now what??? - Fibromyalgia Message Board

BBmama22 · 04-07-2008, 07:45 AM

I posted on the arthritis board, but now after my dr. appt. on Monday I figured this is where I need to be. The dr said I had Fibro along with some sort of arthritis. She is doing blood work and test to see just what kind it is..
For years now I have hurt in my neck and down my arms and just all over. I've had MRI and bone scans , xrays. I would always be told they could only find degentive arthritis in my lower back. "So it just stress" everything has always been stress related. But, for the last 8 months or so I could hardly drag myself to work. And, when I do, I'm usually late, hair not fixed, and in so much pain that I'm dragging. Just sitting at my desk doing nothing at all HURTS. I have to take pain medicine to be able to function. Then, I'm so dopee that I make mistakes, can't remember names, things that I'm suppose to do. Total mess. After 17 years at my job, I've just about used up sick leave and annual. So, I can't take off like before, I have to keep pushing and grinding. But, my pusher and grinder is just about burnt up. I feel like it's sorta dooms day for me. No one really knows (my family) just how much pain I have. I"M just so tired.
The dr put me Lyric and napoxen. Said she wanted to do some water therpy.
I've been on Mobic, Celebrex, Dicfonflec(spell check), something else before the dicfonflec. Now the napoxen. My hands swell with fever. I have a knot that goes around the end of finger on the joint closest to the nail, It hurts to even rub it. My thumb feels like it's out of socket, with brusies, on top. It was only my right hand that hurt so bad now it's both hands. Hurts down my wrist. My right foot and toes feel like something has been dropped on it. When I stretch my toes out it feels normal. A little crampey. but normal however that feels. It's been so long I can't remember.
Well so much for this I just don't know what my future holds with my job. It 's a major job just getting to my job. tiresome. I feel like by the time I get to my desk in the mornings, I feel like I've already done my 8 hours.
thanks everyone for your ear.

bluelakelady · 04-07-2008, 08:04 AM

hi and welcome,
do the water therapy. you will love it. the pain in your fingers is arthritis. the swelling, feverish feeling, etc. i have rheumatoid and osteoarthritis and fibro. the fatigue is fibro. the inability to filter stress is fibro. forgetfulness, fibro.
family will never understand, and we don't want them to. they would have to have it to understand and we for sure don't want that. compassion and help are all a family can offer and that is everything to us. yes?
with fibro one must leave the old self behind and reinvent self. a new self that incorporates pain into daily living. sure it's hard. what isn't?
i find soaking my hands in hot water and stretching them while under water helps get the joints moving. while i hate doing dishes, my brother does them, i will do them if my hands are hurting alot. it helps. go figure????
know that you are not alone. here there is much support and compassion. may you always find your visits here informative and supportive.
peace,
bluelakelady

baserockermom · 04-07-2008, 01:22 PM

BBmama, welcome and sorry you ended up here, though we're glad to know you! How you go to work all day with all of that--you deserve a medal! You're burner and grinder are broken--what a great way to put it. BLL is right about not wanting your family to fully understand. My husband and sons are supportive most days, but even they hurt me with what they don't understand and with what they say. I hate being judged like I am a well person. I know you must feel like that at work. I hate your off days are out.

No one in my extended family had a clue what kind of pain/fatigue I'd been through. My husband finally told them and you'd think he was the plague now--they won't have a thing to do with him and I get pretty angry about it some days. He had to finally do something because they kept expecting me to take in the out of town family, host the showers, and so on like I was just the most healthy one of the bunch. I still don't know what to do with all of that, so you are not alone in feeling your pain is so invisible.

There are some threads about jobs on this board that you might find interesting. Others are struggling hard with exactly what you described. Take care, and again, welcome!

dw1961 · 04-08-2008, 08:57 AM

Bad day here.. My boss is off today and I really need to take off..I'm hurting so bad. She's already called me twice telling me things to do..I can only say okay therefore I've got to get going..She seldom takes off so she's depending on me, and I hate to let her down. But, boy do I hurt. Please someone pray fast for me. My legs just ache so bad, bottom of my foot hurts, arms,fingers,wrist, neck, knees. Okay, I know you all can't tell me to stay home so I've got to get going. Does anybody have an extra GRINDER...

sweetjerseygirl · 04-08-2008, 09:06 PM

Hi dwh, wow sorry your having such a bad day. We unfortunatly have all been there. Wished i could have seen this earlier and said something to make you feel better but your in the right place now and welcome. There are some really great people here, who im sure can try and help out one way or another. This is a great venting place also and bless you for hanging in there today..........