Tired of it!!!! - Fibromyalgia Message Board

gammaw65 · 02-19-2008, 07:17 PM

I m new to this board, or to any board for that matter. I was diagnosed with fms, by a rheumy, about 6 years ago. Five years agoI had major back surgery which left me in a lot of pain. It is getting harder now to distinguish which pain is fms and which pain is caused by my lower back. My neuro-surgeon sent me to a pain management dr. who has me on a small dose of Lyrica and 4mg zanaflex at night to help me sleep and pt. I just went today to a new rheumy (highly recommended by a fms sufferer) He comes to the conclusion that my fms is secondary to osteoarthritis!! He gives me an anti inflamatory gets 7 vials of blood and xrays of parts of my body and says to call him if it doesent work for me!!! He didnot want to hear about the brain fog, confusion, memory, etc. He thinks that my memory loss and forgetfulness is caused by my antidepressants and suggested that I get with my pcp to get off them!!!! He also claims my periods of itching has nothing to do with fms.

This same doc works wonders with my sister but apparently I just got brushed off! The problem is, there isnt many more i can try and it seems my fms is getting worse.

Thanks for listening,ya'll. I always read the updates here but never engage. I'll try to change that!!!!

Hope4All · 02-19-2008, 09:14 PM

Quote:

Originally Posted by gammaw65

I m new to this board, or to any board for that matter. I was diagnosed with fms, by a rheumy, about 6 years ago. Five years agoI had major back surgery which left me in a lot of pain. It is getting harder now to distinguish which pain is fms and which pain is caused by my lower back. My neuro-surgeon sent me to a pain management dr. who has me on a small dose of Lyrica and 4mg zanaflex at night to help me sleep and pt. I just went today to a new rheumy (highly recommended by a fms sufferer) He comes to the conclusion that my fms is secondary to osteoarthritis!! He gives me an anti inflamatory gets 7 vials of blood and xrays of parts of my body and says to call him if it doesent work for me!!! He didnot want to hear about the brain fog, confusion, memory, etc. He thinks that my memory loss and forgetfulness is caused by my antidepressants and suggested that I get with my pcp to get off them!!!! He also claims my periods of itching has nothing to do with fms.

This same doc works wonders with my sister but apparently I just got brushed off! The problem is, there isnt many more i can try and it seems my fms is getting worse.

Thanks for listening,ya'll. I always read the updates here but never engage. I'll try to change that!!!!

I agree with you.....Im tired of it too!!!!!!!!!!!!

Ugh I hate rheumatologists! Mine was an idiot, he didn't want to hear about anything like the memory problems or the dizziness! He wanted to hear about the pain and wanted to fix it with corizone shots! Umm there were places in my body that hurt that he couldn't shoot up!

I've been dx'd for 8yrs now and I was doing really well until 2yrs ago. Now it seems I have ZERO breaks from the pain. I use to have mostly pain free times with minor flare ups. Im having a real hard time adjusting to chronic pain that seems to be set up in my body for good.

Your not alone.

Hope

music47 · 02-19-2008, 09:31 PM

Gamma

I know what you mean. Perhaps it would help to find another doctor. I have arthritis and fibro too. I take pain meds and Elavil at night to help me sleep but I still have pain.

My prayers are with you.
Hugs Nadine

1SwtHunnie · 02-19-2008, 09:48 PM

I beg you to please read everything you can about Lyrica's side effects. I took it until today. As with some drugs, it can cause side effects that mask other problems. Also please get your eyes examined by your eye doctor! This is very important! I found out today that one of the major side effects is deteriorated, blurry vision. This is permanent! It doesn't get better when you stop taking it. I only took it for 5 months. I also have to quit taking my antidepressants with the Lyrica about a month ago because I started having seizures!

Grapedy · 02-20-2008, 02:34 PM

Try looking for an internist. FM is a disease that is usually best treated with a combination of medications and lifestyle change. Internists are uniquely suited for this and treatment of disease processes with medication and lifestyle changes is their specialty.

A really good internist is literally worth his weight in gold. If I ever move away from my dad, who is my doc and an internist, I don't know what I'll do! No one else will live up to the high standard of medical care that he's set for me.