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Is this fibro related?

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Old 11-10-2007, 08:56 PM   #1
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fibrostuff HB User
Is this fibro related?

I have had fibro for many years.

Last March, I had calf pain that I thought was fibro, but went to the doctor when it lasted longer than my fibro pain normally had.

It took awhile, but eventually I was diagnosed with phlebitis- blood clots of the superficial veins of the legs.

The pain went away for a little while this summer, but came back in August and hasn't left. (I have posted this on the blood disorder page also to see if this is related to the clots, but my doctors think it might not be which is another long explanation).

-constant calf pain in both legs all day, all night
-burning, itching feeling in calves
-sometimes a localized pain spot in calf
-some muscle twitching in calf

Does anyone with fibro have constant, non-stop pain for months at a time?

Thank you for your time and help.

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Old 11-11-2007, 06:22 AM   #2
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Re: Is this fibro related?

I have Chronic Myofascial Pain, and I have had knots in every muscle it seems, that has had to be released with myofascial release with either trigger point injections and/or physical therapy. In my case, the nerves became entrapped and caused pain like what you describe. I hope you find a solution that will help you feel better soon.

Old 11-11-2007, 10:05 AM   #3
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Re: Is this fibro related?

Originally Posted by fibrostuff View Post
Does anyone with fibro have constant, non-stop pain for months at a time?
Patterns with FM will change over time. It starts with intermittent periods of flare which will progress over time to lasting longer in duration, occurring more frequently, eventually reaching the point where it is fixed and permanent. Avoiding stress, injury, trauma is critical to slow down the progression and hopefully avert total disability. If you have reached a fixed pain state and/or become bedridden it is a **WARNING ** sign that you MUST reallocate your energy resources and not push yourself beyond your body's capacity. You were able to do that with recovery and without severe consequence in early stages. In later stages you risk permanent disability.

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Old 11-11-2007, 12:42 PM   #4
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Re: Is this fibro related?

I feel so naive. Fibro is progressive? It was holding steady for a long time.

For 14 years I've had this rollercoaster of weird symptoms and days of pain, but nothing as painful as what started in March.

I can't think of any stress that triggered it. But it is a horrible pain. At some point it's just going to get worse and I won't be able to get out of bed?

Thanks to all for your help.

Old 11-11-2007, 12:54 PM   #5
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Re: Is this fibro related?

I think you need to keep trying to find out what is up with your really does not sound a fibro thing. Every diagnosis encompasses pages and pages of symptoms associated with that particular disease. People that have Fibro (like me)should follow up on all of these strange problems and for you I would seek another opinion. What you have/had is a very serious situation and I would not assume it is Fibro related....but it is a convenient diagnosis to just put symptoms into. And even if it is Fibro related you need relief from it and not just suffer from it. Keep looking for the right diagnosis.

Old 11-11-2007, 08:16 PM   #6
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Re: Is this fibro related?

So my leg pain doesn't sound fibro related?

I am seeing 2 doctors now, but since fibro has so many symptoms and doctors don't know all of them, or understand all of them, I thought I would come on this board to see if anyone had similar symptoms.

I am confused, since someone said fibro is progressive and it gets worse, with pain for longer periods of time, to the point that people are bed-ridden.

I would guess maybe the blood clots plus the fibro might be contributing to the pain. I wish I could find one other person with fibro and phlebitis to ask!

Thanks for all of your comments

Old 11-12-2007, 06:33 AM   #7
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Re: Is this fibro related?


I do not have the fibro and the blood clot, but I have a friend who has had blood clots in her calf, she said they are very painful. I know clots can be caused by inactivity, sitting for long periods, such as a car trip or plane ride, or imoblility after a surgery or I suppose if you are inactive due to fibro.

I hope you feel better soon,

Old 11-12-2007, 06:58 AM   #8
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Re: Is this fibro related?

you do not have to be bedridden later. be proactive, get into physical therapy. have any of your doctors mentioned restless leg syndrome to you? just a thought.
while fibro can seem to progress and get worse it is not the way of it. i was in a wheelchair and bedridden for most of a year. then i got my attitude in order and got doctors who were proactive. made all the difference. now i can kayak, hike, garden, do most anything i want. i respect the days i cannot and fill the days i can. i have had 4 strokes in the past 3 years. i am telling you from my own experience that you mind is your best friend now. believe in your ability to do this and you can.
do not give up on yourself. life with fibro can be fulfilling and fun. honest.

Old 11-12-2007, 12:56 PM   #9
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Re: Is this fibro related?

My doctors have said it is not restless leg syndrome, and I am still looking for other causes of the calf pain.

One of my doctors wants to chalk it up to fibro, and I don't want to in case it could be something else. But that is why I came on this board- to see if anyone else has non-stop calf pain. Doesn't sound like anyone has that is commenting on this board. That is very helpful to know.

I am very active, I work M-F, exercise, etc. But, I dont over-do it and I rest plenty.

So, I will continue my search for the cause.

Thanks to all for your help.

Old 11-13-2007, 08:40 AM   #10
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Re: Is this fibro related?

Hi there,

I have not been diagnosed with Fibro, but I am hanging in limbo with some sort of connective tissue disease. I have chronic pain, arthritis, and much more. I have also had 3 blood clots )superficial thrombophlebitis in my legs. It is very painful. I was put on long term antibiotics, and had doppler ultrasounds to make sure that the clots were fully dissolved. My legs were bruised, hot, swollen, lumpy and very painful. The antibiotics helped to get rid of the infection from the pooled blood clot. I would consider that maybe your blood flow in your legs is not adequate and that may be causing your continued pain???? I would ask about an ultrasound of the veins to check if you have not. Also, I have to wear hospital grade compression stockings. They are a pain in the butt, but they help prevent future clots, and they make my legs feel much better. I would try some and see if they help you. Take care, I hope you are feeling better soon.


Old 11-13-2007, 10:23 PM   #11
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Re: Is this fibro related?

Kel- thank you for the feedback. I have had several ultrasounds and the superficial clots are always there. I was told by a vascular specialist that that could just be the way it is. I thank you for the mention of how you were treated with antibiotics. I would like to believe the clots could go away.

The vascular specialist said the clots might always be there, and its the inflammation of the damaged vein that is the pain.

Did your pain last for several months at one time?

Thank you so much for your help

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