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Old 04-03-2008, 01:38 PM   #16
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Re: Internal shaking?

I finally got my cortisol test today. I do have adrenal insufficiency. On the addison's board they suggested an ACTH test to see if it is primary or secondary. I've also read that an ACTH stim test can assist with the diagnosis.


Lost Robin- My hyprepigmentation is around my mouth and under my arm. I also have an all over tan that I would love if I didn't know it was indicative of a serious disease. Ask your rheumie to give you the 24 hr or the stim test. Always ask for copies of blood work. I can't stress this enough, no matter what the condition.

 
Old 04-03-2008, 06:37 PM   #17
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Re: Internal shaking?

What happens at the first visit to the neurologist? I just got my first appointment and it is 4 weeks from now. That is the earliest they could get me in. I am really scared. What do they do for tests? I am afraid of what they may find. This is all new for me. All I know is that I am sick of the muscle twitches and strange sensations going on in my body. I can't distinguish this from perimenopause symptoms and my hypothyroid symptoms. I am mad at my doc too because I want my thyroid checked again because I think it could be out of whack and because it was fine just 4 month ago she says it is too soon to test. Any help for me on these questions would be appreciated. Thanks!

 
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Old 04-03-2008, 09:55 PM   #18
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Re: Internal shaking?

Ted, years before I really exhibited chronic fm I had Graves disease and they burned it out twice (overkill) and I went into major hypo thyroidism. It has taken about 14 years to get it livable and then bam fibro, ddd, brain injury, myofacial, and on and on. I find if my thryoid is not almost completely undercontrol, I end up with twitching muscles, increased fibro pain, and major lethargy and depression that exhibits as procastination in most parts of my life. Definitely get your numbers checked or the neurologist will order it anyway. At least if you walk in with a recent blood screen from your gp, then he can take that and work on what he feels is wrong from there. It will save you a diagnosis or treatment time perhaps? Also, everything I have done through my neuro is exhorbitantly higher than things the gp can do. I have insurance, but it helps to save anyway! Good luck to you!
Mim Gregg

 
Old 04-04-2008, 07:08 AM   #19
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Re: Internal shaking?

Quote:
Originally Posted by rachel4123 View Post
bluelakelady,
Hi, have you been dx'ed with FM? I have these internal shakes too. I know it's not low blood sugar, or low BP since i have had every test in the book. I am currently undergoing testing to rule out MS and so far the tests have been normal. I have wondered if I could have FM, but I don't get a lot of pain. Only odd neurological sensations like restless legs, weakness and dizziness/imbalance. It stinks.
The internal shakes feel like too much caffiene and I see my hands shake too.
DO any of you have shakiness when you try to flex muscles?
hi rach,
sorry to get lost in this thread. yes i have fm. i test once a year for ms and lupus. my blood sugars are perfect. my bp is perfect. heck my doc says my blood tests are healthier than any of her other patients.
i also can see the vibrations of my hands and my head if i go to the mirror. it's trippy. just don't fight it. relax, breath and allow it to happen.
again i am sorry to take so long to get back to you. can't keep up.
peace,
bluelakelady

 
Old 04-05-2008, 02:12 AM   #20
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Re: Internal shaking?

Hi there- it makes me so mad when we are treated like that by Specialists-we are not seeing them for a joke! i have had treatment like that- we sure as hell have better things we would be doing with our lives than wasting time at another doctor if we weren't feeling like crap eh??!!- and hoping for constructive answers...

 
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Old 04-05-2008, 02:04 PM   #21
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Re: Internal shaking?

Mommasgotfive - I'm sorry that this fm gives me brain fog that makes it so difficult for me to process info, etc. I just want to make sure I understand what you're saying.

What does the ACTH stim test look for? Does this test help diagnose Addisons or adrenal insufficiency or both or something else?

Are Addisons and adrenal insufficiency one in the same? If not, does adrenal insufficiency definitely indicate Addisons?

SherryRenee0423 - ANY doctor who either obviously has no idea what they're talking about AND/OR would treat me with such disrespect as your neuro did would NOT be my doctor for much longer. Don't let these arrogant docs intimidate you one bit. They're just people like you and me and the rest of the world. Remember, we all put our pants on one leg at a time AND there are good, bad and everything in between in every walk of life. Unfortunately, that includes medical doctors as well. Yeah, I've heard that bit many times, too, and wound up very disappointed. You know, "he/she is supposed to be "one of the best ". Yeah, right ... according to who? Dump that lousy doc and find yourself one who will actually listen to you and treat you with respect!

Wishing everyone a better day!

 
Old 04-16-2008, 07:14 PM   #22
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Re: Internal shaking?

Quote:
Originally Posted by mommasgotfive View Post
I finally got my cortisol test today. I do have adrenal insufficiency. On the addison's board they suggested an ACTH test to see if it is primary or secondary. I've also read that an ACTH stim test can assist with the diagnosis.


Lost Robin- My hyprepigmentation is around my mouth and under my arm. I also have an all over tan that I would love if I didn't know it was indicative of a serious disease. Ask your rheumie to give you the 24 hr or the stim test. Always ask for copies of blood work. I can't stress this enough, no matter what the condition.

 
Old 04-16-2008, 07:17 PM   #23
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Re: Internal shaking?

Can you tell me more about the cortisol stuff? I have fibro- had a bad flareup 4 years ago and that shaking started. Long story short I thought it was all anxiety but 4 years later and on drugs for depression/anxiety and it STILL has not gone away. I DON'T feel anxious anymore. I also get the hyper pigmentation on my legs that someone mentioned earlier.

 
Old 04-17-2008, 05:00 AM   #24
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Re: Internal shaking?

Sherryrenee, that neurologist--the best in the area -- ought to inspire you to start a hall of fame for outrageously neglectful treatment out of a doc. Shame we couldn't have all gone with you to help her understand! I had a doc treat me like that once and I handed him the copay and walked out. Next time just walk out the minute someone talks to you like that--let them worry with charging you. Let 'em charge you, so you can beginning documenting the treatment you received. Look, the next person there could be one of us. You're probably like me... trying to be nice and can't process mean until later. What a piece of nonsense you were dealt there.

I do get internal shaking... out of my list of problems, I like that one the most. Don't notice it in the limbs, just deep within.

 
Old 04-17-2008, 09:06 AM   #25
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Re: Internal shaking?

I get this too. Usually comes and goes. Think it's also worse during my PMS phase. Been having it the last few days, but it's worse today. Feels like there is a motor idling in the core of my body. I usually don't end up with physical shaking of the hands, but the other night I could feel my neck vibrating. Of course, it sparked a little anxiety, but I just worked through that. I do feel weaker to when I get like this, although I still have full muscle strength but fatigue quicker than at other times. I thought my mom was the only one to know what I was feeling...

 
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