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Old 03-07-2008, 06:09 AM   #1
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new symptom, restless legs

Good morning, I have a new symptom and it is keeping me up. Somedays and nights are better than others, but I can't keep having this bother me so. I had restess leg syndrome when I was pregnant both times, but I have never had it otherwise, except now.

I have read that this is another symptom with fibromyalgia, and the medications I am prescribed from my Dr do not help. Recently, I have been up at 11 p, in pain, close to crying, and I have taken my medications, and the pain and jumpiness is unbearable still. I have also read that clonazepam works really well for restless leg syndrome, regulating GABA, helping with anxiety that keeps me up and getting solid sleep.

My question is I have done some research and I would like to try this. Is it appropriate to ask my doctor to try this medication?

Thanks for your thoughts,

Kass

 
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Old 03-07-2008, 09:13 AM   #2
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Re: new symptom, restless legs

Kass, restless legs can happen in your arms, too. I've had it in both, but nothing like my father-in-law; flexeril is the only thing that I tried that helped mine. I remember sitting in his hospital room while my f-in-l was recovering from back surgery and just praying the entire night that the jumping would stop and let him sleep. (The docs didn't get it that the sedentary recovery was making it worse and would not increase his dose.) I just watched his legs work all night and it broke my heart into. The next day I had my m-in-l bring me the meds she had at home and I gave him more without any doc approval and told them right to their faces I was doing it. Demon legs.

Requip kept his under control for quite some time... first one pill, then three. Now he uses mirapex three times a day and it is completely under control. At one point, this giant of a man looked at my husband and said, "I'd rather be dead than live like this." My husband tenderly told him stories of when he would not let them give up. It was a sweet moment, but if the giant caves with rls, you know it's a demon.

 
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Old 03-07-2008, 03:28 PM   #3
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Re: new symptom, restless legs

baserockermom, I had appt. and dr said he would show me exercises next appt on Tuesday. He does not like side effects from meds for rls. Do you know what is the usual dose for flexeril? Is it always 10mg?

Kass

 
Old 03-07-2008, 04:38 PM   #4
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Re: new symptom, restless legs

I've taken more than 10mg before. Requip and Mirapex do make my f-in-l sleepy. You get two heavy cans and lift them from your shoulders up to the sky, from your hips out to across from your shoulders, etc., and that can help some too. I know the weights help; you can take your boys on airplane rides with your feet and that might work the calves--there's a machine at our clubhouse that does better, just winging it here. I wish you sleep tonight. Heating pad and massage are what I read for my f-in-l. Take care!

 
Old 03-07-2008, 06:18 PM   #5
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Re: new symptom, restless legs

Hi folks, I know this sounds crazy and too simple, but AmbienCR
put a stop to my restless legs. My leg movements kept me and
my husband awake. I know I sing the praises of Ambien too often,
but it's been a miracle for me. I wish us all a good nights sleep.
Bilij

 
Old 03-07-2008, 06:33 PM   #6
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fibrostuff HB User
Re: new symptom, restless legs

Describe the pain you are having with the restless legs.

 
Old 03-08-2008, 10:55 AM   #7
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Re: new symptom, restless legs

Bilij, sing on, we all need to know what to try next!

 
Old 03-08-2008, 11:38 AM   #8
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Re: new symptom, restless legs

I do hope that you have thought of switching doctors ...how can he just lump everyone into a category without giving a medication a try. There is nothing worse that RLS when you just want to sleep. There are a few good ones on the market and then there are other things that people respond to and as you can see EVERYONE responds differently to different things. My husband never noticed any side effects of Mirapex so I'm not sure I would go to a doctor that isn't willing to let his patients have the experience themselves. . I had a doctor call me on the phone after I had seen him with at the time a severe thyroid storm which caused my whole body system to go goofy and I developed RLS for a short time...this doctor called to say he too got RLS when he was drunk...(I don't drink) so I'm like what the heck kind of doctor IS THIS! ...I never ever went back to that nut case! RLS meds had not been discovered so the new doctor put me on Valium at bedtime and that worked quite well actually. Good luck.

