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Old 02-11-2008, 09:14 AM   #1
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Tambeth66 HB User
Unhappy New here need help Please

I am new here and need help. I was have fibromyalgia, chronic fatigue, depression, anxiety, painic attacks. I dont know what to do it keeps getting worse and worse. The pain is not leveling off or getting better, the doctor I saw a few years ago said it usually gets better or levels off and stops getting worse after a year or two..mine is getting worse. Most days I feel drained to point I dont want to get out of bed. My memory is getting worse. The depression and anxiety is so bad I dont get out of house unless I have to. I have such a fear of driving that Im starting to feel like I am going to black out and just sit and sob in traffic. I feel so useless to my family.

I have very few friends..some left because they didnt beleive in fibro. and I even overheard a couple of people I thought were very good friends talking and laughing about me and my "fake" illness. They said it was diagnosis a doctor uses for someone lazy that they cant find anything "real" wrong with. I have isolated myself and spend most days crying. I had to quit job because of the pain and anxietys. I cant find a good doctor to hel that seems knowledgeable about fibro. the fear of driving keeps me from going but a certain "safe" feeling miles from my home to find a doctor..,My husband is tired of it all and doesnt understand why I cant just "change"

 
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Old 02-11-2008, 12:45 PM   #2
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mista0316 HB User
Smile Re: New here need help Please

Quote:
Originally Posted by Tambeth66 View Post
I am new here and need help. I was have fibromyalgia, chronic fatigue, depression, anxiety, painic attacks. I dont know what to do it keeps getting worse and worse. The pain is not leveling off or getting better, the doctor I saw a few years ago said it usually gets better or levels off and stops getting worse after a year or two..mine is getting worse. Most days I feel drained to point I dont want to get out of bed. My memory is getting worse. The depression and anxiety is so bad I dont get out of house unless I have to. I have such a fear of driving that Im starting to feel like I am going to black out and just sit and sob in traffic. I feel so useless to my family.

I have very few friends..some left because they didnt beleive in fibro. and I even overheard a couple of people I thought were very good friends talking and laughing about me and my "fake" illness. They said it was diagnosis a doctor uses for someone lazy that they cant find anything "real" wrong with. I have isolated myself and spend most days crying. I had to quit job because of the pain and anxietys. I cant find a good doctor to hel that seems knowledgeable about fibro. the fear of driving keeps me from going but a certain "safe" feeling miles from my home to find a doctor..,My husband is tired of it all and doesnt understand why I cant just "change"


Hello, I am also new here. I have been diagnosed with fibro 3 yrs ago and it's very hard to get anyone to understand what your feeling. There's no proof to show that you hurt. The only way I got my husband to understand it/me more was when I had my next DR's appointment. I had him come with me. The doctor explained and answered all of his questions. Now, he helps me more and I have also started seeing a psycologist to help me to deal with the pain. I also go to physiotheripy everyday (paid by my employer). My pain started from an accident form my work place. Then, it turned into Fibro. I have been dealing with the pain for 3 years. I am currently going through a flare up right now. It's been 2 weeks and it's not getting better. I can honestly say that the visit to my doctor with my husband & physo, and seeing a psycologist has made a big difference.

I hope this helps and I wish you well
M

Last edited by mista0316; 02-11-2008 at 12:48 PM.

 
Old 02-11-2008, 03:37 PM   #3
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sweetjerseygirl HB User
Re: New here need help Please

Quote:
Originally Posted by Tambeth66 View Post
I am new here and need help. I was have fibromyalgia, chronic fatigue, depression, anxiety, painic attacks. I dont know what to do it keeps getting worse and worse. The pain is not leveling off or getting better, the doctor I saw a few years ago said it usually gets better or levels off and stops getting worse after a year or two..mine is getting worse. Most days I feel drained to point I dont want to get out of bed. My memory is getting worse. The depression and anxiety is so bad I dont get out of house unless I have to. I have such a fear of driving that Im starting to feel like I am going to black out and just sit and sob in traffic. I feel so useless to my family.

I have very few friends..some left because they didnt beleive in fibro. and I even overheard a couple of people I thought were very good friends talking and laughing about me and my "fake" illness. They said it was diagnosis a doctor uses for someone lazy that they cant find anything "real" wrong with. I have isolated myself and spend most days crying. I had to quit job because of the pain and anxietys. I cant find a good doctor to hel that seems knowledgeable about fibro. the fear of driving keeps me from going but a certain "safe" feeling miles from my home to find a doctor..,My husband is tired of it all and doesnt understand why I cant just "change"
Please dont give up on yourself, It took almost ten years of being treated for so many different things, tons of tests, never getting relief, the doctor scratching his head. My best friend once told me, she believed something was wrong but it just sounded so unbelievable that the doctors coundnt find anything. I knew something was wrong so i didnt give up. It was finally a rumortoligist and he didnt convince me that i really had this condition at first.

