-silver dental amalgams with less toxic ones. It took me years to find a "cure" for my mysterious muscle pains. Can I prove the pain? No. Were those pains there? You bet they were. I endured horrifying pain and discomfort at one time.

Those doctors can say anything they want - but having an education and a "white coat" doesn't give them understanding of what it feels like to be in our bodies. Anyone who says these mysterious pains don't exist, isn't really in touch with reality.

Now, I think these pains can be monitored by measuring the brain activity. Has anyone heard of that too? I don't know any details about it, or if it's true. But, it's something worth researching.

With my illness, the only thing you could see is my red rash. I recently had this rash again.

My right arm muscles starting hurting, so I started with the herbs again, and then the rash appeared. Subsequently, with the herbs that I take, the muscle pains went away too.

I still have mild pains at times, but they are mostly there when I overdo it. After having my dental amalgams removed about 10 years ago, I have gradually improved to where I can say I'm "cured". I linked my pains to my dental amalgams after my back tooth broke and exposed one amalgam.