I did't think fibromyalgia was real.....until I got it. - Fibromyalgia Message Board

georgi · 06-19-2008, 08:13 AM

First and formost, let me say that I am truly sorry to have been one of "Those" people that thought Fibromylagia was not a real disease. Boy was I ever wrong. It always seemed to me that when a doctor could not find the underlinging problem of someones illness, well they would just slap on the diagnosis of Fibromyalgia. After feeling badly for quite awhile, I tried to find the sorce of my illness. My body has been through quite a lot. I have had Cancer, Hepititis , heart valve problems and just last November a benign tumor removed from my parathyroid gland. For two years I just have felt crappy. I had to quit my job because I was so exausted all of the time [ not tired, EXAUSTED] I also ached all over, felt weak and had major bone pain. I started to lose lots of weight. It took me several doctors [ lots of money] and finally a trip to Mayo Clinic to get a diagnosis. I would not wish this on anyone. Please accept my apology for being so ignorant about this very real disease. Show my post to your family or friends or anyone that just dosen't GET IT!
It is very real and scary!!!
georgi

bluelakelady · 06-19-2008, 08:27 AM

not to worry sweetie. we understand and we care, about you. with the utmost love may i welcome you to our evergrowing family. come lean, love and learn with us.
peace,
bluelakelady

CDS75 · 06-19-2008, 10:09 AM

I have had fm/cfs for 5 years (I am 33) and I am still in denial about the disease! Reality is, I know its real, I just don't want it. One of the worst parts about fibromyalgia is the "stigma".

I constantly tell my husband "I hope they find some kind of disease they can treat with this test".

Hang in there, your not alone!

Jenn4508 · 06-19-2008, 12:20 PM

We Welcome you with open arms and much love.... No hard feelings at all... We are well aware that people who don't have it, don't understand it... I am so sorry that you have to suffer with this disease... It is not a nice way to find out about it... You have found the right place to come and join our "family"... We are always here for each other depending on what you need... We come here for info, venting, talking, whatever the need may be...

Believe me, we all need this "family"... Welcome aboard... Jenn

Donna1964 · 06-19-2008, 06:04 PM

Hi Georgi,
Don't feel so bad. If thousands of doctors a day treat their patients as if it isn't real why would someone who doesn't have it think differently? Until the doctors more widely acknowledge it the general public, which unfortunately include some of the people closest to us, won't be able to either. Sorry you had to join us by default but you certainly are welcome.
Wishing you comfort and wellness,
Donna