Does Anyone Get Nerves That Feel Like They Are Crawling? - Fibromyalgia Message Board

builder · 02-23-2008, 04:39 AM

This feeling of nerves crawling under my skin is worse than being in pain. It is terrible. Kind of a feeling when you have to much caffine combined with a restless leg syndrome feeling. I can't take Neurotin. Does anyone get this feeling and what can I do about it.

gorgee · 02-23-2008, 05:43 AM

Over the week, in my lower legs, I have had this pain so bad that I cannot stop moving my legs. They are throbbing, with pain, and I try to keep them moving to stop the pain. My mother used to call them jumpy legs. I have to go to bed and lay down flat. I also take flexeril or valium and that seems to help a lot. Good luck, and I hope you feel better.

I have not been diagnosed with fibromyalgia yet, but can you tell me what the process was for you to get diagnosed? Thank you so much

builder · 02-23-2008, 06:41 AM

The process is lame in my opinion. The do a pressure point test. I went to two of the top specialists in Chicago. This according to a magazine that comes out every year naming the best doctors. Both did the pressure point test. One said I had Fibro the other said I didn't. I am sure I have it according to all my symptoms. I am so glad I found this board because others are going thru the same pain I am. I've been to doctors who wanted to send me to a shrink because they thought my chronic pain was depression or all in my head because all my blood tests come back normal.

robbielee129 · 02-23-2008, 07:04 AM

Quote:

Originally Posted by rstarre

The process is lame in my opinion. The do a pressure point test. I went to two of the top specialists in Chicago. This according to a magazine that comes out every year naming the best doctors. Both did the pressure point test. One said I had Fibro the other said I didn't. I am sure I have it according to all my symptoms. I am so glad I found this board because others are going thru the same pain I am. I've been to doctors who wanted to send me to a shrink because they thought my chronic pain was depression or all in my head because all my blood tests come back normal.

Yes, I have the nerve jumpies too. Especially if I don't lay down for a while in the afternoon. I liken it to being on the bed when the dog is scratching his ears. It's VERY annoying. And you are right about the lame process of getting diagnosed. That's the most frustrating feeling I've ever had. And male or female, the doctors tell you the same things at first. First I was diagnosed with RNDS - Reflex Nerve Dystrophy Syndrome. I had tubes put in my spine and was injected with Alpha and Beta blockers. What a crock! Then it was RLS - Restless Leg Syndrome. The doctors (all 6 of them) tested for lymes disease, lupus, multiple sclerosis, just to name a few. Then came the pressure point tests. PAINFUL!
Now I've been to an acupuncturist and that's releived the jumping nerves to a point. I still need to rest my legs for at least an hour in the afternoon, or I can't sleep at night.
Robin

Grapedy · 02-23-2008, 06:02 PM

Much of the lame FM diagnosis process is still tied to the fact that up to 60% of this country's doctors do NOT believe it's a real condition. If you put a whole bunch of rheumatologists in a big room and do a "Is fibromyalgia real?" poll, only 4 out of 10 will say absolutely yes. 2 out of 10 will say maybe, and at least 3 out of 10 will say it's a bunch of hooey and that it's all in our heads.

Polling internists would be about the same, maybe slightly better. Polling family medicine doctors would give worse results. Pediatricians or GYN's? Forget about it. 7 out of 10 would say it's not real. My GYN is one of 2 in town that recognizes it as a real disease, and 1 of them only recognizes it because she has it too.