After i did a lot of research myself on fibro, it was like a big puzzle came together for me, now the trick is finding out what will work for you and what will give you the biggest relief. Not everything that has been prescribed for me has worked, so that was my homework to discover what worked the best. Not easy, makes you want to give up also but I realize i just have to help myself. I see some people on here have had meds work and then stop working. I can only discribe this conditon as being very frustrating I know my husband is tired of it also, i was so mad at him last night, i was the one who wrote the "no compasion from spouse"


The frustration that comes along with this condition is stressful for everyone but like you i started feeling the anxiety of it, the crying lately, depression,which i hate that word but must admit it, whew, i finally said it . Everything you have stated i have been going through, i lost my job and my insurance recently, so i have not had anything meds in awhile but i realized that this is too much on me and my family, i was screaming at the top of my lungs the other night, thats enough for me, so im getting to the doctor and im getting some meds.

Like me, right now you probably need some relief, than you can get some your mental stability back because i realize that im losing more and more everyday. For some reason after reading these message boards, it made me want to get things back in perspective. I have to be #1 and i have to take care of myself or im no good to anyone.... One thing at a time, this will be my first new step....... Same thing, memorys getting worse, pains been worse, fear, wanting to stay home most of the time because of fear, dont want to drag no one's head, etc, etc, just a lot of bad stuff.

I went on this message board very late last night after finding it by accident and after crying all day i was at my wits end. Now i have some relief because of it and its mental relief, i have already written on about five threads and it feels so good to talk about it, but i already feel better getting stuff off my chest, like talking about it and realizing im not the only one who feels like they have let their family down and guilty about everything and why arent i better and why am i suffering like this and nothings helping me at the moment but im one who believes everything happens for a reason and looked what happened! I found all of you out there.......

I cant find a good doctor who really knows about this stuff in my area either obviously after suffering for all this time, and i cant afford to go back to the rumortoligist right now, way too expensive besides the costs of the prescriptions, so im going to any doctor to get my relief meds than i can look for one who specializes in fibro, like i said one step at a time. im Putting this back into my own court. I feel like i have had enough and im the only one that can help get it back into control.

Dont be so hard on yourself, im sure many people with this condition have had their golden moments, like you and i are having right now. So hang in there and remember we are all here for you now take care of yourself and let us help with whatever else you may need

One more thing, people who laugh behind your back and call this a lazy deal are no friends at all, they should have at least went on the computer and looked it up before making judgements on you and dont be shy to tell them so or dont be shy to tell them to look on this message board. I have never ever been a lazy person in my life, as a matter of fact, i had so much energy you couldnt slow me down, i was schocked when my life suddenly took this turn and i couldnt understand what happened to me. I kept trying to be that person again but it wasnt happening and it took me a long time to understand why. Now just doing a load of laundry and cooking knocks the crap out of me. This is by far a fake illness and i hope they never have to go through it but sometimes the almighty has other plans for us and what comes around goes around. Dont let their insensitivty get to you, pick yourself up by your bootstraps and move as forward as you can with your new firbro friends....... Hope i made you laugh a little

 
Old 02-11-2008, 05:28 PM   #4
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Tambeth66 HB User
Re: New here need help Please

Thank you both so very much for your replies. It helps alot knowing I am not alone. I feel so badly for not being able to work right now and know I need to get a job there isnt a day hardly goes by that my husband doesnt remind me im not working...we need money..my meds cost too much etc. etc. the biggest thing right now is the fears and anxietys. i feel like im useless im so terrified to drive i have nightmares my husband pushes me to drive on interstate for errands and i feel like running away im so afraid of driving...everything seems so hopeless right now..but again i thank you from the bottom of my heart for the replys and knowing im not alone

 
Old 02-12-2008, 06:58 AM   #5
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Backinthesaddle HB User
Re: New here need help Please

Mista my fms also came from a work related injury (cervical spine). Did your job have a issue or should I say workmans comp with fms coming from your injury?

I was in the middle of a medical retirement which I wish I would have completed by now. However, as soon as I started the paperwork I went into remission so to speak. I stopped the process. So I know it will happen. I am waiting to see if I flare again bad again and will try next time if it gets worse. It is just amazing how I went through years of solid pain to go into a lesser then bad (not free but not as bad) pain. I swear I do not understand this FMS stuff.

I finally got that book on it and it is so good. So get as much infor as possible and know u will get relief.

 
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