gorgee

I have fibro, and the most important thing I can say about my experience with fibro, is my body feels like 1 big bruise to touch, if one of my boys accidently jumps on me, I scream in pain, and it hurts like ****. The other thing is when I have fibro flare ups, my arms and legs ache and throb, so badly, I just curl up in a ball, and put heat all over me. They sometimes have reasons for coming on like weather, stress, lack of sleep, and over-doing it like cleaning or exercising or no reason at all and come out of the blue. I also have the sharp pain that shoots through my legs, I cannot stand on my feet for too long, like longer than 1 hour is too much, or they ache, and burn. I am in pain everyday, and it is unprectable. Like yesterday, my boys, 2 and 5, and I were grocery shopping, and I was walking down the freezer isle, and my temporal tendonits flared up so badly, the pain seared through my left eyeball, and I instantly put my fingers over my eye to stop the pain. I grabbed for my Rx bottle, and took a valium, and vicoprofen. The boys and I left asap, drove 3 minutes home and I went to lay down with an ice pack on my face, and took a nap. I can no longer drive distances because of the unpredictability of pain.

I have other illnesses that add to the pain, like severe tmjd, temporal tendonitis, pmdd, migraines, myofascial pain syndrome, chronic fatigue syndrome, osteoarthritis of the left jaw, and tendonitis of the left wrist, and of course anxiety with some depression mixed in too.

I hope you both find relief soon, and can get in to see a doctor before October. Your symptoms can get worse very quickly. My battle with chronic everyday pain only started in September 2007, and it went from what I thought were migraines that got worse, to a full tmj flare up, to finding out I had much more than tmj, then the pain went in my neck. shoulder, hands, feet, muscles, bones, and joints. I am 31, and I stay at home with our 2 and 5 year old. I have applied for disability because my being sick has taken a financial toll on our family, and to be honest, now that our boys are a litle older, my husband needs my help supporting our family, and I can not do it.

I guess, my long winded story, suggests that you get help asap. Do not wait until this fall, get in next week, and if you do have fibro, and it does affect your working, then apply for disabillty as soon as it does. I wish I would have applied last October when my symptoms started affecting my everyday life, and my daily chores.

Also, one more thing, do you have 11 out of the 18 tender spots on your body? I did the test 50 times on myself and then also on anybody close to me, too. They did not have the pain on touch like I did, then I knew there was something wrong, it was not just that I had gained some weight, or my being under extreme stress from my marriage (I am sure it did not help) and the extra release of cortisol, it was fibro, which I am 100% sure my mom had, but unfortunately she died of coronary artery disease at 46, when I was 23. She had migraines, bad pms, and ached all over.

Good luck to you all, and take care of yourselves. This is a wonderful place to talk and ask questions.

Kass