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Old 09-03-2008, 07:16 PM   #1
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Pain Management

Just recently my company wanted me to talk to "their" nurse to help me with my medical issues. When I mentioned that I have FM she said she will work with me on pain management.

The pain management I have heard about is bio-feed back(whatever??) yoga (maybe for some) exercise (I ran 5k races and lifted weights a year ago now I walk on my good days, and still use light weights and it doesnt take the pain away) and counseling.

Are there any other things to pain management? Is anyone doing biofeed back or counseling...is this because they don't think the pain is real?

Maybe I am stupid, but other than the exercise, do these things work? I got the feeling the nurse doesn't believe in FM, and we are crazy people. There is no way I would wish this on my worst enemy. How can doctors say it is not real? Why the skeptisism? Just because they can't put their finger on it, doesnt mean it doesnt exist.

I am new at this...any ideas??

 
Old 09-06-2008, 10:11 AM   #2
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Re: Pain Management

I do pain management. It consists of physical therapy, (stretching, learning how to do things differently, yes, exercise and pool therapy), trigger point injections and using the least amount of medication (particularly narcotics) to make you experience less pain but not make you a doped up zombie. Basically, since fibromyalgia is incurable, you have to learn how to manage the pain in other ways beside medications. Medications help, don't get me wrong, but a lot has to do with your own pain threshold and desire to not let the beast take control. At least that is what I was taught. I still have very bad days but the good days are more and more frequent and I don't let the bad get me down. I just do what I can to get through the worst of it and go on. Attitude is everything.
Take care

 
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Old 09-06-2008, 08:15 PM   #3
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Re: Pain Management

bcs, there are lots of things you can do to help with your fibro. Kathy mentioned most of them. Exercise is great, but you have to start small and work your way up to something that is comfortable for you and does you some good. Of course I am a BIG believer in Attitude and for me taking the least amount of meds.

The company nurse may have your best interest at heart, but I always mistrust anything from the company. I always felt sorry for the employees that thought that human resources was there to help them. They didn't get the fact that it was the companies dept. and anything they told them would be carried back to the company. That said, anything she puts in your file would be general info for your company management and of course anything she writes would be her interpretation of how you are doing.

I have never tried biofeedback, but I have had it suggested by a doc if I ever wanted to try it. Some people love yoga for fibro, it is not my thing. I just love plain old exercise. I don't get the counseling thing, counsel you in what!

Glojer

Last edited by Glojer; 09-06-2008 at 08:16 PM.

 
Old 09-06-2008, 08:35 PM   #4
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Re: Pain Management

hi bcs, as far as the counselling options goes, I think what you get out of it depends on your attitude to actually having fibro is ! My gp sent me to see a counsellor when I was first diagnosed with the idea that talking about it would actually help me to accept that I had it- like the constant pain, sleepless nights and all the other woof that goes with it wasn't enough to convince me ! Though having said that, I have spoken to a few people who did feel that they needed help with adjusting to having to change their lifestyle after being dx and they did find it helped them. I guess some people find the pain easier to deal with knowing that it's a physical problem rather than a psychological one. Apparently a lot of work that they covered was "broadening the mind" to accept pain and work with it rather than try to fight it.
Having said that, the counsellor I spoke to was more concerned with how I felt about my dx and focused on ways of expressing my thoughts and feelings about it, so I guess it did help to some degree- can now moan about it on bad days without feeling guilty !
Hope that helps a bit
Poppy

ps according to mum I'm a moaning swine on the best of days so didn't need many sessions there

 
Old 09-07-2008, 07:55 AM   #5
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Re: Pain Management

i spent 9 years in councelling. priceless for me. i learned new coping skills to go with my new body. i went thru the mourning process with someone to listen to me. i discovered my worth had not lessened and that i did not have to settle for less than what truly gifts me with joy. i am happy. i do not resent fibro or any of the other goodies that play in my body.
i went to a shrink to prevent myself from going insane. i was headed in that direction, all due to illness and the changes it wrought in my personal life. i needed a life raft and gary was mine. it has been years since i last saw him. yet the lessons are now a part of my life. a good life. i'm happy no matter what comes raining down. be it medical or emotional. for me being happy is a choice i make, every moment of every day. i like it better than the alternatives. i tried that and it scared me.
i do meditation. especially when stresses enter my reality. it helps me keep my b.p. down.
i am also having nerve blocks and steroids injected the end of this month. for me it is a happy medium between eastern and western medical philosophies.
i always suggest a shrink. simply because we need a place to really let go, knowing it is safe to do so.
peace,
blue

