relationships and fibro - Fibromyalgia Message Board

bluelakelady · 02-21-2008, 08:15 AM

greetings dear fibro family,
this thread is for those of you who are having a hard time in their relationships. fibro is hard on everyone and often ignored or beaten down by those who are fearful of it.
while many of us have good support systems at home and within our friends, many of us do not. this thread is for you. allow us all to be your support system. we know how. we live it with you.
peace,
bluelakelady

Glojer · 02-21-2008, 02:01 PM

Blue you are always thinking of others, this will be a great place for everyone who needs a kind word to come and let off their frustrations.

Glojer

BeHappy2 · 02-21-2008, 09:37 PM

Thanks Blue, This will be a perfect post for many.
For myself i have a understanding spouce and immediate family.
For distant family i don't begin to try and explain. I have learned i don't need to explain why i'm not attending a gathering of family i don't see often. Such as Reunions and gatherings. I've tried explaining Fibro to who i thought were close friends but when you get a strange look in return, it's just best to keep quiet. I assume there are others here who have experienced the same.
Thanks for this thread Blue, hopefully many can get out their frustrations here, where many of us are here to listen.

BeHappy2

christine07 · 02-22-2008, 05:02 AM

Thanks for starting this thread. Although my symptoms started 5 years ago, I just received my diagnosis of FMS last summer. I, too, have a very supportive spouse. But I'm currently trying to get my immediate family to understand the magnitude of my daily struggles. I finally reached out to my mother recently and she's reading one of my books that explains the multitude of symptoms this condition comes with. My siblings, on the other hand, just keep trying to give me solutions. How do you explain to those close to you the sacrifices that you are forced to make on a daily basis?

Simple things like needing food from the grocery store but not being able to go because I can't lift my 5 and 3 year olds into the carriage and push them around without paying for it for the rest of the day? Or not being able to hang out on the front steps with neighbors for an extended period of time because sitting on hard surfaces makes my legs flare up? Thanks for listening. Just needed to vent.

Take care to all of you-

bluelakelady · 02-22-2008, 07:18 AM

hi christine,
when you go to the store ask the people there to lift your kids for you. they will. as for the front stoop chats, when your fanny hurts stand up and say, this has been a blast, time to take my personal pain in the arse inside. night friends. laughter smooths over the moment.
sounds like your siblings want you well and in their way they want to bring you the magic that will do just that. my son is the same. bless his sweet heart. i am glad your mom is reading.
remember no one is going to really understand. they can only gift us with compassion, kindness and a helping hand.
hi behappy,
ah i know that look well. it used to confuse me as to what they were thinking. i realize now it is only that there is no understanding fibro. i sure don't. the main reason i don't talk about it to others is it really gets boring for me. i come here and chat with you all, listen, talk too much, and i enjoy it.
this is one of my sanctuaries, as is the mountain. the rest of the world is my play ground. a place to enjoy as much as possible.
peace,
blue
ps. thanks glojer. one of our sisters got me thinking in another thread. she inspired the start of this. not me.