Please tell me what your fibro feels like - Fibromyalgia Message Board

mel1977 · 11-25-2007, 11:16 PM

I am constantly trying to figure out if I do have fibro. I know I have chronic pain, I know I have chronic fatigue, but I don't know if I have real fibro. If I don't take my ultram, I feel like I have the flu. That is the best way to describe my pain. I am tired and achy all over, mostly muscular.
I did see a rhuem nurse practitioner a while back and though I have many of the trigger point issues, she thought it was more musculo-skeletal related to some back issues I already have. They did a basic check on my thyroid and it was WNL. So, don't know. She wasn't an actual Doc, don't know if that matters. I am looking for help and suggestions that are from patient to patient. I'll ask the other questions later with my doctor.
Anyway, thank you so much for any help you can pass my way!

rosebuddy · 11-26-2007, 10:30 AM

Hi. My fibro feels like fatigue and achy like the flu. It also feels like deep muscle pain like someone punched me. Sometimes my skin has a burning sensation. Light burns and the sound hurts my ears and i am sensitive to cold and cold fronts trigger pain flares. The sound of my computer is about to drive me nuts. This means my central nervous system is jacked up and i have to get quiet and relaxed or i will flare. I also get brainfog which is where you forget your words or lose the end of your sentences before you have a chance to get them out and also have some confusion/spaceyness. I have difficulty sleeping. I either wake up during the night or wake up very early in the morning. I had 11 tenderpoints the last time i was checked. I can only find the ones on my collar bone area. When they are touched by the doctor, I about shoot through the ceiling. I have multiple trigger points in my back, buttocks, and abdomen which are painful. We are all a bit different in our types of fibro pain. Many of us have old spinal injuries. I had an old whiplash and then injured my hand and i think that is what set it off.

I suggest you have a tender point exam with a rheumy that has fibro patients. most of them do. Sometimes they will do an MRI to rule out MS and a lab test to rule out lupus and rheumatoid arthritis. If you have the tenderpoints, then you get to have fibro. My daughter has cfs and fms. So I kind of know how you feel. you can go through the posts here and see if you can relate. There are alot of them about pain and other symptoms.

I hope you are feeling better soon.

mel1977 · 11-26-2007, 08:10 PM

thank you

I have bad muscle knots all over my upper and mid-back. It seems fibro makes muscles sore to touch, yet I need deep massage to feel better. I think maybe those are from stress-I think I may just need to try the diagnosis again, see where it takes me this time.
Again, thank you.

lninohio · 11-27-2007, 07:09 AM

Hi,

My fibro is much like starr's the all over achyness, the deep burning pain, it knows no limits or boundaries in my body, I feel it in my neck, shoulders, hips, back, chest, elbows, legs, and lately my ankles seem to be giving me fits. The cold it like a blanket of pain. I am easily irritated by sounds. It is a cruel disease and I hope that you don't have to endure it.

I was just saying last night that it has been at least ten years since I have had a day without some sort of pain.... blah!

Bless You,

mel1977 · 11-27-2007, 02:25 PM

do you think I can have the achy flu like symptoms without the muscle tenderness????