 
Old 09-07-2008, 03:52 PM   #6
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Re: Pain Management

Hello Bluelakelady! I am so glad you are all set to get rid of the pain in the fanny! It has to be awful. I had a sphicterplasty (totally spelled wrong-anal reconstruction due childbirths) and I had to lay of my side for four weeks. It's a very unusual operation, and not done very often. I was on oxy for 4 weeks, and my entire butt was black and blue for two months after. I can sypathize somewhat, but your disorder sounds so much worse. I knew once I healed it was all over with! Not like you. I am so glad you will get relief!!! I hope they can keep it under control.

I had counseling for awhile after a divorce twenty-four years ago and like you said, it was very good. It taught me how to except change and life was all about change. With that, I have accepted my "change", and I working with it as a normal part of life. As long as I can keep it somewhat under control, I am okay with it. I have had much worse in my life, so this is a far cry from "awful".

Change is good, and I believe there is a reason for everything. What it is, I haven't a clue. I guess I look at things differently, than most. My company could be closing, and I will lose medical benefits. If I elect cobra for 3 months that will run me $850 per month. On unemployment, I will not be able to pay that. My daily injection medication runs $800 for 28 days, and the rest of the meds are about $600 per month. My company has closed 100 offices in the past 8 months, and closed our other office in our town. I am in the mortgage industry. Need I say more.

My husband is retired, and my income is what pays the bills. So, I have two choices, make my self sick and miserable, or believe that God will direct me because I have never been without. With that, I am also look for another job, because I would like a less stressfull job. Meeting strick sales goals, in an enviroment that is not condusive to financing is a stress disaster. And, what I mean by without is, I have been down to a can of green beans and a jar of peanut butter, with no money in sight, some how; God provided.

Many years I lived in poverty and I was just as happy with little and now I have so much more and happiness is still the same. With my illnesses, I appreciate my body and health. I appreciate my husband, my children, my grandchildren, my life, my job and enjoy life, every bit of it. I have also learned how to say "No, I cannot do that today". I am learning to accept priorities, rearranging schedules and nothing has to be done right now! The house can wait. Life is too precious to waste.

All this to say, I thought the counseling was more to tell me the FM is all in my head, but if its to help me cope with the change, that's okay! When I have a bad day, I may need it.

Thank you for your feedback. You are very special!!

 
Old 09-07-2008, 09:02 PM   #7
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Re: Pain Management

Blue, bcs, I love to hear all those wonderful positive things you have to say about your life. It makes me feel so good to know you feel so good about yourself. As I have said so many times before, I am the eternal optimist and I love it when others can feel good too.

bcs, I meant that I didn't know exactly what the company nurse would be counseling you for. I certainly don't think seeing a professional counselor is a bad thing.

Glojer

 
Old 09-10-2008, 06:39 PM   #8
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Re: Pain Management

Hi Gloger, you are right, counseling is a good option. My perception of this nurse is she doesn't believe FM is real. I got that awful feeling. I can't remember all her comments, but that was the impression I was left with. My company is the 3rd largest bank in the world, and they want employees to manage their health. Now, there are probably four people my age doing my job, out of at least 300 people. Most of the emplyees in this massive company are young. So this is a new program to help employees to manage their health to keep medical costs down. Maybe I will learn to like her, but her attitude needs ajusting.

Well, it has been great hearing all you ladies, and I will visit from time to time, but I am back to work full time now, and I will find it hard getting online with all the other things I need to get done. God bless all of you! Talk to you soon!

 
Old 09-11-2008, 07:20 AM   #9
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Re: Pain Management

hi bcs,
i would suggest a therapist not hired by your company. if they pay her she has to do things their way. the help is not in that arena.
tho you sound pretty together on it all already maybe the future is when the right time will come for you to require the assistance of another. you know best what you feel within.
i too have lived under the poverty line. did it with 5 kids to feed. somehow there was always a way. i have missed more than one meal so my kids would have enough. sure glad those days are over and my kids are strong capable adults. now when i can eat all i want i have no desire for food. well, except mexican food. the spices turn on the "i'm hungry" part of my brain.
you are right, you will be fine. attitude is everything. like glojer i am an optimist. my cup is always running over, forget half full. i choose to have it all.
peace,
blue

Last edited by bluelakelady; 09-11-2008 at 07:22 AM.

