Hi, i just wanted to tell you im sorry for you also. Dont give uo, it took me years of taking every test on the planet ! The doctor always scrating his head, treated me for this and that ! you could imagine how frustrating that was.
My knee's went out on me and i do have R/A, usually its only one but when they both went he gave me a shot in both knee's and said i want you to see the Rhumatolgist. So i agreed and when i went to him he extracted fluid from the knees
.
Next time around he told me i had fibromyalgia, i didnt believe it, i kept saying "the really weird thing is i heard almost everyone in the office talking about it " and how much he had helped them, and most were claiming they were starting to feeling better. I kept saying there's no way that everybody in this office has the same thing, no way !
The last time i went to see him, he was mad at me because he wanted me to call this 800 number or go to a site he recommended. He said you didnt look at the site i asked you to look at ? I said no i didnt and the meds you have me on arent doing anything. It took a whole year before i was convinced with no help from my rhummy because he wouldnt explain certain things to me, he would just say go to the site i told you too. Made me so mad
now if he would have explained things to me in person, even a little i would have taken it more seriously...when i started to do research, it was like the brick fell on my head, most everything i had been complaining about for the last ten years were staring me in the face, it was like putting this big puzzle together ! I was gald to finally have an answer but angry about all i had been though and if he only would have taken some extra time to say why he thought so and this & that , i would have be looking a little harder but i never had a doctor do that to me before ! Hey even doctors should recognize when their patients are stubborn
and i was defiant ! Like a child
ok i admit it !
Now i have taken control of the situation right down to the meds, i would hate to see you what i put my own self through. Of course trama and stress plays a big part...I herniated a disc and didnt know it, i'v had four surgerys for different things ! I guess my regular doctor kept trying to tie all i had been through to my pain but i found out differently now.
It is difficult because some medical folks dont believe in this condition, so instead of wasting your money, find a doc that treats it. Ask that question before you go in for a visit. I'v had like a hundred different symphoms of fibro and my regular doctor never caught on. Iv been sent to an oncologist, infection specialist, nuero doc, you name it, iv been to em, funny thing is when the right doctor made the right call, i wouldnt believe him, how ironic is that ?
You take care of yourself for now as much as you can, your definatly at the right spot as others have nightmarish stories ! so hollar away, ask for help, just complain if need be or vent. It can take over your life, if you let it and thats no joke. There are days when you just cant do anything but hurt and thats what we are all here for, the frustrating parts amoung the other things i have mentioned, i always say everyone is alike but different. Fibro is a strange condition and affect everybody in different ways. Even though its painful, try to beat it at its own game if possible. Good luck, i hope you find the right doctor and get on the right meds. Sometimes that takes awhile to figure out which ones are best for you but knowledge is the key also. Most people are on muscle relaxers, a pain reliever, an anti-depressant and something to help them fall asleep. Hope u get to feeling better soon
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