Fibromyalgia can cause a vitamin D deficiency? - Fibromyalgia Message Board

NY 1009 · 11-20-2007, 05:51 AM

I was shocked when I read this in a pamplet that was sent to my house about fibromyalgia, because I was diagnosed within one week from having fibro that I was also vitamin D deficient, which can also make you ache all over miserably.
all your bones hurt and you feel horrible.

I thought the two were independent from one another and just want to warn others about this.
I wish someone had thought of it when i was suffering for so long without a diagnosis.

Fibro can cause havoc on the body which is another thing I am finding out being I have such a new diagnosis of fibro.
I've heard of it thru out the years, but never knew that I'd be afflicted with it and I had NO IDEA how much people suffer with this syndrome.

I see it's under the category of "autoimmune disorders". I didn't know it's considered an autoimmune problem.

I hope they are able to do more research on this syndrome being so many people are afflicted with it.
They really dont' have any specific blood tests for it yet, but they're working on it

Linda

fibrostuff · 11-21-2007, 07:23 PM

I just found out Im vitamin D deficient as well, and I've had fibro over 10 years.

sunny47 · 11-22-2007, 07:18 AM

Hi all -Thanks for the interesting posts - I have both FM and osteoporosis. I live in south Florida so I should be getting enough Vitamin D from the sun????? Also the calcium I take has D in it as well as my multivit. I have not been tested though. May ask my pcp in February when I see him. Would hate to think low levels were contributing to my problems.

Happy Thanksgiving to all.......sunny47

NY 1009 · 11-23-2007, 06:15 AM

Hi Fibrostuff and Sunny,
how long were you suffering before finding out you have vit. D deficiency too Fibrostuff? did you suggest the test for it, or did your dr? and what type of dr suggested it to you?
more dr's need to be aware of this.
the good think sunny is that you're already taking a supplement of D plus calcium with D in it.
if one is deficient of this vitamin, the good thing is it can be restored quickly in only a matter of 3 months or more.
so if you do request a test for it, your levels won't be low because you've been putting it in your body.
how long have you been supplementing it?
I too was having daily contact with sunshine and still wound up having it.
My body is still tan from being in the sun from the summer.
I don't think my deficiency was caused by lack of sunshine on my skin.
it's something else, which could be the fibromyalgia that caused it.

or it could be my kidneys being I've had problems with one of them last Christmas. I had nephrosis and hydrouter. how ever you spell it.
we still don't know the cause of that and we didn't see a stone or I may have passed it and just didn't see it because I wasn't looking for it.
either way, I have to go for a follow up to my rheumy dr to see how my levels are now that I've been supplementing and I can't go and get the blood work performed or even see my doctor because i dont have anymore medical insurance due to being fired.
I don't want to miss this appointment because i"m suffering badly with my body temperature core. I'm having horrible drenching day sweats as well as night and It's not caused by lack of estrogen due to menopause because i've been taking estrogen now since Oct.2005.
I"m wondering if it's the anti inflammatory medication he prescribed me for my pain? maybe it's a side effect of the med? or maybe it's interfering with my estrogen patch and i"m not getting the estrogen like before?
I asked a gyno and she said "no", the medication would not interfere with the estrogen.
so I"m really stuck wondering what's causing this horrible symptom. PLUS the medications and supplemtns are not working as well as it did when I first started them. All my previous symptoms are returning.

I just learned by doing research on fibro that people who have fibro can also have problems with their thyroid gland and thalamus gland.

I'm learning alot in such a short amount of time.
now if I can get this body healed up, I'd be much happier.

Linda

sunny47 · 11-23-2007, 09:13 AM

Hi lintek45 - I have been taking the calcium with vit D for years - ever since they started adding it to the calcium. But it is far less (only 400mg) then the recommemded doasge especially for fm and osteoporosis - so I could still be low, even with the sun. Maybe some people just do not absorb it from the sun... who knows with the wacky way our bodies work - or should I say don't work. Even if testing it doesn't show I am low I will know to continue as I am...right?????

sunny47