 
Old 09-12-2008, 01:56 AM   #10
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Re: Pain Management

Hi,

That was very cruel to do to you. I've done the counseling thing and only go now when I feel I need to. It's helpful to me because losing the old you is a grieving process. I hope if you do this that you can find your own.

Stand up to these people that you feel are making you think they don't believe you. You are worth it.

I agree that you should be careful what you say to hired insurance doctors and psychiatric people. If you do have to go, answer just what they ask, don't say any more than you have to. I've gone through the disability nightmare and doctor after doctor they sent me to.........it was kind of funny to me how any doctor can make such a huge impact when they see you for a few minutes and help decide your fate, when your own primary doctor has to see a pattern to help you out, cause he/she knows you. After getting turned down twice for disability the third time was the charm. All of the doctors both body and head ones all were favorable to me. The psychiatrist was a hoot, he said after talking to me for about 15 minutes that I did have depression, most chronic pain people do, he agreed with the medication I was on and that after going through my files that it was rediculous to even have sent me there. It was funny too, 1 doctor was so neutral he showed no emotion what-so-ever and it was kind of scarey. After he was done he went out of the room and the nurse came in and I started sobbing. She said she knew that I felt horrible.........well a few days later that tactic fell through and he also sided with me. Just don't give out too much info.

Another thing if you do get sent some where, don't over dress, over make-up, over do your hair or wear a lot of jewelry. I know it sounds crazy, but my advocates for disability worked for a company that was formed by people that used to work for soc. sec. disability and had to try to find the reasons to deny people. They just couldn't do that to people that really were suffering and they have a high percentage of securing disability for you.

There are things you can do, I have a great pain specialist and he does give out medications, but he does procedures that help so you don't have to take so much medication.

Stretching is a must. Massages if you can afford them are wonderful.

Humor is really important, I have some bad spells and people on here get you through it and then you in turn help them out. Really take in what these special people are telling you. We find such goofy things to laugh at. My tailbone hasn't been fixed yet and I couldn't find a donut anywhere to sit on........I'm sitting on a Dora the Explorer kids inner tube that was on clearance............Bluelady has named her pillow. I look forward to coming to this site. I took a while off and the 24th I will be having another procedure done so I'll be off for a few days again. BUT.........man the rah-rah's I got on here got me ready to do the other procedures and it was nice to know that there's a group of people out there that genuinely care about you.

Hugs,
AnneBoleyn

 
Old 09-12-2008, 04:02 AM   #11
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Re: Pain Management

Good morning Annebolyn! Thank you so much for the wonderful advice. Here is where I am at. I felt great on the new meds for at least one month, and I said, maybe I'm not sick. I take Ultram er. But, that did even come into my picture. I figure, whats all the big deal with FM. I don't have pain. Wrong...I had what I think they call breakthrough pain, had to leave work because I had pain for several days, mostly at night, I guess the Ultram was wearing off too early. I had little sleep, and crashed. I guess it is a flare?

Last night and all the other nights I had pain, so I did a relaxing breathing technique to relax, because I could feel myself tensed up. Maybe what I should do, is have my husband rub my back alittle to ease me, and help the tension release.

I would love to go on diablity, but my doctor said it is hard to get now. I think he is waiting to see how many times I call for appointment. I am new to this. I started a pain diary.

I did look for another job, twice, and I failed the one test, picking out which adage matched another adage and some math. I couldnt understand anything. The same at work with our online training, I understood nothing they were saying. I couldnt remember. I even failed a little teller test, which I was a teller. It could be the pain meds.

I think I am a mess. But like having a baby, you forget the pain, but once the contractions start up, you remember!

Anneboelyn, will it go away? Am I in denial now? Are there stages of FM that newly diagnoised people have? I am okay losing my healthy person, but I thought it would be managed, but I guess not. I am just so confused at this point.

Again, thank you for the information. I hope I get through this. My company said I could work less hours, but I still need to make the necessary sales to be employed. If my sales are off, I am fired. They don't give grace. When I was out for the surgeries, They counted one, but the second one, I didnt make goal that month, so now I am on final corrective action. I am in the mortgage industry, have been for 24 years. Long story short, I have to make goal this month, and I lost yesterday. I stayed 2 hours at work, and then I freaked out between the pain, stress, and deprivation.

That nurse really irked me. They say, you look good. Well, I didnt look good yesterday. I was as white as a ghost, with black rings under my eyes. I dont want to work with anyone who doesnt believe its an illness.

