Anyone else have this fear - Fibromyalgia Message Board

k2626 · 09-12-2008, 04:06 PM

Hi guys. My muscle twitching is real bad today,even had it in my chest. Has anyone else been scared they had ALS? I am getting nerve testing done (my primary dr is SO thorough). I have been to two neuro that did the basic reflex test and said whatever is going on it not neuro related-neither suggested further testing.I just have SO many little twitches in my muscles and that coupled with the migratory pain and extreme cracking makes me think I have ALS-especially since everything else is coming back normalWOuld love feedback

bluelakelady · 09-13-2008, 08:31 AM

hi k,
i think it is rather normal to have the fear it is something really scary. always best to be sure it is not.
i also know the twitches, migratory pain, involuntary jumps, etc. are, for me, fibro. been doing it for years with no damage done. now i just relax and trip on the way it feels. the main arena for the past couple of years is my head, shoulders and upper body. it is visable to others. sometimes my hands too. like i said, i just trip on it now. no more fear.
remember, worrying about an unknown is using up precious energy and it is feeding fibro. my grandma used to say, worry never solved anything.
peace,
bluelakelady

k2626 · 09-13-2008, 12:21 PM

Thanks blue/ I guess I worry even more because I dont seem to have the trigger points!

DeBeachSiren · 09-14-2008, 03:01 AM

Hi,

I agree with Bluelakelady. Don't let that consume you.

Hugs,
AnneBoleyn

bluelakelady · 09-14-2008, 08:48 AM

hi k,
remember there are no for sure rules with fibro. trigger points and all the other stuff is what they think they know now about it. doctors learn as they go. and science changes it's mind about everything when new knowledge is discovered.
when it comes to how fibro manifests in each human body it is very individual with bits that cross us all.
be cool.
peace,
blue