rosebuddy

i think a lot of my fibro was triggered by stress. And at onset i became hypersensitive to sounds like the crickets outside sounded like they were in my ears, the fan sounded like an airplane propeller. I couldn't stand the sound of a baseball game on tv; it was just too much noise.

I couldn't stand a/c and it burned my skin and caused my muscles to knot up.

I also couldn't take the smell of hairspray or perfume on someone even if i was just walking by. Or the smell of the laundry isle in the grocery store.

I was sensitive to touch also. i had to wear soft clothes with no tags at the neck. the tags would drive me me absolutely nuts.

I was cold all the time and would stay in my room with the a/c vent closed. when i went to the doctor, which is the only place i went practically, i had to take a blanket.

My skin burned once from head to toe and i was jumping around because the soles of my feet were burning.

My muscles lurched.

And i could not complete a single sentence. i would forget my words every time. I could not sort bills let alone write out the checks. i would just get overwhelmed. It took me hours to get ready for doctor appointments, someone would have to drive me and when i got there i couldn't communicate clearly and many times i would cry. all of these things would throw me into a worse flare.

i couldn't cook a can of beans without burning it. my family had to do everything. they were great.

i also had cmp all over my body in chains from neck to my feet with nerve entrapment.

I just think it was my body saying enough. Stop multi tasking, stop rushing around, turn down the radio, stop worrying, and stop working out at 4:30 am. etc. My central nervous system just went haywire. (Which Devin Starlanyl states in her book that fms is a cns disorder not an audio-immune disorder. Many times triggered by whiplash, old whiplash, and other injuries, but not always) I had an old whiplash.

The good news is none of those things bother me anymore. I am back to work part time. I can wear clothes with tags sometimes! I can listen to the radio and drive. I still don't like strong perfume, but i love scented candles which before i couldn't tolerate either. I can multi task. and i don't have any active trigger points. but my tender points around my clavical and elbows hurt sometimes. the burning skin is gone. I am back to normal. the only thing i have is stiffness in the morning, and tiredess and muscle pain when the weather changes or if i really over do it, like when i painted 3 rooms in the house. it is still hard for me to learn to do new things. It takes a lot of repitetion.

I just wondered if anyone else experienced these things and to let you know that you can get better. Just because you have fibro doesn't mean that it will get worse, like lupus or ms. and it can even go away for the most part.

I feel very blessed and am grateful. I wish you all feel better soon too.