 
Old 09-12-2008, 08:29 AM   #12
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Re: Pain Management

Quote:
Originally Posted by bcs View Post
Just recently my company wanted me to talk to "their" nurse to help me with my medical issues. When I mentioned that I have FM she said she will work with me on pain management.

The pain management I have heard about is bio-feed back(whatever??) yoga (maybe for some) exercise (I ran 5k races and lifted weights a year ago now I walk on my good days, and still use light weights and it doesnt take the pain away) and counseling.

Are there any other things to pain management? Is anyone doing biofeed back or counseling...is this because they don't think the pain is real?

Maybe I am stupid, but other than the exercise, do these things work? I got the feeling the nurse doesn't believe in FM, and we are crazy people. There is no way I would wish this on my worst enemy. How can doctors say it is not real? Why the skeptisism? Just because they can't put their finger on it, doesnt mean it doesnt exist.

I am new at this...any ideas??
Welcome and you may be new at this but you will become powerful with all your "friends" here.

I hate to be nosy but what prompted YOUR COMPANY wanting you to talk to their nurse about your medical issues, what medical issues? How did that even get started? Was it something you asked about? If you did not ask about this, your company is going places they really don't want to go.

Counseling/Biofeedback, to me is all the same but that is my opinion however I do go to counseling... but, it is not just for fibro. What some say about it for fibro is learning to say goodbye to the old you (running 5K) and accepting the new you (yoga, maybe)

Would you mind telling us what this meeting was set up? Was it because something you had asked for or was it something your company suggested. That is the big question for me.

Hang in the my friend, we are here for you... Jenn

 
Old 09-13-2008, 03:53 AM   #13
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Re: Pain Management

Hi bcs,

No problem we are all here to help one another.

Sometimes medicine when they are new do help, but sometimes after you take them for a few days you start feeling the side effects at times. Okay there's fibromyalgia, non-inflammatory, but there's myofascial disease which is. There are quite a number of people that the arthritis medicines like Ultram do not work on. A big percent.

Breakthrough pain is like a flare. Sweetie, you need to find a pain management doctor that's willing to work with you to find what is going to work for you. Massages help.......if you can't take deep tissue massage (it hurts, but I want the knots worked out) have myofascial release done. It does help. I take Elavil, Ambien and Soma at bedtime. I also have Vicadin and Morphine if the pain is out of control. They make me barf if sit up or get up, I'm okay lying down, soooooooo I rarely take them, but I know they are there.

It is nice if your hubby can give you a relaxing massage, put on some soothing music (I am an Aerosmith girl and if I put on classical you know I feel bad), lie and soak in the tub with a candle as your only light.

That disability is hard to get for anyone period. Your doctor just doesn't want to be bothered with the paperwork that he'll have to do. You need to have regular appt.'s and your lawyer or advocate want your files every so often to keep updated on them. Keeping a pain diary is great, you need to do that if you seek disability. Write what happens at your doctor appt.'s.

See, the new job thing, if you saw a counselor you could discuss the memory problems. We get fibro-fog and have trouble remembering, the short term memory. This is what you seem to have. You will always have it sorry to say, some days are better than others. I asked a store manager for her to repeat what she wanted me to do and then I repeated it after her. She said, you have fibromyalgia are you retarded too???????? There is the person's with disability act.......I transferred to another store and not too awfully long after she was fired. Look it up on the internet it should be there.

You're not really a mess, you just have to learn that this is your cross to bear, you can choose to do it with dignity or not. We all have pity-parties and need one another on here, but you have to regroup and get back to it. It's a kind of mind set thing. You have fibro......it doesn't have you, remember that or you'll sink into despair.

No Sweetie it won't go away, but if you look at some older threads on here you'll see some that I started and maybe they will answer some of your questions. Are you in denial? Kinda sorta. It takes a while to come to grips with losing yourself and developing a new self. Arm yourself with knowledge. Also get the books written by Devin Starlanyl M.D., she has it and they have everything from how to do disability to do you get phantom toothaches. I swear, you won't feel so nutty anymore because she writes where the source of pain is and what causes it. I use it all the time, have for years now. Get the one with fibro and myofascial syndromes on it. I can't really say there are stages....the pain is different for everyone. We may have a lot of similar things, but most of us have places that are worse for us. Read the old threads and you will see all sorts of things and I won't have to keep writing the same things again and again. Will it be managed? You have to be active in your care......doctors are hired by you like a plumber, don't let anyone intimidate you.......some think they're Gods. If you aren't getting the care that you need keep changing docs until you find ones that will work for and with you. I'm very fortunate, my docs are wonderful, love them to death. You are confused, I think we all go through phases of that.

