New Member - not sure what I'm doing anymore - Fibromyalgia Message Board

malicu · 11-18-2007, 08:52 PM

After much struggle with doctors and diagnosis over the years (migranes at 25, TMJ at 29, IBS at 30, and now FM at 34) except I really don't believe or accept the FM diagnosis.

I have always been active and in fairly good health. The symptoms of weight gain, anxiety, PMS, skin disorders, fevers, aches and pains, rashes, and a multitude of other wonkyness that started a year ago has driven me to the doctor, who sent me to a rheumatologist who says I have FM. I agree I have the trigger point thing I don't think I fit the profile of a person with FM. I asked to see an endocrinologist but MY DOCTOR REFUSED. I sincerely believe that my thyroid is under producing (2 year ago my level was 1.84, now is down to 1.3) and even with the small change is doing disruption to my body. I called the endocrinologist and convinced them to look at my paperwork, and also demanded a copy of my med file as I have caught calculation errors before in certain tests so I have learned to be cautious.

Treatment thus far - klonopin for sleeping which I HAD TO BEG FOR, referral to a sleep clinic. Myofacial (sp) release. Will be going for a CAT scan this week to investigate fat plaque in my brain (yes, I'm a bit of a fat head)

Can admit the klonopin is wonderful and resulted in a 70 percent improvement in level of pain and foggyness the next day. I will keep it around for the time being.

Suppliments - Fish Oil, Selenium, B12 complex, Acetyl-L-Carnitine, Malic Acic with Magnesium, a daily dose of Aleve, and a night time mix of passion flower and other natural relaxants from NOW.

My hair is starting to fall out (again, thyroid in nature I believe) but the doctor blew me off.

If anyone in the Grand Rapids, Michigan or surrounding areas has a good suggestion for a more cooperative M.D. I would be most grateful.

jam338 · 11-18-2007, 09:28 PM

The odd symptoms, apart from fat plaque in the brain, are consistent with fibromyalgia, including thyroid problem. Some people just don't want to accept it. Its understandable as it is a horrible condition to have. Ensure your doctor has completed the *rule out* tests for other disorders with Lyme, Lupus, thyroid, and standard blood panels. Then read as much as you can. Much info on this board and elsewhere online.

malicu · 11-19-2007, 09:18 PM

Why then will they not let me see an endocrinologist? They said "Since you have been diagnosed with FM, the Endo will not see you?!?" It seems like most people are working with Endos to manage FM - what is so different about me?

malicu · 11-19-2007, 09:20 PM

This make me want to cry. - such an understatement.

NY 1009 · 11-20-2007, 06:05 AM

I too agree you have all the symptoms of fibro. But I also agree with you that you should be able to be evaluated by an endo if you'd feel more comfortable.
can you go without being referred by a doctor?
I just read that people with FM are seen by rheumatologists because this condition effects the joints, muscles,etc.

I was wondering if my thyroid was being effected too, because i"m suffering with such strange rushes of furnace like heat radiating in my body at certain times. when I get excited, angered, or anything that triggers my emotions, I get this horrible heat attack like I would get when I hit surgical menopause and I wasn't taking any estrogen to stop it.
I feel as if maybe my non steroidal antiinflammatory might be intervening with my estrogen patch, but I asked my gyno who rx'd the estrogen and she said "no".
so what's causing these horrible, disruptive flushes?
does anyone here suffer too with these flushes?
I don't have anymore medical insurance coverage due to the fact I lost my job last months because of too much absenteism, so I can't do to a dr. to find out what's causing this.

I thought endocrine system. and now that I found this post, I'm really flabergasted to see someone post a reply that FM CAN effect our thyroid,

oh, also, all my pants are becoming so tight over night, but the scale is staying the same. I"m not gaining weight number wise, but everything feels so tight. can this happen with an under active thyroid?

All these strange things beginning to effect me and I have no answers to them.
I want to know so I can fix them.
who likes having to feel like ripping their clothes off while speaking to someone when they get those heat attackes?
My chest becomes soaking wet, my face, my back. it's horrible.

My older brother told me he's worried I have some form of cancer because he too suffered with this type of sweating before he was dx'd with hodgkins lymphoma many years ago. He scared me.
I thought people with cancer got only night sweats, not also during the day?

anyway have any answers for me?

Linda