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Old 10-19-2007, 03:33 PM   #1
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Question How Do You Know If You Have Fibro?

I thought that you had to have 11 of the pressure points, I think that's what they call it. Is that true? I'm trying to figure out if my symptoms might be Fibro they have ruled out MS up to this point. Can anyone help me with this? Any information would be greatly appreciated. Thanks! FLFLOWERGIRL

Last edited by FLFLOWERGIRL; 10-22-2007 at 02:54 PM.

 
Old 10-19-2007, 05:20 PM   #2
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Re: How Do You Know If You Have Fibro?

yes there are 11 trigger points to diagnose fibro. a rheumo should be able to give you a diagnosis and help.
hope you find out soon......bevann

 
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Old 10-19-2007, 07:14 PM   #3
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Re: How Do You Know If You Have Fibro?

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Originally Posted by bevann26 View Post
yes there are 11 trigger points to diagnose fibro. a rheumo should be able to give you a diagnosis and help.
hope you find out soon......bevann
So do you have to have all 11 or just some to get a DX? Thanks. I've already been to a Rheumy and he said, I don't have anything that he does. Don't know if I should see another one or a different kind of doc? FLFLOWERGIRL

 
Old 10-20-2007, 08:20 PM   #4
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Re: How Do You Know If You Have Fibro?

The established criteria based on Boards is at least 11 out of 17 or 18. I almost jumped out of my skin when the rheumy touched me. You could get a second opinion.

 
Old 10-21-2007, 02:59 AM   #5
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Re: How Do You Know If You Have Fibro?

my rheumo said 11 out of a possible 18. also have you had an mri or bone scan to rule out arthritis?........bevann

 
Old 10-21-2007, 06:08 AM   #6
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Re: How Do You Know If You Have Fibro?

Almost all docs rule out MS with an MRI of the brain/head.

Trigger points are knots in muscles. These can be released by myofascial release with physical therapy and or injections. You can have trigger points with or with fibromyalgia

Tender points are only one of many symptoms of fibro. I had 11 when first diagnosed. There are 18 possible ones. There is nothing to make them go away, sometimes when examined I have more than 11, it depends on what day you are examined.

If you want more information on chronic myofascial pain and trigger points, let me know.

 
Old 10-25-2007, 06:00 PM   #7
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Re: How Do You Know If You Have Fibro?

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Originally Posted by a_starr View Post
Almost all docs rule out MS with an MRI of the brain/head.

Trigger points are knots in muscles. These can be released by myofascial release with physical therapy and or injections. You can have trigger points with or with fibromyalgia

Tender points are only one of many symptoms of fibro. I had 11 when first diagnosed. There are 18 possible ones. There is nothing to make them go away, sometimes when examined I have more than 11, it depends on what day you are examined.

If you want more information on chronic myofascial pain and trigger points, let me know.
Thank you for the reply. Yes I would like more info on chronic myofascial pain and trigger points. Very interesting. I don't think I have Fibro. Thanks again. FLFLOWERGIRL

 
Old 10-26-2007, 08:44 AM   #8
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Re: How Do You Know If You Have Fibro?

This is how i understand Chronic Myofascial Pain:

Fascia is like the thin film that covers chicken parts we buy at the store. It gives shape to and supports all of our bodies muscles. Your muscles are also made up of fascia. Muscles knot up and won't release on their own. Another muscle covers for that muscle and so on to where you can have chains throughout your body. A trigger point refers pain to another muscle. Like when i have one of my trigger points injected to the spasm point, the pain is felt in another muscle. This is called referred pain. That is how the doc knows that the trp has been released. Then that trp is injected and pain is again referred upon spasm. I had chains all through my body. I have also had trps released by physical therapy but without referred pain so the 2ndary trp is still there but may or may not be active. Trp's can cause entrapment of nerves that cause excruciating pain: *****ly, shooting, electrical, sharp, radiating, tingling, and many other kinds of pain. And the muscles have this tiny knot the size of a pea which is the trp. But the whole muscle is knotted and painful.

You can have fibro and have or not have cmp. And a person can have cmp and not have fibro.

This is just a small description in my own words. I am not a healthcare professional. I highly recommend "Fibromyalgia and Chronic Myofascial Pain, A Survival Manual" by Devin Starlanyl. Or atleast find a book of fibro that also describes in depth what cmp is and how it is treated. This is the only book i could find, but i haven't looked in awhile.

I hope i helped. Good luck.

 
Old 10-26-2007, 03:04 PM   #9
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Re: How Do You Know If You Have Fibro?

