Just to keep me from getting cocky - Fibromyalgia Message Board

janewhite1 · 06-23-2008, 08:52 PM

Had the fibro completely under control. Not that it didn't hurt, but it never got unmanageable. Have baclofen and narcotics at home that I've had no desire to touch in quite a while. Taking 20 mg nortripyline, down from 40, and nothing else.

So, I want to have a baby eventually, and I'm tired of taking pills anyway, so I decide to drop down to 10 mg, as a preliminary step to quitting. And it's fine. A couple weeks pass, and I find myself in the following situation.

1,200 miles from home, sleeping on an uncomfortable bed, with NO emergency meds, because I never need those anymore, I can't take OTC pain medications due to stomach damage, in my first full flare in years. Not going home until Saturday. I restored the dosage back to 2 pills per day, but I only have 5 pills left now, not enough to maintain the original dosage.

Tempted to ask my husband to overnight ship me some meds. It's just a few pills, if they get lost in the mail who cares.

<checks postal rates> Hey, tiny packages are under $20 for overnite delivery. I think I'll do that.

Now, to get through tonight.

sherryrenee0423 · 06-24-2008, 02:18 PM

Can't you have your prescription transferred to a pharmacy near you so you don't have to pay for overnight shipping?

janewhite1 · 06-24-2008, 02:39 PM

I don't think so, it's not with a chain pharmacy, and my refill isn't due anytime soon anyway.

Meds got shipped today, I understand, maybe I'll get it tomorrow.

Finally got to sleep last night sometime after 2 am. Dead tired when I woke up, but hurting a little less. Was sitting in the lounge, waiting for meetings to start and trying to look alive, and my colleague walks up to me and the first thing he says is "you look tired." Wasn't sure what to say to that, I think dull-wittedness came off as a baleful glare.

Nap time now, went to the store and got me some topical stuff, so maybe I sleep and feel human at dinner.

Glojer · 06-24-2008, 07:42 PM

Jane good luck. I have done what you are trying to do. When I was feeling good I tried to go a little lower on the dosage of my meds. I really don't like taking meds. Of course it always back fired on me. Now I am older and wiser and I take the minimum amount of meds that keeps me going. Of course I am way past the having baby stage so I understand your desire to wean down as low as possible.

Hope your doing better

Glojer

janewhite1 · 06-24-2008, 07:48 PM

Actually I am, a lot better. Went back up to 20 mg last night, and got a little nap this afternoon.

Okay, so I guess I've worked out the formula.

20 mg/day nortriptyline, functional human being who has frequent encounters with sore back, hips, and shoulders, but does ok as long as she keeps up with the exercises.

10 mg/day, fibromyalgic mess, and the exercises don't help worth a wooden nickel.