French fibromyalgia girl needs you - Fibromyalgia Message Board

Orelisa · 09-03-2008, 10:11 AM

Hello everybody of this great forum

,

I'm french (that's why, first I would like to apologize for my grammar and ortograph) and like you I suffer about fibromyalgia but the problem is that this disease is not really recognized by the doctors in France and when we contract this disease we are alone : You have to go to specialists who diagnostic this ans then leave you with your fibromyalgia because you don't interest them and tell you that there is nothing to help you efficiently ! And there's no forum, no information about this problem. Fortunately I understand english !

That's why I register me in this forum to share experiences with you all and to have somebody who can understand me REALLY ! I'm lucky because my doctor knows this disease and send me by precaution to see a rheumatologist in order to eliminate any rheumatic problem.

For the moment I'm really in pain : My back, my arms and my shoulders are killing me today as if I made weight lifting all yesterday and I'm so tired and parecetamol is not efficient what are your method to support the pain ?
It's sometimes hard to support it alone and a large majority of french people (including doctors) think that this disease is above all psychological (in your mind).
Thank you for sharing with me your experience and "little secrets" to support this as the best as you can and thank you for helping me to not feel alone with this disease anymore.

I hope being understood my english is limited (thank you for being indulgent)

fibrohurts · 09-03-2008, 11:20 AM

Hi, and welcome to the boards.
First of all, your English is wonderful. You should be proud of yourself for knowing 2 languages.
Thinking that Fibromyalgia is all in a persons head seems to be a common thought around the world. It sure is where i live anyways. Infact one person told me "it's all a matter of mind over matter" in other words i should be able to ignore it.???? if felt like pushing her down the stairs and tell her to ignore that.
Sorry but, sitauations like that leaves a person bitter.
Luckily, we have both found a special place to come to, and that's here.
you will find tons of support, answers, and laughs, here.
So ask away!
Gentle hugs

sherryrenee0423 · 09-03-2008, 01:20 PM

Hey Frenchy Girl

A couple of things everyone with fibro should have are a heating pad, medication for when the pain gets really bad, a hobby to take your mind off of your illness, and friends who will listen and support you (online friends count

! )

Read the posts and you will find that a majority of the people here really know and study fibromyalgia. We are all constantly searching for the things that make us feel better. Keep your chin up !

Orelisa · 09-04-2008, 01:56 AM

Dear Sherryrenee and fibro hurts,

Thanks for your support and listening. I know that I can find help here that's why I'm here with people who suffer and know this ilness as I do and It's really helpfull : That's what I looked for since months and months but without internet (as there's nothing for that in France) It wasn't possible. Now I have internet and I think you will have to do with my presence as often as it necessary

(lol).
Fortunately I have 3 wonderful children who help me to "take my mind off with pain and fibro matters" but as I am housewife and I have 2 babies It's sometimes hard when the pain reaches is paroxism : I sometimes feel that I am a bad mother because sometimes I would loveto be all alone in calm and nobody to care but me only me. But I know If they were not there I would not have something to help me to support and forget fibro.
Today I suffer a little bit less than yesterday but drugs are not really efficient for the moment I do, as you all do, with it and I have just to be patient.
Here in France children go back to school with all to preparate for parents that 's why fibro has not choose the best moment to remind me its presence

(lol)

Take care of you

and I hope meeting you again on the boards.

Paddy55 · 09-04-2008, 07:59 AM

Orelisa - for more info about symptoms, check out the post listed at the very top of our message page called Fibromyalgia Disease Information Archive. Lots of detail there about the disease, it has been compiled by board members and stored there for people like yourself doing research about fibro.
Hope this helps,

Paddy