 
Old 03-08-2008, 12:52 PM   #9
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Re: new symptom, restless legs

My husband had RLS so bad he looked like he was running. Finally, after trying valium and other things Requip settled him down. He also takes Ambien. Until you've had restless legs you just can't describe the feeling. I also had restless arms and legs. That's the first time I've heard that anyone else had it. It was terrible. I didn't suffer like my husband but did every once in awhile. The funny thing is I haven't experienced it at all since taking Lyrica. Maybe it's helped that too.

 
Old 03-10-2008, 03:21 PM   #10
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Re: new symptom, restless legs

This my first posting -- I had RLS everynight since September 2007 - doctor started me on Ferrous Sulfate 325 mgs; took for 3 nights; symptoms completely disappeared and have not returned for a week; Iron levels were not low, but Iron helped anyway.

 
Old 03-11-2008, 01:45 PM   #11
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Re: new symptom, restless legs

Right now I am experiencing both lower legs and lower arms aching, throbbing and the restless feeling. It is 3:30 or so in the afternoon! I am so frustrated as to what I should do. I just made plans to go to this cooking show tonight, and I never do anything for myself! I feel horrible. Any suggestions on how I should treat this?

I want to feel good, why am I at 31, is it something everyday? I am wrapped up in my heated throw, thinking about what medications I should take to try and make it through the evening. It is from 6:30 to 9:00.

Earlier in the posts somebody said it can happen to your arms too. I had always had it in my legs, and now my arms! UHGGG! I have got to mention this on Thursday, but how do I talk about it and ask for something if he wants to show me exercises? I have 5mg valium, but I read that klonopin is good for RLS and helping maintaining GABA receptors. Has anybody ever tried klonopin for Restless legs and ARMS syndrome?

Thank you for helping me,

Kass

 
Old 03-13-2008, 06:58 AM   #12
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Re: new symptom, restless legs

Kass, I'm the one who gets it in the arms. Do you drink much caffeine or take sudafed-like meds? I drink a ton of caffeine in the morning, but never later, and I learned the hard way that I can't take sudafed--and it used to help so much--but it was like caffeine with the rls symptoms for me.

 
Old 03-13-2008, 07:02 AM   #13
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Re: new symptom, restless legs

Baserockermom,just wanted to say Hello,and hope your feeling good today.Hope you have a great day. marywoo

 
Old 03-13-2008, 09:09 AM   #14
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Re: new symptom, restless legs

baserockermom, I drink about 1-2 cups of coffee in the morning, and maybe 2 times a week I might have a cup of tea or coffee in the afternoon. Usually my rls is in the afternoon after I have walked on the treadmill in the morning, or I have over done it, or had a hard emotional day and then at night is when it is bad. My mother had rls. So should I try and not drink caffeine even in the morning? At this point in my life I am ready to do anything to help myself feel better.

thanks
kass

 
Old 03-13-2008, 09:32 AM   #15
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Re: new symptom, restless legs

Thanks Marywoo . I'm doing well... ready to try out the trigger point massage today!

Dang, Kass, I'd hate to tell anyone to give up their coffee in the morning... especially folks like us! But that's what the specialist at Emory told my f-in-l. And stress always made his worse, always! I don't have it like y'all, as bad as y'all, but I can remember taking him to doctors, the doctors being late, and his temper starting to boil. The RLS on the trip home was awful. We took him to Johns Hopkins for a different thing and after all the expense of getting him up there and my executive husband taking 9 days off work, his RLS totally screwed the entire test. No one figured in the stress and sedentary trip in his meds and so the RLS was out of control again. For the test, he had to be still--nothing could keep him still. My kids were starting school the week they scheduled him so I couldn't be there with him and my husband didn't know how to deal with his defiance. RLS is always worst at night, for him, for me, and for all the folks they've researched. Requip/Mirapex will help!

The best doc I know of in the nation for RLS is Dr. David Rye at Emory in Atlanta. He spent an hour and a half with my f-in-l and was extremely thorough. He has it himself.

 
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