How Do You Know If You Have Fibro?
still to this day its when the doc scratches his head and tells you its all in your head but precribes you tons of antidepresents,vitimins, and pain meds.
here is my take on it as its happened to me.
1. when you feel like crap (flu like symptoms) most every day.
2. every thing on your body hurts even your hair and skin
3. you feel like dying with pain and all test run on you come back neg.
4. your family starts telling you you just need to get out more and excercise
5. your health starts afecting your work and family time
6..hubby starts complaining and you really dont care in fact get mad at him for being mad at you. but you have no answers to explain all the symptoms and pain where he or family can understand it.
7. depression starts becoming your friend and panic attacks hit you out of the blue and....and... sniff.....your constipated.
8. doc still says its all in your head and you start believeing him!
9. trying to convince yourself your not crazy the pain is real
10. had to give up working cause you forgot the way to work and where you parked your car, and you called your best friend at work bob all day.(name is susan)
11. the pharmacy knows your in the store from the rattle of empty pill bottles in your purse.
12. U dont remember the drive to the pharmacy and you drove.
14. you notice one day that you forgot how to spell your name and dont remember your birthdate or how old you are.
15. hubby is starting to raise an eyebrow at you because you put the cat in the oven instead of out the door.
16. you could comit mass murder at the doctors office waiting room cause somebody thinks they can sing better and louder than the cms singer on tv.
17. you have unfinished "projects" still unfinished and starting to pile up around the house. (along with your dirty clothes, shoes, dishes etc..)
18. sunlight makes you cringe and wonder where your cross is at.
19. headaches is an everyday thingy.
20. you avoid places with stairs, revolving doors and elevators.
finally; you forgot what a brush looks like and can relate to a cat when it comes to water hitting you and your pjs, fuzzy's and heating pad are you newest bestest friends ever!!!
well you get the point the list is endless and growing every day.

the triger point test was not meant to be use to dx fibro because not everyone with fibro has these.

you can have a mild case of fibro...huh? or you can have full blown fibro which is it makes you house bound or bed bound because of how crippling it can and will make you.

they are now sugesting that fibro is linked to a virus in the stomach. and can be triggered or worsened by an auto accident, a death in the family, a very stressful event in your personal life.

this I found by typing in the search bar new fibro news..sept 14th is when this came out oh and dont quote me i have fibro.

heres to hoping you dont have it!
~take care~

 
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Old 10-26-2007, 03:58 PM   #10
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Re: How Do You Know If You Have Fibro?

I loved the list. I would also like to add that

the sound of florescent lights can drive you crazy as can locusts chirping.

Air conditioning burns your skin.

You can not finish a sentence.

You lose things all the time and get lost not only driving but in your own house.

Balancing a check book is impossible.

When you try to go for a walk during a flare, you have to lay down in the grass and have your partner get the car and pick you up.

(I personally have fog flares, flulike flares, and all over pain like someone is punching me flares. But, halleluyah, I rarely have the last two. Knock on wood)

Fortunately, My pcp diagnosed me right off because his wife is a rheumy. He even suggested Noni juice.

My neurologist also diagnosed me immediately and referred me to a pain mgmt doctor that i trust with all my heart and who has transformed me from an invalid to healthy except for flares. She has a brochure about her clinic and the number one health problem that she treats is fibromyalgia. Number two is chronic myofascial pain.

I am also blessed with a godsend of a psychiatrist who readily accepted the information i gave him on fibrofog from Devin Starlanyl's book and also works with me to find the right antidepressants and anti anxiety meds.

I am also blessed (wow i guess I DO have a lot to be grateful for) with an understanding immediate family. (My extended family doesn't understand at all. They think i am just depressed and need to just get on my hands and knees and clean my kitchen floor. Really.)

But, I also want to add to my post here that there is just so so much false information floating around out there in cyberland and in some books about trigger points and tender points:

Tender points are just that, tender spots on your collar bone area, elbow area, hips, knees, ankles, etc. that a trained physician can palpatate and basically make you jerk away from the pain. Personally, i can only find the ones on my collarbone. My Rheumy can find the others instantly as can my chiropractor.

A trigger point is from chronic myofascial pain also called myofascial pain syndrome. A trigger point is the size of pea in a swollen, tight muscle that refers pain to another muscle. The trigger point (Trp) can be injected or massaged to release the trp and muscle.

If you have fibromyalgia, that doesn't necessarily mean that you have trigger points. But a lot of people with fibromyalgia don't understand that they DO have trps and so they don't seek treatment for them. They think they just have to live with the pain.

So, a tender point and a trigger point are 2 totally different things. I just had to comment on that because i hear the two interchanged so often.

I hope that more people will add to your list. I enjoyed reading yours. You did good, especially if you are in a fibro fog.

