I am so fed-up with hurting all the time - Fibromyalgia Message Board

ebrena · 04-08-2008, 07:28 PM

This week it's my right side-the big joint at the top of my leg is so painful and it radiates down my thigh and then down the front of my leg below the knee. It is so painful I can barely get down a flight of stairs. Coming back up the stairs isn't as painful as going down. If I am in a crouching position and go to stand up that leg just about takes me down. Next week it will be somewhere else, there is no pattern to this on-going pain. I wake up and I have to lie there and then very slowly try to work out all the pain so I can get out of bed and ususally feel like crap till sometime in the afternoon, mornings are awful. I went back to the Dr today and he gave me T3"s for pain but it won't help I have tried everything-Advil, naproxen, Advil Platinum Robax , arthotec, meloxicam and muscle relaxer's. Is there anything that can ease out this pain? I feel so decrepid at 54 how will I be after I turn 55 in June? I also have chronic fatigue and it is a real challenge to get doing things without having to lie down in between. What causes this body breakdown< and is there any advise from anyone? Help.

sweetjerseygirl · 04-08-2008, 08:15 PM

Do they have Lyrica in Canada Yet ? Sounds like you may need some of that along with the muscle relaxers. Here in the states they can prescribe high dose pain killers but you run the risk of getting addicted. They are stronger than the T-3's. I dont believe any fibro suffers have good mornings. They are tuff, most suffers can't get going until the afternoon. Its awful, your not alone and to be honest, it just stinks ! some of the folks here are in their 20's and 30's but the youngest i have come across is 17 and she thinks her life is over with that is sad. If you think its the nerves causing the pain you may want to try the Lyrica or Nuerontin (but nuerontin, if you try it i would be careful with) it worked miracles for me but had its drawbacks for myself. Viocdan, percocets, percodan and Oxycotins are high dosed pain killers. Then there are a couple mild one like ultram or tramadol but they are one and the same one is a generic brand. Thats about all i can think of at the moment. You can look those up on the computer and recieve more info or just keep reading the boards. Some of the patients are on other meds and see what you can find out about them. Hope this helps a little and i hope you get to feeling better soon because yikes that sounds awfully painful. Good luck to you...........

Jenn4508 · 04-08-2008, 08:32 PM

I think we can all feel your pain... The fibro can rear its ugly little head anywhere and everywhere at any given time... You have to take care of yourself both physically and mentally... Remember that stress plays a very big role with the fibro also.. I myself take Lortab, mobic, muscle relaxers, neurotin... I also suffer with migraines so I take topomax for that... Now I am also BiPolar 1 so I take quite a lot more meds for that for a grand total of 31 pills per day... I also get trigger point injections every 28 days.... I am still in pain every day... On a scale of 1-10, it never goes below a 6... Just remember everyone is different and different meds work differently for everyone else...

When you find yourself down, come here and vent, or whatever it is you need to do and we will be here to pick you up... You will find that only someone with fibro can truly understand what you are going through.... If you have days where you feel like you can't get out of bed, then don't... You will learn that your body needs to stay there sometimes... If you try to push your body to much, you will pay for it...

Have you tried heating pads? Sometimes these help quite a bit... Some people use heat while others can only use ice packs, see what helps you the most... I cannot use ice packs...

Come here anytime you have questions and believe me, somebody will be able to help... If you need a shoulder, there are many of those here... Don't ever feel bad when you need us because some day, we will need you also...

You have come to the right place... I am sending angels to help you through during these hard times

Jenn

ebrena · 04-08-2008, 08:34 PM

Thanks for the quick reply sweetjerseygirl. Doctor's up here in Canada are very sticky when it comes to prescribing anything for pain. Even if like me the ones they do give out don't help. I thought if I worked it out with exercise it would help but it makes it worse the next day I am really seized up so it's hard to get on a plan of exercise. I do walk my dogs for 20-30 minutes here and there but I know I will pay for it. Thanks for hearing me out and it's good to be on this board where people know what we are going through. My husband is very good-he doesn't understand the fibro-chronic fatique issue but he knows I hurt alot and I have to lie down alot to rest, he knows it's for real what I am feeling. Thanks again.

ebrena · 04-08-2008, 08:42 PM

Thanks Jenn, yes I also deal with bi-polar and I am taking Wellbutrin and Prozac for that. I have type 2 diabetes and take Metformin for that and blood pressure meds, lipitor (I understand that the lipitor helps with tryglicerides but it also contributes to muscle pain, so every once in a while I take a break from it. So lots of meds in me too. I really appreciate the welcome I have received on this board, I have been on other boards on this site and they are also wonderful. Thanks for the angels-I love angels.