How long did it take you all to be diagnosed? - Fibromyalgia Message Board

niecsey · 04-04-2008, 06:56 AM

Hi all, at the end of my tether had a really bad night and morning... felt so ill earlier with back pain headaches etc etc .... my docs got me in for physio the 15th and were to see what lm like after that... my question is how long does it take to get dignosed? I am so fed up of feeling like this,,, l dont get a break now its almost constant and for years it was put down to my thyroid that has gone and lm getting worse and lm sick of hearing give it 6 mths and we will send you to a rheumy etc etc then my own doc saying we will see how you are after physio!!! I know this is NOT going to shift! Hubby rubbed my back last night and today lm paying for it!! **** knows what l will be like when ive had physio

!!! Im starting to dread that now

I know you lot understand and l know l may not have it... it might be something else who knows? Im just so fed up of missing out on life cos l feel rotten or to sore/tired/ill to do anything! Thanks guys heres hoping you all have a pain free weekend xxx ps. my chest was aching so much from the position l had slept in even reaching for something felt like l had been weight lifting does anyone else get this? l need reassured sorry

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bluelakelady · 04-04-2008, 07:59 AM

hi kiddo,
i know it is a tough road to answers. i was fortunate. i was diagnosed and told what i had 6 months after onset. it was a rapid decline and i got a good couple of docs right from the start. even tho i did not want to hear what the rheumy said, he said it and i learned to live it.
by physio do you mean physical therapy? if so it is worth it. it will be hard, very hard at times but you must not give up. it takes time for the body to adjust to being touched and used in healing ways. hubby may not know the techniques needed to massage a fibro body. it takes training.
i have done p.t. for years now. it got me out of a wheelchair, out of my bed and back to living a slower more gentle life that i find most enjoyable. even pain is okay when the mind is in a gentle space of love.
i would rather hurt because i have been proactive instead of hurting for no visable reason. ya know?
peace,
bluelakelady

niecsey · 04-05-2008, 03:59 AM

Thanks Blue x l know what you mean about rather hurting cos you have lived than only hurting cos you hav'nt

! iI really appreciate the replies and support here x I just wish l had answers and the right treatment it would be a weight of my shoulders tohave a name and understanding for what lm going through. Thanks again enjoy your beautiful Lake xxx

baserockermom · 04-08-2008, 03:49 PM

Niecsey, I started getting headaches (migraines, cluster) when I was 21, was 50% disabled with a respiratory thing when I was 31, all kinds of problems after an accident when I was 38 and if I didn't have fibro already and it got worse, then I got fibro after that and it took til this year, age 48, for anyone (2 docs in one month!) to finally legitimize the widespread, traveling pain and entire host of other issues by telling me I had fm, myofascial pain, and carpal tunnel.

I wish for you docs like bll experienced!!! It sounds to me like it would be worth traveling to another area if that's what it took to get a knowledgeable doc. Good lands, from what I read, this collection of symptoms has been studied since 1888. You'd think they'd get it. Take care!

niecsey · 04-09-2008, 06:16 AM

Thanks Base x feeling really poorly again

l am so fed up!! Im starting to get scared now thinking theres some thing drastically wrong with me and by the time they figure it out its going to be too late! Im trying to keep things in perspective but its hard waking up every morning feeling like youve been hit with a truck or/and so damm grotty you feel sick! The last few days been having horrible pains in the sides of ribs too lve stopped taking the pain killers (co-dydramol)cos they make me feel worse e.g lve a heightened response to noise and everything looks brighter and they just generally make me feel urgh.. so lm back on paracetemol hot water bottle hot bath and my bed! I do function do as much housework as possible etc but l feel useless l feel awful for my family and guilty that l cannot take part or plan anything cos l dont know how lm going to be. I do know they might say l dont have fibro at all l just want closure l need to know why l feel like this... its getting more frequent and longer lasting. Blood tests lve had show nothing.... My physio starts next week and doc said we will see what happens after that... here in the Uk we dont really have the option of picking and choosing and been a pain or you can get chucked off your docs list! Thanks for the reply and thanks to anyone who reads my moan

xxx take care all xxx