As for the job, the more stressed you are the more you're going to hurt. Different states have different laws concerning firing people, you may want to check that out at Dept. of Labor. Here in DE, they can fire you because they don't like your blue shoes and there's really nothing you can do about it. Also that person's with disability act get a copy, it may help you.

The nurse doesn't sound like a very kind person....maybe she's being paid to be like that. Companies don't give a crap about their employees, it's not how it used to be, now they try to screw you out of as much as they can. I know that pastie, raccoon look, I'm thankful for coversticks. Actually fibro is not a syndrome anymore it is a recognized disease. (You can't get disability? Bull-puckie!)

 
Old 09-13-2008, 11:25 AM   #14
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Re: Pain Management

Hi AnneBolyn, you are a weath of information. I maynot comment on everything so please forgive. I think you are right about the doctor. But, I think if I keep going back, he will get the hint, that I am not well. I cut back hours at work. I hope I can meet the stats they request.

Yeah, you are right about the denial. As for pity party, that is not me, and I can certainly see its not you! I will get the fibro books, because I need infro to arm myself.

The bad thing Anne, is I was a writer, wrote 8 books, in the middle of my 8th book, 6 published, and now I can't write anymore. My focus isnt there, and I can't put the story together like I use to. It's okay. I have always been a survivor, and will continue to overcome the obstacles as best I can.

Yes, I will read the previous entries. I am so sorry you are on morphine and feel so bad.

I will check out the disablity act, and my state, NC, can also fire you for blue shoes.

I need to be my own advocate, right?

Deep massages will hurt, so light massage would be better.

Funny, I read somewhere that people that had trimenial neuralgia actual had fibro becuase it is one of the symthoms. I had that eons ago. Maybe it went into recission and came back.

Well, I am dying my hair to look pretty, regardless of my pasty face and racoon eyes. I hear it is the new style!!!!

Take care..thanks again!

 
Old 09-13-2008, 10:17 PM   #15
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Re: Pain Management

Hi bcs,

This is really strange, you can't write and I can. I've sent off some things, but haven't had any luck so far, but I'll keep trying. I write anything from dark to light poetry and it's usually while I'm in bed feeling really awful. I'm not one to be idle, so when I have to lie in bed I'm not wasting my time.

The morphine is for really horrible times when nothing helps. I don't take it everyday....it'd tear my stomach up. It's nice though to have it here. I think docs should offer it for reasons like that, just so you have it to use.

[removed]

You know when this really kicked in for me I'd work for a few years, then I'd drop my hours and days and then I'd be so ill I couldn't work. So although I did miss some time from work, my employers all knew what was wrong when I was hired and it was okay. So it kind of was remission-like. The last place I ended up having trouble working 2 days a week. When I went in and told my boss that it wasn't fair to him or me he said, please stay, come in when you feel like it, you do more in a few hours than some people do in a week. Retail. I was in graphics, composition art, pre-press stuff, but this ruined a career. I had such blinding headaches from my head being bent over light tables, etc., that I just couldn't do it.

The headaches were the worst thing for me. I've had 2 stimulators in my head for almost 2 years. Although I still get some headbangers about 80% of them are gone. If I wake up with a headache, then it is morphine time, the headache has to run it's course. When this first started and the headaches came I had 1 headache last 16 days. All I had was the stuff they give for migraines, like fioresette (obviously not sure of the spelling) all kinds. When I found my pain doc, he said that stuff isn't going to work for me because my headaches were from nerve entrapment. Heck I've pretty much been with him since he started, at one time his office was right up the road from where I worked, if my head started to hurt or my shoulders, they'd work me in, he'd give me trigger point injections and I'd go on to work. I had to help feed 4 kids. It'll be so great too, Oct. 8th he will also be a cousin-in-law, my daughter will have the same name as his. Funny the way things turn out.

I'm 53, I need to stain my hair too, but I'm holding off until before the wedding. My hair is about to my waist now and if I let it go I sort of think Geeze, Lily Munster. I haven't had long hair in lots of years. I finally let it grow, it's so much easier to deal with long, I can put it in a ponytail or pin it up and I'm good to go. I had such a time with the curling iron thing all the time. So heck we'll both be gorgeous, watch out world!!!!!!!!

You'll love the books, you really will. You take care now.

Hugs,
AnneBoleyn

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