I just dropped my breakfast all over the floor, stammered through a phone call where I forgot a bunch of words, forced myself into the shower but didn't even wash my hair because lifting my arms for that long is too hard today.
This has been my life for the past few years. Recently I was prescribed adderall for energy and mental clarity. I take small doses throughout the day because taking a large dose at once makes my muscles stiffen in my chest, making me worry that it's my heart or something. But I have to keep the adderall by my bed and take some with water when I wake up. I swallow it, wait 20 minutes or so and then I can actually move, even though I still feel weak beyond belief and as though a truck rolled over me.
My legs are always weak, and my arms remain too weak to hold on to anything for most of the morning. I feel my best around mid afternoon, where I get a few hours of feeling "better," but not nearly normal, definitely not awake, alert or energetic.
Nothing I've tried for fibro or cfs seems to make a difference, and it seems that every so often I feel much, much worse, and during my period I am also worse. I'm seeing a Lyme doctor in a few weeks, just taking a chance. I don't know what else to do anymore. I need to get back in the workforce soon, and it's not just that getting up early to be at work by 8 or 9 will be hard. It's simply not possible right now. My body does not work in the morning, and even at its best lately it's barely functional.
Do you find there are times of day when you feel much, much worse?
I have my worst pain and stiffness in the AM also. But I also was having a terrible time sleeping at night due to joint pain and overall aches. I was on a couple different drugs to help me sleep and I had a hard time in the AM after I took them. I am on one now that works pretty well.
I sleep like a rock. I am a little groggy in the AM but it fades as soon as I get my coffee. I have notice that when I sleep better I don't hurt as bad in the AM but it is still the toughest part of the day.
the first thing i do in the morning is walk. i have found for myself if i walk it out i feel alot better. (i also have arthritis) the mornings are the best time for me. clarity and energy are mine. thank you ambien and bendaryl. it is by late morning that i start to fade out.
i just knew i was weird. now i have proof.
Hi all, thanks for responding and sharing your experiences.
Kirstee, adderall is a stimulant made of a combination of amphetamine salts that is normally used to treat ADD/ADHD, but is becoming more commonly used to help people who suffer from fatigue and/or brain fog brought on by fibromyalgia, cfs, ms, etc.
I think I would really benefit from a sleep study but my doctors so far won't agree. I'm sure that even when I think I've slept through the night I haven't, and I've tried a million sleep aids but they all have the same effect: it's like they don't wear off. I am groggy and disoriented all the next day after taking them, even Ambien--which again leads me to believe I'm not sleeping well even with the aid of a sleep medication.
Well, here's to hoping 2008 is the year I find a way to feel better! Thanks again for your responses.
poet, tell your doctors you want the sleep study done for your peace of mind. i use that line always and get my way. i had a sleep study done. i recommend it. especially if sleep meds mess you up the next day. something is awry when you sleep. a study will show that. be persistant. after all this is your body, not the doctors. i also use the line, the stress of not knowing is exacerbating my fibro, so let's ease my mind and do "whatever" i want done. i am not pushy, just proactive in my health care and i demand my doctors be the same. i went thru 17 doctors to find my dear laura and the other 7 doctors who assist me in my journey. and it is my journey, not theirs. they and i know that.
i'm 38 and in the morning i feel 88 my hips and feet just kill. when i open my eyes i dread the next half hour feel like ive been hit by a bus, i was told the other day the reason my feet feel the way they do is because, when you sleep your brain pushes all the toxins as far away as it can from itself,sounded a far comment,who knows. your not alone, morning is the worst time for me too.
I've always been the black sheep...thought I outgrew that, but guess not. Anyway, my best time is in the morning. Not to say I don't still have weakness or other sx's. Mine hits harder as the day goes on. By afternoon I'm like a melting pot & by evening I'm done. I don't really have the stiffness either. I don't sleep at night because of hands going to sleep or legs, & need to readjust quite frequently. Have you tried lyrica? It is working for me. The pain isn't gone, but it is better than before. Take care & best of wishes.
I usually wake around 4-430 am and it takes me an hour or so to get feeling better. I leave for work by 530a. My doc prescribed me Elivil for sleep in 20 mg doses. He said the issue is with getting into stage 4 sleep. I wasn't and haddent in years. I took it for a few weeks and slept great and now sleep good without it. (it make me gain weight immediately and for me not worth it). I told him I fired Elivil so he is going to try something else. I have been usuing Ambien CR for years and he said it doesn't really get you in that deep of sleep. Who knows works ok for me and no weight gain.
OMG mental clarity I give up. I feel great, my arms tire like now and I rest them on the table as I type but I cannot remember anything short term. I cannot come up with simple words. My fingers are not finding the right letters when I type and I depend on that. I am messing up all over. I write everything down so I remember. Thank God for the replay mode on my computer too. Mine seems to be getting worse. But physically I feel great. I am steady all day until about 6pm then I am beat. I hit the bed with my baby at 8-830p.
I took Elavil too a few years ago and although I think I slept more soundly I felt so groggy all the next day, plus I immediately gained a bunch of weight--I'm talking 10 pounds after just a week of being on it. (Probably water, but still). Why does it seem like a side effect to a lot meds they prescribe for fibro is weight gain? As if we don't already feel bad enough!
I actually got my fibro dx based on a sleep study. Fibros have a hard time getting into that deep stage of sleep. It's called Alpha Wave something or other (who can remember). I was taking Lyrica to help not only with pain, but with sleep. It used to knock me out and keep me out, but I not only gained weight quickly, it stopped working on the pain and it stopped keeping me asleep. I used it for about a year. My neuro wanted to add Klonopin to the mix, but I am so tired of meds, so I declined.
Yeah!! Morning is my biggest dread of the day. I feel like I have been run over by a truck every morning. I don't even schedule any appointments until after noon each day because I know I can't get moving.
By mid afternoon I begin to feel human a bit.
My doctor wants me to have a sleep study which I will be scheduling.
Those of you that have had one, what did it show???
What is the purpose of the sleep studies? I think the doctors already know fms people have issues don't they? Mine doctors never recommended that. I have had sleep issues for years and years though I worked shift work for over 16 years so that didn't help.
tiredpoet, I don't know if it would help you, but for the last year I wasn't able to manange the stairs first thing in the morning - could barely stagger to the bathroom. A few months ago I got a memory foam contour pillow and the change is incredible. I can get out of bed on the first attempt most days, and I can almost always go straight down the stairs - it means I can spend an extra hour asleep that I used spend warming up my muscles. Because I'm in less pain in the morning, I'm finding all the rest is better in the morningtoo - less confused, less slurring and mixing up words. I wasn't convinced it was as simple as that until I stayed in my parents' house at Christmas and didn't bring the pillow. Mornings were hideous again, I'm 26 and I was less mobile than my 86 year old grand-uncle who was staying with us. So yeah, anyway, that might be worth a try if you can get a hold of one. Good luck!
I find I am really stiff and sore in the evening, although the morning is also hard....I wake up VERY groggy, and it takes awhile to feel limber up. When sitting for longer periods of time I find getting up to walk I am very stiff. Tonight, I have pain in my thighs, hands, feet and neck.... I am just coming off ( i think) of a flare up.
I haven't been properly diagnosed, but am waiting to see a FM specialist.