 
Old 10-29-2007, 05:09 AM   #11
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Re: How Do You Know If You Have Fibro?

hiya starr, your post made me giggle..the one about laying in the grass while hubby brought the car around..hehe

and, now for your information on the trigger points and tender points..I prob got that wrong but what I am trying to get as is I am very glad you posted that information because you are soooo right about folks gettting thoes two things mixed up. I didnt have at first the tender points..well I hurt all over so it was hard to say. but now I get the trigger thingys...my neck muscles this past week omg! felt like my bucket was wayyy to heavy for my neck and the back of my skull where it connects to the neck was very painfull and felt like a bad headache in the back of my head with shooting pain thru the top of the roof..hehe (it was akin to someone whacking you in the base of the skull with a baseball bat)..it was strange for something that hurts so bad..I want to see something that is causeing it. anyway when I looked in the mirror the muscles on both sides of my neck looked and felt like hard ropes. I still have trouble turning my head due to shooting pain. and last night the pain eased up and I was able to move my head in a slow way up and down, sided to side, and then I noticed a crunching grinding sound in my neck. great.

I want to say thank you again for also putting in the name of that book on this stuff..the ds one..I have heard really good things about that book and cant find it local yet. I want to try to get it as a bargin..tight wad here..LOL

I am here to tell you that you are very blessed to have doc's who knows what this fribro business is and are truly concerned about good treatment.

you are an asset to this site truly starr! and you spell good too..hehe
I look forward to reading more post by you.

~take care~

 
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Old 01-30-2011, 02:05 PM   #12
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Re: How Do You Know If You Have Fibro?

Quote:
Originally Posted by FLFLOWERGIRL View Post
I thought that you had to have 11 of the pressure points, I think that's what they call it. Is that true? I'm trying to figure out if my symptoms might be Fibro they have ruled out MS up to this point. Can anyone help me with this? Any information would be greatly appreciated. Thanks! FLFLOWERGIRL


Well, there are 18 pressure points. A good rhumaologist should be able to diagnose that for you. You can porbably pick them out yourself, but in order to get a good dx. you need to see the above doctor. I had every test known to man before I got my dx. They tested me for MS and Lupus.. Then reached the conclusion that it was Fibro. I've had it for many years and you have my sympathy. But, don't give up, there is reaseach being done.

 
Old 01-31-2011, 05:56 AM   #13
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Re: How Do You Know If You Have Fibro?

This is an excellent thread. I was diagnosed by a nurse practitioner back in 2004. I have had pain all of my adult life and lived on ibuprofen. I had 18 sore spots as I call them, when she touched them I likely left 18 dents in the ceiling tiles. I know them all now myself. I touch them and it leaves a hurt which is undeniable. OUCH. And I consider myself a tough girl..I am now seeing a different NP, she confirmed the diagnosis that my original NP did. She also said she doesn't need a rheumy to confirm, but if I intend to file for disability at some point I will have to cough up the money and go see a rheumatologist for a confirmed diagnosis. I feel like crap all the time, have learned to deal and manage and be a happy person. I choose to be happy, when it would be so easy to just crawl under the bed covers and cry, I choose not to do that. It was a very hard thing to do and I struggle with it every day. Also I was fired from a job for missing work due to fibro. And it was a job that I loved dearly, most of it anyway. Life is tough, and tougher for us as our illness does not show on the outside. People think its all in your head. Be strong sisters and brothers, life is good!! peace and love to all
Sandra

 
Old 04-20-2011, 11:59 AM   #14
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Well here is what I have learned about Fibromyalgia:

There are MANY health problems related to fibro. I personally have IBS, polycystic ovarian syndrome, gastro reflux disease, pain ALL over, depression & anxiety.

I have learned that most often those with fibro have had something traumatic happen in their past. Like everything, nutrition is VERY important. Fibromyalgia is considered an auto-immune disease & our bodies need extra vitamins & nutrients to backup our immune system. Caffeine irritates those already irritated nerves. Basically whats happening is the brain is communicating to our nerves, pain instead of pleasure. The brain isn't communicating correctly with your nerves & muscles. With fibromyalgia if your too tense or too relaxed you're going to hurt.

Remember as well EVERYONE is different. Some people are allergic to certain meds, some meds will work better for some people than for others. I have found for me personally for my general fibromyalgia I am on Cymbalta 90mg, Wellbutrin, & ultram. However I am finding some days these are not enough, particularly when I'm working a long day or what not. So at the moment they have given me flexiril & vicodin for the really bad moments. I was on motrin for 10 years & it just ripped my stomach & liver apart!!! I have seen a rheumatologist but because of my insurance there isn't a whole lot they can do. My MD however is sending me to a pain specialist.

I have learned so much by just googling fibromyalgia or if I'm looking for something specific say nutrition I will google "nutrition for fibromyalgia" & you'd be amazed at what you can find!

 
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