Need Help Understanding Fibromyalgia! - Fibromyalgia Message Board

KD489 · 11-17-2008, 10:52 PM

I am new to this board although I have read some of others messages and it does help me to understand fibro. Although I do not have it, however my mom does...I am 19 and when my mother got it i was only 17. I wish I knew more about it to understand what she is going through...I do see her having trouble getting up in the mornings and through out the day...My mom is the mother of 4 and has a grandson which sometimes she can never hold him or pick him up...for the past couple of days she's been sick... not being about to move...she doesn't really get out much and with me and my sisters we try to get her to go out. when ever we can. My brother who isn't living at home anymore along with my other two sisters try to help her out any way we can... She is a strong person and tries to do things but the days where she is so sick she is either in bed, on the computer or playing video games and that seems to help her...On days when she is sick she comes to this website to read what others are going through and i asked her why she replied "it helps me to know that i'm not the only one going through this and reading what others say about what they go through is the same as me and it helps"...I do not understand fibro. and what it does or how it effects the body..I need help to understand this to be able to help my mom. So if anyone could help me please reply!!

AnnD · 11-17-2008, 11:21 PM

The best education you could give yourself about Fibromyalgia is to read all you can in this boards archives. Just start reading and you will gain a whole lot of information...there has been a tremendous amount written about it on this board. It is a difficult disease for others to understand because you can't see it.

DeBeachSiren · 11-18-2008, 12:16 AM

Hi KD,

First you are a very special young lady and one heck of a daughter. It is refreshing to know that you love your mom enough to learn about her disease. There are so many on here that don't have that kind of support from friends and family.

Your mom is right, we understand on here. We are the same, but can be oh so different at the same time. It sounds bizarre, but it's a bizarre disease. Most of us have another disease or more to go along with the fibro, like that's not enough.

Read the old posts and threads on here, you'll find a lot of help. On here you get to see different aspects of things, such as the drug Lyrica for instance. You can see that some don't like it and some swear by it, it is done honestly and not done nasty or hateful to one another. You arrive at your own opinion. If there's individuals on here that you trust their take on things or they give good advice click on their name and you can look on other posts and threads that they have written. I do that all of the time.

There's a book out there written by a doctor with fibro and myofascial diseases, which is more on the order of what I have. Her name is Devin Starlanyl MD. Her book covers everything from does wavy lines make you dizzy to how to get disability. They are easy to read and she explains the why and the how. If I travel this book goes with me. I use it all of the time and have used it to explain to others on here the reason that something hurt and where it starts from.

I have a goofy family. No matter what it is, we can usually make someone laugh, even at times when we shouldn't. I have bad days and flares. I hole up in bed take major medicine and watch old black and white movies for 2 or 3 days and then I'm back at task of getting along with life again. Humor is the best medicine for us. A few years ago my daughter had a very rare heart problem, they didn't know if she'd make it through the night. I was talking to a friend of mine and screwed my words up as I do all the time and my daughter opened her eyes,m smiled and said, "Mom I heard you mess up". So ya see sweetie, in all of the bad things there's always something to learn from it no matter how bad it is. Everything has an opposite, sometimes you have to look really deep to find it, but it's there.

You hang in there and I know that your mom loves you and appreciates all that you do for her. Just remember sometimes when she hurts that she might be short tempered with you or others, but she's not trying to make anyone feel bad, it's fighting a hard time with the disease. We try to take our diseases on here with as much grace and dignity as we can, but we get overwhelmed sometimes and another person on here can really lift you up when you feel all alone in the world.

You're very special.
DeBeachSiren

KD489 · 11-18-2008, 02:21 AM

DeBeachSiren,
I can't take all of the credit..my brother and sister's also help out...But thank you SO much! what you have said is very helpful!! I'll be sure to go to the library and see if they have that book by Devin Starlanyl MD. I have looked up Fibro. before but sometimes I think that the doctors really don't know much about it cause they don't have Fibro. and now that you mentioned this book written by a doctor who does have fibro. i feel as if it is worth reading! Thank you So much!
I know my mom does get dizzy most times, When me and my brother came home from school one day and both of my sisters and dad were at work we found my mom on the floor shaking and she couldn't move and couldn't really talk much..the same thing happened on Christmas eve and both times we had to take her to the hospital. This was actually before they figured out what she had...i believe she had longer than 2 years but when i was 17 thats when the doctors finally figured it out...the Med. lyrica is what my mom takes i think..among many other pills which she takes with her almost everywhere.
lol, like your family we are goofy too, we always laugh at each other making jokes and laughing, we do always and always will stick together.. and i do think it helps my mom to laugh..and it makes me feel better when she does....
You are right about her having a short temper which i never knew why and i think you may be right..but also with our family having a short temper runs in the family...
There is one thing that i don't know..does it ever go away? or does it stay with you for the rest of your life?
This is one disease that i hate...I hate what it does to people and i wish it wouldn't have to happen to anyone...cause i may not feel the pain of it but i do see it, sometimes it makes me mad..but i know that isn't going to do any good..so now the only thing i can do is really learn about it anyway i can...You've been such a great help thanks for taking the time to read this and thanks for replying back to the first one!

~KD